Special Update from the OIF About Covid-19

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Information Center

The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI.

Resources

The OI Foundation provides  additional resources including the OI Clinic Directory, OIF Newsletters, and Support Networks.

Events

OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Research

Research is an important part of the OI Foundation’s mission. Learn more about available OIF research grants and how to participate in current OI studies.

At the OI Foundation, we believe nothing short of a real transformation is needed to reform the systems that continue to perpetuate racism in this country. We stand firmly with those calling for immediate and concrete change. The OI Foundation is conducting an internal review of our programs and services to determine how we can be more inclusive as a Foundation and in the services we provide.  We will release more information with action steps at a later date. Please read a full statement about our commitment on the OIF’s Mission page.

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Enroll in the OI Registry!

The OI Registry is a database of individuals with OI (parents may enroll on behalf of their children) who are interested in participating in OI research. OI research announcements, surveys and questionnaires will be sent to you via email and you may choose which ones, if any, you would like to complete.

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Join the 1970 Society

Founded in 1970, the OI Foundation has provided information and resources to families living with OI for the past 50 years. Members who give $1,000 this year will become part of the 1970 Society commemorating the OIF’s 50th anniversary, as well as receive a limited edition OIF 50th anniversary lapel pin and a miniature Goldie golden anniversary teddy bear.

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Updates from the OIF

Stay up-to-date with the OI Foundation! Check out the OIF Updates page to view announcements including the OIF’s current programs, accomplishments, and news for the OI community.

OIF Updates

Join the OI Registry

Individuals with OI (18+) and parents of children with OI are encouraged to join the OI Registry. Once enrolled, you will receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward.

Upcoming Events

Fundraising events, OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Current Studies

Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.

Rare Bone Disease Alliance

The OIF is proud to be a member of the Rare Bone Disease Alliance (RBDA). The RBDA is a patient advocacy network focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.