Osteogenesis Imperfecta (OI) is a genetic bone disorder characterized by fragile bones that break easily. It is also known as “brittle bone disease.”

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Information Center

The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI.

Resources

The OI Foundation provides  additional resources including the OI Clinic Directory, OIF Newsletters, and Support Networks.

Events

OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Research

Research is an important part of the OI Foundation’s mission. Learn more about available OIF research grants and how to participate in current OI studies.

OIF National Conference - Registration is open!

The OI Foundation and OI community will celebrate the OIF’s 50th anniversary at the OIF National Conference on July 9-12, 2020 in Omaha, Nebraska. Register today!

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Kasper Kendall Conference Scholarships

Kasper Kendall Scholarships are intended for people who require financial assistance to attend the OIF National Conference. NEW this year – thanks to the Canadian OI Society, the Kasper Kendall scholarship program is also available to Canadian residents. These scholarships cover registration and three nights at the conference hotel for US and Canadian residents. Thanks to the generous support of the Bennett Clayton Foundation, additional funding will be available for residents of Iowa, Minnesota, North Dakota, South Dakota, and Wisconsin. 
Applications are due March 30, 2020.

Apply for a Conference Scholarship

Brittle Bones Disorders Consortium

As the lead patient advocacy organization of the Brittle Bone Disorders Consortium (BBDC), part of the NIH’s Rare Diseases Clinical Research Network, the OIF is pleased to announce that the BBDC has been funded for an additional five years.

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Join the OI Registry

Individuals with OI (18+) and parents of children with OI are encouraged to join the OI Registry. Once enrolled, you will receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward.

Upcoming Events

Fundraising events, OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Current Studies

Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.

Rare Bone Disease Alliance

The OIF is proud to be a member of the Rare Bone Disease Alliance (RBDA). The RBDA is a patient advocacy network focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.