OI Research Grants

Michael Geisman Fellowship Grant The Michael Geisman Fellowship Grant program awards funding to post-doctoral trainees who are currently working on projects with clear relevance to osteogenesis imperfecta (OI), or who…

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Somewhere To Go

In October 2023, the OI Foundation hosted a conference titled, Somewhere to Go for Adults with Childhood-Onset Rare Diseases: A Conversation About How We Can Fill Gaps in Care, to…

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Participate in the OI Wellbeing Study

Participate in the OI Wellbeing Study Baylor College of Medicine is conducting this OI Wellbeing Study as a part of the Brittle Bone Disorders Consortium which aims to improve the…

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OI Study: Evidera

Evidera, a company specialized in patient-centered outcomes research, are currently looking for individuals living with osteogenesis imperfecta (OI). Please take a moment to read a message from Evidera below: We…

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Exciting new data update from Ultragenyx!

Today, Ultragenyx announced Interim data from the Phase 2 portion of the Orbit study, which showed that treatment with setrusumab reduced incidence of fractures in patients with OI by 67%…

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OI Research Update: Abnormal lung function in OI

OI Research Update: Abnormal lung function in osteogenesis imperfecta due to both intrinsic and extrinsic causes Gochuico et al. (2023) J Med Genet May 16:jmg-2022-109009. Doi:10.1136/jmg-2022-109009 Lung disease is the…

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