Special Update from the OIF About Covid-19

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Information Center

The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI.

Resources

The OI Foundation provides  additional resources including the OI Clinic Directory, OIF Newsletters, and Support Networks.

Events

OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Research

Research is an important part of the OI Foundation’s mission. Learn more about available OIF research grants and how to participate in current OI studies.

Remembering Gemma Geisman

It is with great sadness that the OI Foundation’s Board of Directors and Staff report that Gemma Geisman, founder of the OI Foundation, has passed away. We owe a very special thank you to Gemma for her dedication to the OI community for more than fifty years. She will be greatly missed.

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Updates from the OIF

Stay up-to-date with the OI Foundation! Check out the OIF Updates page to view announcements including the OIF’s current programs, accomplishments, and news for the OI community.

OIF Updates

Join the 1970 Society

Founded in 1970, the OI Foundation has provided information and resources to families living with OI for the past 50 years. Members who give $1,000 this year will become part of the 1970 Society commemorating the OIF’s 50th anniversary, as well as receive a limited edition OIF 50th anniversary lapel pin and a miniature Goldie golden anniversary teddy bear.

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OIF National Conference Update

After careful consideration, the OIF’s Board of Directors and OIF Staff have postponed this summer’s OIF National Conference. The OIF National Conference will now be held on July 8-11, 2021 at the Hilton Omaha in Omaha, Nebraska.

VIRTUAL CONFERENCE: JULY 10-12, 2020
In place of the in-person OIF National Conference this year, we will host a Virtual OIF Conference on July 10-12, 2020.

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Join the OI Registry

Individuals with OI (18+) and parents of children with OI are encouraged to join the OI Registry. Once enrolled, you will receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward.

Upcoming Events

Fundraising events, OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Current Studies

Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.

Rare Bone Disease Alliance

The OIF is proud to be a member of the Rare Bone Disease Alliance (RBDA). The RBDA is a patient advocacy network focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.