OIF Young Investigators Symposium: Call for Abstracts!

OIF Young Investigators Symposium
Basic, Translational and Clinical Aspects of Osteogenesis Imperfecta and Other Rare Bone Disorders

The Osteogenesis Imperfecta Foundation (OIF) is seeking abstract submissions from young investigators working in the field of osteogenesis imperfecta (OI) and/or rare bone disease research to be presented at the 2020 OIF Young Investigator Symposium on Tuesday, November 17 from 5pm-8pm EST.

This virtual one-day meeting is being offered as a pre-meeting event for the 2020 International Conference on Children’s Bone Health’s Virtual Forum and is open to US and international participants. Investigators are welcome to submit abstracts to both meetings. Submissions for the Young Investigator Symposium will be reviewed by a scientific review committee and selected abstracts will be invited to present a 10-15 minute overview of their work with 5 minutes for questions from the audience. Investigators are encouraged to share novel findings.
For more information about the ICCBH Virtual Forum visit www.iccbh.org.


Date of Meeting: November 17, 2020 from 5pm-8pm EST

Deadline for Submission: October 1, 2020

To Apply: Click here for Abstract Submission Form or contact Erika Carter at ecarter@oif.org

To Attend: Click here to register to attend. Registration to attend the meeting is free of charge.


 

ELIGIBILITY

  • Must be a medical or graduate student
    • OR post-doctoral fellow
    • OR young faculty within 10 years of last graduate degree
  • Areas of research include, but are not limited to: Osteogenesis imperfecta, Paget’s disease of bone, Generalized Arterial Calcification of Infancy (GACI), Hypophosphatemia, Autosomal Recessive Hypophosphatemic Rickets (ARHR2), Osteopetrosis, Fibrodysplasia Ossificans Progressiva (FOP), Fibrous Dysplasia and McCune Albright Syndrome, Hypophosphatasia (HPP), Gorham-Stout Disease, Melorheostosis, Jansen’s disease, X-Linked Hypophosphatemia (XLH), Multiple Hereditary Exostoses (MHE), and Multicentric Carpotarsal Osteolysis Syndrome (MCTO)

The OI Foundation is committed to supporting research to help improve the quality of life for people living with OI. This often times includes engaging groups throughout the rare bone disease community, such as the Rare Bone Disease Alliance (www.rbdalliance.org). The OI Foundation is pleased to open this meeting to the entire rare bone disease research community.

Survey Opportunity: Help Orthopedic Surgeons Learn About OI

The OI Foundation would like to bring your attention to a new survey to help orthopedic surgeons learn more about OI.

A group of orthopedic surgeons with extensive experience in treating OI have come together to learn more about the patient experience. Your participation will help these OI experts better understand the needs of people living with osteogenesis imperfecta.

Please take 5-10 minutes to complete the survey at https://www.surveymonkey.com/r/J9653VK.

This survey will be available until Sunday, October 18, 2020.

OI Foundation PCOR Project Approved for Supplemental Funding Award

OI Foundation Project, Improving Patient-Centered Outcomes: Expanding Engagement of the Osteogenesis Imperfecta Community, Approved for Supplemental Funding Award

The Osteogenesis Imperfecta Foundation is excited to announce that supplemental funding has been approved for the Improving Patient-Centered Outcomes: Expanding Engagement of the Osteogenesis Imperfecta Community project to include investigating the impact of the COVID-19 pandemic on the osteogenesis imperfecta community. This important project advances the collaboration of the OI Foundation (Tracy Hart, CEO, Lead) and Co-Leads Dr. Laura Tosi, Director, Bone Health Program, Children’s National Hospital and Dr. Bryce Reeve, Director, Center for Health Measurement, Duke University. The goals of the supplemental funding award are to assist the rare bone disease community in developing COVID-19 content and outreach, expand the OI PCOR toolkit to include COVID-19-specific resources, expand OI clinic outreach to disseminate content on COVID-19, and create and disseminate OI-relevant COVID-19 content.

Click here to learn more.

OIF Young Investigators Symposium

OIF Young Investigators Symposium
Basic, Translational and Clinical Aspects of Osteogenesis Imperfecta and Other Rare Bone Disorders

The Osteogenesis Imperfecta Foundation (OIF) is seeking abstract submissions from young investigators working in the field of osteogenesis imperfecta (OI) and/or rare bone disease research to be presented at the 2020 OIF Young Investigator Symposium on Tuesday, November 17 from 5pm-8pm EST.

This virtual one-day meeting is being offered as a pre-meeting event for the 2020 International Conference on Children’s Bone Health’s Virtual Forum and is open to US and international participants. Investigators are welcome to submit abstracts to both meetings. Submissions for the Young Investigator Symposium will be reviewed by a scientific review committee and selected abstracts will be invited to present a 10-15 minute overview of their work with 5 minutes for questions from the audience. Investigators are encouraged to share novel findings.
For more information about the ICCBH Virtual Forum visit www.iccbh.org.


Date of Meeting: November 17, 2020 from 5pm-8pm EST

Deadline for Submission: October 1, 2020

To Apply: Click here for Abstract Submission Form or contact Erika Carter at ecarter@oif.org

To Attend: Click here to register to attend. Registration to attend the meeting is free of charge. 


ELIGIBILITY

  • Must be a medical or graduate student
    • OR post-doctoral fellow
    • OR young faculty within 10 years of last graduate degree
  • Areas of research include, but are not limited to: Osteogenesis imperfecta, Paget’s disease of bone, Generalized Arterial Calcification of Infancy (GACI), Hypophosphatemia, Autosomal Recessive Hypophosphatemic Rickets (ARHR2), Osteopetrosis, Fibrodysplasia Ossificans Progressiva (FOP), Fibrous Dysplasia and McCune Albright Syndrome, Hypophosphatasia (HPP), Gorham-Stout Disease, Melorheostosis, Jansen’s disease, X-Linked Hypophosphatemia (XLH), Multiple Hereditary Exostoses (MHE), and Multicentric Carpotarsal Osteolysis Syndrome (MCTO)

The OI Foundation is committed to supporting research to help improve the quality of life for people living with OI. This often times includes engaging groups throughout the rare bone disease community, such as the Rare Bone Disease Alliance (www.rbdalliance.org). The OI Foundation is pleased to open this meeting to the entire rare bone disease research community.

Rare Bone Disease TeleECHO Program: Year 2 Begins Thursday

Rare Bone Disease TeleECHO Clinic Series: Year 2

The Osteogenesis Imperfecta Foundation and the Rare Bone Disease Alliance are excited to announce the Rare Bone Disease TeleECHO Clinic Series. The goal of this educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), is to build capacity to safely and effectively diagnose and treat rare bone diseases and disorders.This series uses Zoom videoconferencing, and will take place on the first Thursday of every month at 3pm EST. In each monthly session, faculty members or guest speakers will present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to rare bone diseases at each session.

The interdisciplinary faculty in the Rare Bone Disease TeleECHO includes:

Michael Collins, MD National Institutes of Health, NIDCR
Michael Lewiecki, MD University of New Mexico
Eric Rush, MD University of Kansas Hospital
Jay Shapiro, MD Uniformed Services University of Health Sciences
Dolores Shoback, MD University of California San Francisco
Laura Tosi, MD Children’s National Health System

In support of improving patient care, Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO® designates this live activity for a maximum of 1.0 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

 

PROGRAM SCHEDULE

August 6, 2020; 3:00pm EST

Melorheostosis: The Genes Behind the Dripping Candle Wax
Timothy Bhattachyrra, MD  Orthopaedic Surgery, NIAMS/NIH


September 3, 2020; 3:00pm EST

Evaluation of Patients with Hyperphosphatemia
Michael Collins, MD Senior Investigator, Skeletal Disorders and Mineral Homeostasis Section, National Institute of Dental and Craniofacial Research/NIH


October 1, 2020; 3:00pm EST

Mechanisms of Bone Loss in Complex Lymphatic Anomalies
Michael Kelly, MD, PhD Professor of Pediatrics, Northeast Ohio Medical University


November 5, 2020; 3:00pm EST

Dental Concerns in Patients with Rare Bone Disorders
Tim Wright, DDS, MS Bawden Distinguished Professor, Division of Pediatrics and Public Health, Adams School of Dentistry, University of North Carolina


December 3, 2020; 3:00pm EST

Generalized Arterial Calcification of Infancy (GACI)
Carlos Ferreira, MD ChiefSkeletal Genomics Unit, National Human Genome Research Institute, NIH


January 7, 2021; 3:00pm EST

Skeletal Surveys – A Systematic Approach
Dorothy Bulas, MD Chief, Department of Radiology, Children’s National Hospital; Professor of Pediatrics and Radiology, George Washington University School of Medicine


February 4, 2021; 3:00pm EST

Jansen’s Disease
Harald Jueppner, MD Chief, Pediatric Nephrology, Massachusetts General Hospital; Professor of Pediatrics, Harvard Medical School


March 4, 2021; 3:00pm EST

Bone Pain in Children
Alison Boyce, MD Associate Research Physician, National Institute of Dental and Craniofacial Research, NIH


April 1, 2021; 3:00pm EST

Multiple Hereditary Exostoses
David S. Feldman, MD Co-Director, Multiple Hereditary Exostoses Center, St. Mary’s Medical Center, West Palm Beach, FL


May 6, 2021; 3:00pm EST

DXA Evaluation in the Child
Catherine Gordon, MD Adolescent Chief, Boston Children’s Hospital; Robert P. Masland, Jr. Chair of Adolescent Medicine, Professor of Pediatrics, Harvard Medical School


June 3, 2021; 3:00pm EST

Adult Hypophosphatasia
Kathryn Dahir, MD Professor of Medicine, Vanderbilt University Medical Center 


July 1, 2021; 3:00pm EST

Evaluation of the Child with Multiple Fractures
Eric. T. Rush, MD, FAAP, FACMG Clinical Geneticist, Children’s Mercy Kansas City; Associate Professor of Pediatrics, University of Missouri-Kansas City School of Medicine; Clinical Associate Professor of Medicine, University of Kansas School of Medicine

If you have any questions, please contact Michael Stewart at Mstewart@oif.org.

CPAG Webinar: An Introduction to Clinical Trials. 

Are you interested in learning about how clinical trials work?

Watch the Coalition of Patient Advocacy Groups (CPAG) Webinar: An Introduction to Clinical Trials.
Tracy Hart, OIF CEO serves as the chair of the Coalition of Patient Advocacy Groups Steering Committee (CPAG). CPAG is the collective representation of patient groups affiliated with the consortia of the Rare Diseases Clinical Research Network (RDCRN), a National Institutes of Health (NIH)-funded research network. CPAG members influence the direction of the Rare Diseases Clinical Research Network as a whole.

CPAG Webinar: An Introduction to Clinical Trials, 7-23-20 from Rare Diseases Network (RDCRN) on Vimeo.