Welcome to the OI Clinic Directory! The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.
All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs
| STATE | CLINIC | Website | Phone Number | Services (Children or Adult) |
|---|---|---|---|---|
| ALABAMA | Metabolic Bone Clinic Children’s of Alabama Birmingham, AL 35233 | Website | 205-638-5025 (Dr. McCormick) 205-638-5027 (Dr. Ashraf) | Children |
| ARIZONA | Children’s Clinics Comprehensive Care for Kids &Teens Tucson, AZ 85712 | Website | 520.324-KIDS (5437) Toll Free: 1-800-231-8261 ext. 45437 | Children & Young Adults |
| ARIZONA | Skeletal Dysplasia & Bone Health Clinic Phoenix Children's Hospital Phoenix, Arizona 85016 | Website | 602-933-1000 | Children to age 21 |
| CALIFORNIA | Pediatric Bone Disorders Program Mattel Childrens Hospital UCLA Witherbee Foundation Children’s Health Center Los Angeles, CA 90095 | Website | (310) 206-6987 | Pediatric services |
| CALIFORNIA | The Kaiser Regional Skeletal Dysplasia Program Oakland, CA 94611 | Website | 510-752-5101 | Children and adults (Kaiser Health Plan Insurance Only) |
| CALIFORNIA | Shriners for Children Medical Center Orthopaedics Pasadena, CA 91105 | Website | 626-389-9300 | |
| CALIFORNIA | Tijuana Ambulatory Clinic 22010 Tijuana, B.C. | Website | 664-977-2500 | Up to Age 18 |
| CALIFORNIA | Shriners Hospitals for Children — Northern California Orthopaedics Sacramento, CA 95817 | Website | 916-453-2191 | Children |
| CALIFORNIA | Genetic Medicine and Metabolism (Multidisciplinary Services-Orthopaedics) Valley Children’s Healthcare Madera, CA 93636-8762 | Website | 559-353-3000 | Children |
| CALIFORNIA | Children's Hospital Los Angeles (CHLA) Pediatric Metabolic Bone Disorders Clinic | Website | 323-361-4606 | Infants, Children, Adolescents |
| CALIFORNIA | Stanford Childrens Health/Lucille Packard Children’s Hospital Stanford - Bone Health P alo Alto, CA 94304 | Website | (650) 721-1811 | Pediatric services |
| CALIFORNIA | UCSF (University of California San Francisco) Metabolic Bone Clinic | Website | (415) 353-2350 | |
| COLORADO | The General Orthopedics Program Orthopedics Institute at Children's Hospital Colorado Aurora, CO 80045 | Website | 720-777-6600 | Children, adolescents, and young adults |
| CONNECTICUT | Connecticut Children’s Center for Rare Bone Disorders (Center for Osteogenesis Imperfecta) Connecticut Children’s Diabetes & Endocrinology Farmington, CT 06032 | Website | (860)837-6700 | All Ages |
| WASHINGTON, DC | Childrens National Bone Health Program Rare Disease Institute Genetics and Metabolism Skeletal Dysplasia Clinic Children's National-Main Hospital Washington, DC 20010 | Website | 202-476-2112 202-476-2187 202-476-5778 | Rare Disease Institute Genetics and Metabolism-Children and Adults |
| DELAWARE | Osteogenesis Imperfecta (OI) Program Nemours/Alfred I. duPont Hospital for Children Wilmington, DE 19803 | Website | (302) 651-4111 | Prenatal - 35 years of age |
| FLORIDA | Osteogenesis Imperfecta Program Nemours Children’s Hospital Orlando, FL, 32827 | Website | 407-650-7715 | 0-18 years old |
| HAWAII | Shriners Hospitals for Children — Honolulu Orthopaedics Honolulu, HI 96826 | Website | 808-941-4466 | Children |
| ILLINOIS | Osteogenesis Imperfecta Clinic Shriners Hospitals for Children — Chicago Chicago, IL 60707 | Website | 773-622-5400 | Children |
| INDIANA | Bone Dysplasia Clinic Riley Hospital for Children at IU Health Indianapolis, IN, 46202 | Website | 317-944-5000 | Children & Adults |
| LOUISIANA | Shriners Hospitals for Children — Shreveport Orthopaedics Shreveport, LA 71103 | Website | 800-830-0606 | Children |
| MASSACHUSETTS | Boston Children's Hospital Orthopedic Center Boston, MA 02115 | Website | 617-355-6021 International: +1-617-355-5209 | Children & Young Adult |
| MASSACHUSETTS | Metabolic Bone Disease Clinic Shriners Hospitals for Children — Springfield Springfield, MA 01104 | Website | 413-787-2000 | Children |
| MARYLAND | Johns Hopkins Pediatric Orthopaedic Surgery Baltimore, MD | Website | 443-997-2663 | Children |
| MARYLAND | Johns Hopkins Bayview Metabolic Bone and Osteoporosis Center Bayview Musculoskeletal Center Baltimore, Maryland 21224 | Website | (410) 955-3663 | Adult |
| MARYLAND | Osteogenesis Imperfecta Clinic Kennedy Krieger Institute Baltimore, MD 21205 | Website | (443) 923-2703 | Children & Adults |
| MARYLAND | Pediatric Longitudinal Program in OI National Institutes of Health | Website | 800-411-1222 | |
| MICHIGAN | Department of Pediatric Orthopaedic Surgery University of Michigan C.S. Mott Children’s Hospital Ann Arbor, MI 48109 | Website | 734-936-5780. | Children |
| MINNESOTA | Interdisciplinary Osteogenesis Imperfecta Clinic Gillette Children's Specialty Healthcare St. Paul, MN 55101 | Website | 651-291-2848 / 800-719-4040 | Children |
| MISSOURI | Skeletal Dysplasia Program Missouri Orthopaedic Institute Columbia, MO | Website | (573)-882-2663 | Children |
| MISSOURI | Hospital St Louis Children’s Hospital for Kids Barnes Jewish Christian Hospital for Adults St. Louis, MO 63110 | Website | 314-454-6093 | Children and Adults |
| MISSOURI | Kidney Center Bone and Mineral Disorder Clinic (Nephrology) Children's Mercy Kansas City Kansas City, MO 64108 | Website | (816) 234-3030 | Children |
| MISSOURI | Hospital St Louis Childrens Hospital for Kids and Barnes Jewish Christian Hospital for adults 1 Childrens Place, St Louis, MO 63110 | Website | (314) 454-6093 | Children & Adults |
| NEBRASKA | Osteogenesis Imperfecta Clinic Children's Hospital & Medical Center Omaha Omaha, NE 68114 | Website | 402-955-6300 | Children |
| NEBRASKA | University of Nebraska Medical Center Diabetes Clinic | Website | 402-559-8700 | Adult OI care |
| NEW MEXICO | New Mexico Clinic Research & Osteoporosis Center - Research & Osteoporosis Center Albuquerque, NM 87106 | Website | (505)-855-5525 | Adults |
| NEW YORK | The Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias Hospital for Special Surgery New York, NY 10021 | Website | (212)-774-7332 | Children & Adults |
| NEW YORK | OI Clinic – Lerner Children’s Pavilion Hospital for Special Surgery Dr. Daniel Green New York, NY 10021 | Website | 212-606-1267 | Pediatric & Adults |
| NEW YORK | Pediatric Bone Health Program/Metabolic Bone Disease Clinic Golisano Children's Hospital Rochester, NY 14642 | Website | (585) 275-2901 | Children-Pediatric |
| NEW YORK | Clinic for Pediatric Bone Health Hassenfeld Children’s Hospital at NYU Langone New York, NY 10016 | Website | (212)-263-5940 | Children |
| NORTH CAROLINA | Atrium Health Levine Children’s-Children’s Specialty Center Charlotte, NC 28203 | Website | (704)-381-8840 | Children |
| OHIO | Osteogenesis Imperfecta Clinic Akron Children's Hospital Akron, Ohio 44308 | Website | (330)-543-0735 | Children & Adults |
| OHIO | Metabolic Bone Clinic Nationwide Children's Hospital Columbus, OH 43205 | Website | (614) 722-6200 | Children |
| OHIO | The Skeletal Dysplasia Center at Cincinnati Children’s The Connective Tissue Clinic at Cincinnati Children’s Cincinnati Children's Hospital Medical Center Cincinnati, OH 45229 | Website | 513-636-4760 | Children & Adults |
| OKLAHOMA | Metabolic Bone Disease Clinic OU Children's Physicians Building Oklahoma City, OK 73104 | Website | 405-271-3303 | Children |
| OREGON | Shriners Hospitals for Children – Portland | Website | 503-221-3422 | Children |
| OREGON | Bone and Mineral Unit OHSU Portland, OR 97201-3098 | Website | 503 494-1385 | Children & Adults |
| OREGON | Pediatric Genetics Program Randall Children’s Genetics and Metabolism Portland, OR 97227 | Website | 503-413-4505 | Children |
| PENNSYLVANIA | Shriners Hospital for Children Orthopaedics Philadelphia, PA 19140 | Website | 215-430-4000 | Children |
| PENNSYLVANIA | Division of Translational Medicine and Human Genetics Hospital of the University of Pennsylvania Philadelphia, PA 19104 | Website | (800)-798-7366 | Children & Adults |
| PENNSYLVANIA | Shriners Hospitals for Children — Erie Erie, PA 16505 | Website | 814-875-8700 | Children |
| PENNSYLVANIA | Center for Bone Health Children's Hospital of Philadelphia Philadelphia, PA 19104-4399 | Website | 1-877-972-2663 | Children |
| TENNESSEE | Program for Metabolic Bone Disorders at Vanderbilt -Adult Clinic Vanderbilt Medical Center Nashville, TN 37232 | Website | (615) 936-8866 | Adults |
| TENNESSEE | Metabolic Bone Disease Clinic Monroe Carell Jr. Childrens Hospital at Vanderbuilt Nashville, TN 37232 | Website | (615) 936-8866 | Children |
| TEXAS | Skeletal Dysplasia Program Texas Children's Hospital Texas Medical Center | Website | (832)-822-4298 | Children & Adults |
| TEXAS | Adult Genetics Clinic Baylor Medicine | Website | 713–798–7820 | Adults |
| TEXAS | OI Coordinated Care Center Texas Scottish Rite Hospital for Children Dallas, Texas 75219 | Website | (214)-224-1589 | Children & Adolescents |
| UTAH | Osteogenesis Imperfecta Clinic Shriners Hospital for Children - Salt Lake City Salt Lake City, Utah 84103 | Website | (801)-536-3777 | Children |
| VIRGINIA | CHKD's Center for Bone Health Children's Hospital of The King's Daughters Norfolk, VA 23507 | Website | (757) 668-6640 | Children |
| WASHINGTON | Shriners Hospitals for Children-Spokane Orthopaedic Spokane, WA 99218 | Website | (509)-623-0431 Toll-free: (888)-895-5951 | Children up to age 18 |
| WASHINGTON | Skeletal Health Program Seattle Children's Hospital Main Campus Seattle, WA | Website | (206)-987-2000 (866)-987-2000 (toll-free) (206)-987-0391 (TTY)Orthopedics | Children & Adults |
| WASHINGTON | Genetic Medicine Clinic Center on Human Development and Disability Center Seattle, WA 98195 | Website | (206)-598-4030 | Adults |
| WISCONSIN | Pediatric Bone and Mineral Metabolism Clinic American Family Children's Hospital Madison, WI 53792 | Website | (608)263-6428 | Children |
| CANADA | The Bone Health Clinic The Hospital for Sick Children Toronto, ON M5G 1X8, Canada | Website | 416-813-7654 ext. 201768 | Children |
| CANADA | Metabolic and brittle bone disease Shriners Hospital for Children Montreal, Quebec | Website | 514-282-6971 | Children |
Physician Directory
The OIF Information Center also maintains a list of medical professionals (ie. general physician, dentist, specialist) who have experience treating patients with osteogenesis imperfecta (OI). To locate care in your area, please email bonelink@oif.org.
