Happy 50th Anniversary, OIF!

Fifty years ago, our founders had a vision of an organization that would help families living with OI. Today, the OIF provides information to more than 15,000 constituents each year, hosts regional and national conferences, and brings together medical professionals and researchers from around the world to help direct and advance new OI research. The OI Foundation has come a long way, but we wouldn’t be here without with the generous support of our members. Looking forward, there is still so much we can accomplish over the next 50 years. Our continued success is only possible with your generosity and commitment. Join us in celebrating the 50th anniversary of the OI Foundation by becoming a member today! #OIF50 #strongertogether

Learn More about COVID-19 from OI Experts


OI community members were invited to join OI experts, Dr. Robert Sandhaus (pulmonologist at National Jewish Health in Denver, CO) and Dr. Sandesh Nagamani (clinical geneticist at Baylor College of Medicine in Houston, TX), to discuss how COVID-19 is affecting the OI community. During this session, the speakers provided updates on how COVID-19 may impact those with OI, and provided best practices in approaching the changing landscape of social distancing policies across the United States.


Below is the recording of this session:


Investing in Sustainable Health + Wellbeing

Investing in Sustainable Health + Wellbeing with Stefanie Sacks, Culinary Nutritionist
A Cooking Demo + Dialogue

Is COVID-19 creating edible challenges for you and your family?
You are not alone! Routines are greatly disrupted including what and how we eat. Food shopping, once considered a mundane task for many, is layered with newfound stress whether it’s compromised access to the nourishment you normally buy or the fear of getting sick. Many are facing a culinary conundrum as home cooking is now a necessity.

An invitation to be your healthiest self with Stefanie Sacks, MS, CNS, CDN, Culinary Nutritionist + author of What the Fork Are You Eating

One-hour Virtual Cooking Demo + Dialogue
Thursday, May 28, 2020 // 3:00pm ET

*All registered attendees will receive a FREE copy of Stefanie’s book, What the Fork Are You Eating?!


There is no better time than now to invest in your sustainable health and wellbeing. Bring your questions and concerns to the table whether you have pantry items that baffle, foods that you just don’t know how to cook, inquiries about culinary techniques as well as dietary challenges? Stefanie will prepare two simple, nutritious and delicious recipes based on your input from a short pre-event survey and then answer all of your burning questions in this one-hour interactive demo and discussion. Stefanie’s wisdom and expertise will educate, inspire and give you practical tools for food lifestyle change…from her kitchen to yours. An invitation to be your healthiest self during COVID19 and beyond!

*To participate in this event, please complete the steps below:
Step 1 Register for the EventClick here to register for the event.
Step 2 Complete a Brief SurveyClick here to complete a brief survey created to help the OIF and Stefanie Sacks tailor the presentation to topics you care most about.

If you have any questions, please contact the OI Foundation at bonelink@oif.org.

Thank you for participating in National OI Awareness Week!

May 2-9, 2020

National OI Awareness Week is a week dedicated to raising awareness for OI and sharing your Unbreakable Spirit®. OI Awareness Week is scheduled around Wishbone Day (May 6), the international OI Awareness Day.  Each year during National OI Awareness Week, OI community members request state proclamations, hang flyers, hold events, and share social media posts to raise OI awareness. Check out some of the highlights of OI Awareness Week below!

  • We reached over 206,000 people on social media throughout National OI Awareness Week. Thank you for liking, sharing, and retweeting!
  • We received 26 official National OI Awareness Week proclamations. Click here to view all of the National OI Awareness Week proclamations.
  • 90 OI community members created National OI Awareness Week Facebook Fundraisers. OI Awareness Week fundraisers brought in more than 435 individual donations and raised $19,094 for the OI Foundation! You can create your own Facebook fundraiser at any time here.
  • We raised OI awareness across the globe on Wishbone Day. To view the OI Foundation’s #SHAREforAWARENESS Wishbone Day posts, click here.

You are invited to a Virtual Bone China Tea Party!

Celebrate National Bone China Tea Day with OI community members!

On Thursday, May 7, OI community members will come together virtually to celebrate National Bone China Tea Day! You are invited to attend the OIF’s virtual Bone China Tea party, hosted by Bone China Tea Chair Susie Wilson. 

THURSDAY, MAY 7, 2020 // 4:00pm ET

Click here to join the Zoom Virtual Meeting

Meeting ID: 879 5237 1329
Password: 049742


To set up your own Bone China Tea event or to learn more, visit www.oif.org/campaign/bonechinatea


Happy Wishbone Day!

Today is Wishbone Day, the international day of awareness for osteogenesis imperfecta (OI)! Each year on Wishbone Day, OI community members rally together to support and celebrate each other. The OI Foundation will be sharing hourly posts starting at 7:00am ET as part of our annual social media OI awareness campaign. Like, comment, and SHARE to raise OI awareness!

#SHAREforAWARENESS #WishboneDay #UnbreakableSpirit #OIawareness

Raise OI awareness and support the OIF year-round!

Thank you for celebrating #GivingTuesdayNow with the OI Foundation! Remember, you can raise OI awareness and support the OI Foundation year-round!
1. Create a Facebook Fundraiser! Visit www.facebook.com/fund/OsteogenesisImperfectaFoundation/ to start one today.
2. Host a Bone China Tea! National Bone China Tea Day is this Thursday (5/7). This virtual event is perfect way to connect with loved ones while staying safe at home. Visit www.oif.org/campaign/bonechinatea to get started!
3. Plan a virtual Blue Jeans for Better Bones Day! National Blue Jeans for Better Bones Day is this Friday! Invite your friends and family to wear jeans (or a blue shirt) to show support for the OI Foundation. Visit www.oif.org/bjbb to set up your blue jeans day!
4. Join the OIF Book Club! Read more, raise more, win more prizes! Visit www.oif.org/campaign/oifbookclub to register today!
5. Participate in the virtual Unbreakable Spirit® Walk-n-Wheel on July 10, 2020! Register today as an individual or create a team by going to www.oif.org/campaign/walkandwheel!
#GivingTuesdayNow #SHAREforAWARENESS #UnbreakableSpirit

VIRTUAL SPIRIT WEEK Day 1: Read More Monday!

OI Awareness VIRTUAL SPIRIT WEEK Day 1: Read More Monday!

Kick off your week with a good book – join the OIF Book Club!

How it works:
1. Find a sponsor!
Ask your family members and friends to support your reading efforts. You can have as many sponsors as you want!
2. Read books.. raise money!
For every book you read, have your sponsor(s) match it with a donation. The more books you read, the more money you will raise! Share photos of the books you read on social media using #OIFBookClub!
3. Win cool prizes!

Visit www.oif.org/campaign/OIFBookClub to sign up today. #SHAREforAWARENESS #OIawareness