Welcome to the OI Clinic Directory! The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.

All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs

STATECLINIC WebsitePhone NumberServices (Children or Adult)
ALABAMAMetabolic Bone Clinic
Children’s of Alabama
Birmingham, AL 35233
Website 205-638-5025 (Dr. McCormick)
205-638-5027 (Dr. Ashraf)
Children
ARIZONA
Children’s Clinics Comprehensive Care for Kids &Teens
Tucson, AZ 85712
Website 520.324-KIDS (5437)
Toll Free: 1-800-231-8261 ext. 45437
Children & Young Adults
ARIZONASkeletal Dysplasia & Bone Health Clinic
Phoenix Children's Hospital
Phoenix, Arizona 85016
Website 602-933-1000Children to age 21
CALIFORNIAPediatric Bone Disorders Program
Mattel Childrens Hospital UCLA Witherbee Foundation
Children’s Health Center
Los Angeles, CA 90095
Website (310) 206-6987Pediatric services
CALIFORNIAThe Kaiser Regional Skeletal Dysplasia Program
Oakland, CA 94611
Website 510-752-5101Children and adults (Kaiser Health Plan Insurance Only)
CALIFORNIAShriners for Children Medical Center
Orthopaedics
Pasadena, CA 91105
Website626-389-9300
CALIFORNIATijuana Ambulatory Clinic
22010 Tijuana, B.C.
Website664-977-2500Up to Age 18
CALIFORNIAShriners Hospitals for Children — Northern California
Orthopaedics
Sacramento, CA 95817
Website 916-453-2191Children
CALIFORNIAGenetic Medicine and Metabolism (Multidisciplinary Services-Orthopaedics)
Valley Children’s Healthcare
Madera, CA 93636-8762
Website - Genetics Website - Orthopaedics 559-353-3000Children
CALIFORNIAStanford Childrens Health/Lucille Packard Children’s Hospital Stanford - Bone Health
P alo Alto, CA 94304
Website (650) 721-1811Pediatric services
COLORADOThe General Orthopedics Program
Orthopedics Institute at Children's Hospital Colorado
Aurora, CO 80045
Website 720-777-6600Children, adolescents, and young adults
CONNECTICUT
Connecticut Children’s Center for Rare Bone Disorders (Center for Osteogenesis Imperfecta)
Connecticut Children’s Diabetes & Endocrinology
Farmington, CT 06032
Website (860)837-6700Kids Center for Bone Health-Children
WASHINGTON, DCChildrens National Bone Health Program
Rare Disease Institute Genetics and Metabolism
Skeletal Dysplasia Clinic
Children's National-Main Hospital
Washington, DC 20010
Website 202-476-2112
202-476-2187
202-476-5778
Rare Disease Institute Genetics and Metabolism-Children and Adults
DELAWARE Osteogenesis Imperfecta (OI) Program
Nemours/Alfred I. duPont Hospital for Children
Wilmington, DE 19803
Website (302) 651-4111 Prenatal - 35 years of age
FLORIDA
Shriners Healthcare for Children — Florida
Orthopaedics
Tampa, FL 33612-9411
Website 813-972-2250 Children
GEORGIAGenetic Skeletal Disorders Clinic
Children's Healthcare of Atlanta - Scottish Rite Hospital
Atlanta, GA 30342
Website Orthopedics: (404) 255-1933
Genetics: (404) 785-0702
Children
HAWAIIShriners Hospitals for Children — Honolulu
Orthopaedics
Honolulu, HI 96826
Website 808-941-4466Children
ILLINOISOsteogenesis Imperfecta Clinic
Shriners Hospitals for Children — Chicago
Chicago, IL 60707
Website 773-622-5400Children
INDIANABone Dysplasia Clinic
Riley Hospital for Children at IU Health
Indianapolis, IN, 46202
Website 317-944-5000Children and Adult
LOUISIANA
Shriners Hospitals for Children — Shreveport
Orthopaedics
Shreveport, LA 71103
Website 800-830-0606Children
MASSACHUSETTSBoston Children's Hospital
Orthopedic Center
Boston, MA 02115
Website 617-355-6021
International:
+1-617-355-5209
Children and Young adult
MASSACHUSETTSMetabolic Bone Disease Clinic
Shriners Hospitals for Children — Springfield
Springfield, MA 01104
Website 413-787-2000Children
MARYLANDJohns Hopkins Pediatric Orthopaedic Surgery
Baltimore, MD
Website 443-997-2663Children
MARYLANDJohns Hopkins Bayview Metabolic Bone and Osteoporosis Center
Bayview Musculoskeletal Center
Baltimore, Maryland 21224
Website (410) 955-3663Adult
MARYLANDOsteogenesis Imperfecta Clinic
Kennedy Krieger Institute
Baltimore, MD 21205
Website (443) 923-2703Children
MARYLANDPediatric Longitudinal Program in OI
National Institutes of Health
Website 800-411-1222
MICHIGANDepartment of Pediatric Orthopaedic Surgery
University of Michigan C.S. Mott Children’s Hospital
Ann Arbor, MI 48109
Website 734-936-5780.Children
MINNESOTAInterdisciplinary Osteogenesis Imperfecta Clinic
Gillette Children's Specialty Healthcare
St. Paul, MN 55101
Website 651-291-2848 / 800-719-4040
Children
NEW MEXICONew Mexico Clinic Research & Osteoporosis Center - Research & Osteoporosis Center
Albuquerque, NM 87106
Website (505)-855-5525


Adults
MISSOURISkeletal Dysplasia Program
Missouri Orthopaedic Institute
Columbia, MO
Website (573)-882-2663Children
MISSOURICenter for Metabolic Bone Disease and Molecular Research
Shriners Hospital for Children-St. Louis
St. Louis, MO 63110
Website 314-432-3600Children (up to age 21)
MISSOURIKidney Center Bone and Mineral Disorder Clinic (Nephrology)
Children's Mercy Kansas City
Kansas City, MO 64108
Website (816) 234-3030Children
NEBRASKAMetabolic Bone & Osteogenesis Imperfecta Clinic
Children's Hospital & Medical Center Omaha
Omaha, NE 68114
Website (402)-955-4199 Children
NEW YORKThe Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias
Hospital for Special Surgery
New York, NY 10021
Website (212)-774-7332Children & Adults
NEW YORKPediatric Bone Health Program/Metabolic Bone Disease Clinic
Golisano Children's Hospital
Rochester, NY 14642
Website(585) 275-2901Children-Pediatric Bone Health Program- Golisano Children's Hospital
NEW YORKClinic for Pediatric Bone Health
Hassenfeld Children’s Hospital at NYU Langone
New York, NY 10016
Website (212)-263-5940Children
NORTH CAROLINAAtrium Health Levine Children’s-Children’s Specialty Center
Charlotte, NC 28203
Website (704)-381-8840Children
OHIOOsteogenesis Imperfecta Clinic
Akron Children's Hospital
Akron, Ohio 44308
Website (330)-543-0735Children & Adults
OHIOMetabolic Bone Clinic
Nationwide Children's Hospital
Columbus, OH 43205
Website (614) 722-6200Children
OHIOThe Skeletal Dysplasia Center at Cincinnati Children’s
The Connective Tissue Clinic at Cincinnati Children’s
Cincinnati Children's Hospital Medical Center
Cincinnati, OH 45229
Website 513-636-4760Skeletal Dysplasia Center-Children & Adults The Connective Tissue Clinic at Cincinnati Children’s-Children & Young Adults
OKLAHOMAMetabolic Bone Disease Clinic
OU Children's Physicians Building
Oklahoma City, OK 73104
Website 405-271-3303Children
OREGONBone and Mineral Unit
OHSU
Portland, OR 97201-3098
Website 503 494-1385Children & Adults
OREGONPediatric Genetics Program
Randall Children’s Genetics and Metabolism
Portland, OR 97227
Website 503-413-4505Children
PENNSYLVANIAShriners Hospital for Children
Orthopaedics
Philadelphia, PA 19140
Website 215-430-4000Children
PENNSYLVANIADivision of Translational Medicine and Human Genetics
Hospital of the University of Pennsylvania
Philadelphia, PA 19104
Website (800)-798-7366Children & Adults
PENNSYLVANIAShriners Hospitals for Children — Erie
Erie, PA 16505
Website 814-875-8700Children
PENNSYLVANIACenter for Bone Health
Children's Hospital of Philadelphia
Philadelphia, PA 19104-4399
Website 1-877-972-2663Children
TENNESSEEProgram for Metabolic Bone Disorders at Vanderbilt -Adult Clinic
Vanderbilt Medical Center
Nashville, TN 37232
Website (615) 936-8866 Adults
TENNESSEEMetabolic Bone Disease Clinic
Monroe Carell Jr. Childrens Hospital at Vanderbuilt
Nashville, TN 37232
Website (615) 936-8866Children
TEXASSkeletal Dysplasia Program
Texas Children's Hospital
Texas Medical Center
Website (832)-822-4298Children & Adults
TEXASShriners Hospitals for Children-Houston
Orthopaedics
Houston, Texas 77030
Website (713)-797-1616Children
TEXASOI Coordinated Care Center
Texas Scottish Rite Hospital for Children
Dallas, Texas 75219
Website (214)-224-1589Children & Adolescents
UTAHOsteogenesis Imperfecta Clinic
Shriners Hospital for Children - Salt Lake City
Salt Lake City, Utah 84103
Website (801)-536-3777Children
VIRGINIACHKD's Center for Bone Health
Children's Hospital of The King's Daughters
Norfolk, VA 23507
Website (757) 668-6640Children
WASHINGTONShriners Hospitals for Children-Spokane
Orthopaedic
Spokane, WA 99218
Website (509)-623-0431
Toll-free: (888)-895-5951
Children up to age 18
WASHINGTONSkeletal Health Program
Seattle Children's Hospital Main Campus
Seattle, WA
Website (206)-987-2000
(866)-987-2000 (toll-free)
(206)-987-0391 (TTY)Orthopedics
Children & Adults
WASHINGTONGenetic Medicine Clinic
Center on Human Development and Disability Center
Seattle, WA 98195
Website (206)-598-4030Adults
WISCONSINPediatric Bone and Mineral Metabolism Clinic
American Family Children's Hospital
American Family Children's Hospital
Madison, WI 53792
Website (608)263-6428Children
CANADAThe Bone Health Clinic
The Hospital for Sick Children
Toronto, ON M5G 1X8, Canada
Website 416-813-7654 ext. 201768Children
CANADAMetabolic and brittle bone disease
Shriners Hospital for Children
Montreal, Quebec
Website 514-282-6971 Children