National Office Staff
Chief Executive Officer
Tracy Smith Hart firstname.lastname@example.org
Responsible for: strategic oversight of the national offices’ operations, budget and planning; coordination of advocacy efforts; liaison with related organizations; and liaison with Board of Directors.
Chief Operating Officer
Erika Carter email@example.com
Responsible for: managing special projects, corporate sponsorships and donor relations, media queries and events, website and social media, electronic and print communications; coordinating and execution of National Conference on OI and Annual Scientific Meeting.
Director of Finance & Administration
Tom Costanzo firstname.lastname@example.org
Responsible for: financial planning; budget oversight; financial statements; accounts payable & accounts receivable; day-to-day operations of Foundation offices; computer services and support.
Director of Development
Melissa Bonardi email@example.com
Responsible for: coordination and support of OIF fundraising events and campaigns including National events such as Fine Wines Strong Bones events, the National Unbreakable Spirit® Walk-n-Wheel, and board-driven fundraising efforts.
Danielle Cymber firstname.lastname@example.org
Responsible for: management of OIF communications and outreach including electronic and printed newsletters, webpage updates, and social media pages.
Jessica Ransome email@example.com
Responsible for: Preparation and distribution of education materials that reflect the many needs of people living with OI. Provide OI program information to constituents and the general public. Maintain databases, mailings lists, telephone networks and other information to facilitate the functioning of the health education program.
Regional Program Services Manager
Michael Stewart firstname.lastname@example.org
Responsible for: coordination of program content and event logistics for the OIF Regional Conference program; supports outreach to promote the OIF mission in key communities of designated geographic regions in the United States; corresponds with the OI community about opportunities to engage in educational programs, awareness activities, and research opportunities.
Manager of Professional Education and Outreach
Rachel Stivers email@example.com
Responsible for: Development and distribution of materials, attending medical professional meetings aimed at assisting medical professionals with providing care to their patients with OI, providing opportunities for collaboration with medical professionals, contact with professional societies and organizations interested in OI research and treatment.
Desiree Swain firstname.lastname@example.org
Responsible for: membership services and member database management; processing of donations and related correspondence; maintenance of memorial/honorarium listings.
Janeen Hamad email@example.com
Jenny Stup firstname.lastname@example.org
Responsible for: clerical, administrative and reception support for CEO and COO. Key responsibilities include: answering phones; order fulfillment; office volunteer supervision; office equipment and supply maintenance.
Christina Teufert email@example.com
Responsible for supporting the OIF Program and Development Departments
For general questions or comments related to OI or the OI Foundation, write to: firstname.lastname@example.org
For questions or comments related specifically to this website, write to: