Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.”DONATE
The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI.
The OI Foundation provides additional resources including the OI Clinic Directory, OIF Newsletters, and Support Networks.
OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!
OIF National Conference - Registration is open!
The OI Foundation and OI community will celebrate the OIF’s 50th anniversary at the OIF National Conference on July 9-12, 2020 in Omaha, Nebraska. Register today!Learn More
Jeanie Coleman Impact Grant Program
Impact Grants help individuals living with OI fund projects, receive services, or purchase equipment that might not be covered by savings or insurance. Applications will be available until February 19, 2020. Please contact firstname.lastname@example.org if you have any questions.Apply for an Impact Grant
Brittle Bones Disorders Consortium
As the lead patient advocacy organization of the Brittle Bone Disorders Consortium (BBDC), part of the NIH’s Rare Diseases Clinical Research Network, the OIF is pleased to announce that the BBDC has been funded for an additional five years.Learn More
Sign up to receive emails from the OI Foundation including the OIF monthly e-newsletter, research updates, and upcoming event information!
Individuals with OI (18+) and parents of children with OI are encouraged to join the OI Registry. Once enrolled, you will receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward.
Fundraising events, OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!
Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.
The OIF is proud to be a member of the Rare Bone Disease Alliance (RBDA). The RBDA is a patient advocacy network focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.