Stay up to date with news from the OIFOIF Updates
The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI.
The OI Foundation provides additional resources including the OI Clinic Directory, OIF Newsletters, and Support Networks.
OIF Conferences, events, and OI support group meetings are held across the country. Attend an upcoming event in your area!
At the OI Foundation, we believe nothing short of a real transformation is needed to reform the systems that continue to perpetuate racism in this country. We stand firmly with those calling for immediate and concrete change. The OI Foundation is conducting an internal review of our programs and services to determine how we can be more inclusive as a Foundation and in the services we provide. Updates will be posted on the OIF’s Mission page.Learn More
Enroll in the OI Registry!
The OI Registry is a database of individuals with OI (parents may enroll on behalf of their children) who are interested in participating in OI research. OI research announcements, surveys and questionnaires will be sent to you via email and you may choose which ones, if any, you would like to complete.Sign Up Today
Updates from the OIF
Stay up-to-date with the OI Foundation! Check out the OIF Updates page to view announcements including the OIF’s current programs, accomplishments, and news for the OI community.OIF Updates
Sign up to receive emails from the OI Foundation including the OIF monthly e-newsletter, research updates, and upcoming event information!
Individuals with OI (18+) and parents of children with OI are encouraged to join the OI Registry. Once enrolled, you will receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward.
Fundraising events, OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!
Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.
The OIF is proud to be a member of the Rare Bone Disease Alliance (RBDA). The RBDA is a patient advocacy network focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.