Welcome to the 2019 OIF Clinic Directory! The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.
All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs
| State: | Hospital Name: | Clinic Name: | Clinic Director: | Clinic Hours/ Phone Number: | OI Patients Seen Last Year: | Services: |
|---|---|---|---|---|---|---|
| AL | University of Alabama Hospital - Kaul Human Genetics Building 720 20th St. South Birmingham, AL 35294 | Bone Dysplasia and Connective Tissue Disorders Clinic | Maria Descartes, MD | (205) 934-4983 | Unknown | Children & Adults |
| AZ | Childrens Clinics - 2600 N. Wyatt Drive Tucson, AZ 85712 | Childrens Clinic for Rehabilitative Services (CCRS) | Debra Walter, MD | (520) 324-5437 | 15 | Children to age 0-99 |
| AZ | Phoenix Children's Hospital - 1919 E. Thomas Rd. Phoenix, AZ 85016 | Multidisciplinary Skeletal Dysplasia and Bone Health Clinic | Mohan Belthur, MD | (602) 933-3033 | 150 | Children to age 21 |
| CA | UCLA School of Medicine - 10833 LeConte Ave Los Angeles, CA 90095 | Bone and Mineral Clinic | Isidro Salusky, MD | Second Tuesday of each month: 9-12 Forth Monday of each month: 9-12 (310) 206- 0799 | 30 | Children and adults |
| CA | Kaiser Permanente - 275 W. MacArthur Blvd. Oakland, CA 94611 | Skeletal Dysplasia Clinic | Billur Moghaddam, MD | (916) 614-5177 | 14 | Children and adults (Kaiser Health Plan Insurance Only) |
| CA | Shriners for Children Medical Center - 909 S Fair Oaks Ave Pasadena, CA 91105 | Osteogenesis Imperfecta Clinic | Manu S. Raam, MD | (626) 389-9300 | 200 | Children to age 18 |
| CA | Shriners Hospital for Children - 2425 Stockton Blvd. Sacramento, CA 95815 | General Orthopedic Program | Debra Templeton, MD Holly Leshikar, MD | Information:, (916) 453-2000 Ext. 5010 Appointments: (916) 453-2180 | 40 | Children to age 18 |
| CA | Valley Childrens Hospital - 9300 Valley Childrens Place Madera, CA 93636 | Medical Genetics/Metabolism | Susan Winter, M.D. | (559) 353-6400 | 59 | Children & Adults |
| CA | Stanford Childrens Health - 1195 West Fremont Ave. Sunnyvale, CA 94087 | Bone Health Program | Laura Bachrach, MD Monica Grover, MBBS | (650) 721-1811 | ~40 | Children to age 21 |
| CO | Childrens Hospital Colorado - 13123 East 16th Avenue Aurora, CO 80045 | General Orthopedics Program | Ellen Elias, MD | Clinics are on the 3rd Friday of each month. 1:00pm- 5:00pm (720) 777-2610 | 35 | Children to age 21 |
| CT | Connecticut Childrens Medical Center - 505 Farmington Ave, Suite 200, Farmington, CT 06032 AND 85 Seymour St. 8th Floor, Suite 805 Hartford, CT 06106 | OI Center | Emily Germain-Lee, MD Nancy Dunbar, MD | Appointments & Information: (860) 837-6719 Contact for Research Studies: (860) 837-6763 | 85 | Birth to age 90 |
| DC | Childrens National Health System - 111 Michigan Ave. NW Washington, DC 20010 | Division of Orthopaedics and Sports Medicine | Laura L. Tosi, MD | Bone Health Appointments: (202) 476-2112 For questions regarding infusions, please contact: Mirini Kim NP (202) 476-6476 | 78 | Children and Young Adults, Individuals any age can enroll in the OI Longitudinal Study |
| DC | Childrens National Health System - 111 Michigan Ave. NW Washington, DC 20010 | Division of Genetics and Metabolism | Kenneth N. Rosenbaum, M.D | (202) 476-2187 | Unknown | Children and Adults |
| DE | A.I. DuPont Hospital for Children - 1600 Rockland Road Wilmington, DE 19803 | Osteogenesis Imperfecta (OI) Program | Richard W. Kruse, DO, MBA Michael Bober, MD, Ph.D. | Mary Ellen Little, BSN, RN Nurse Navigator: (302) 651-5833 | 150 | Prenatal 35 years of age |
| FL | Shriners Hospital for Children - 12502 USF Pine Drive Tampa, FL 33612 | General Orthopedic Program | Maureen Maciel, MD Danielle Gomez, MD | New patient registration: (813) 972-2250, Ext. 7740 Existing patients: (813) 975-7106 Information on OI: (813) 972-2250, Ext. 7540 | ~ 80 | Children to age 18 |
| GA | Childrens Healthcare of Atlanta at Scottish Rite - 5455 Meridian Mark Rd. NE Suite 200 Atlanta, GA 30342 | Genetic Skeletal Disorders Clinic | Jill Flanagan, MD William Wilcox, MD, Ph.D. (co-directors) | Orthopedics: (404) 255-1933 Genetics: (404) 785-0702 | ~100 | Children to age 18 |
| HI | Shriners Hospital for Children- Honolulu - 1310 Punahou Street Honolulu, HI 96826 | General Orthopedic Program | Craig Ono, MD | 8:00am 4:00pm (808) 941-4466 | 30 | Children to age 18 |
| IL | Shriners Hospital for Children- Chicago - 2211 N. Oak Park Ave. Chicago, IL 60707-3392 | Osteogenesis Imperfecta Clinic | Peter Smith, MD | (773) 385-5579 | 150 | Children to age 19 |
| IN | Riley Hospital- Indiana University - 975 W. Walnut St. Indianapolis, IN 46202 | Division of Clinical Genetics & Metabolism, Bone Dysplasia Clinic | Bryan Hainline, MD | By referral only: (317) 948- 0698 | 22 | Children & Adults |
| LA | Shriners Hospital for Children - 3100 Samford Ave. Shreveport, LA 71103 | General Orthopedic Program | Cary Mielke, MD | Appointments: (800) 830-0606 Information: (318) 226-4296 | 15 | Services: Children to age 18 |
| MA | Childrens Hospital Boston - 300 Longwood Ave. Boston, MA 02115 | Orthopedic Clinic | Samantha Spencer, MD | (617) 355-6808 | 100 | Children & Adults to age 35 |
| MA | Shriners Hospital for Children - 516 Carew St. Springfield, MA 01104 | Metabolic Bone Disease Clinic | Nancy Dunbar, MD | (413) 787-2000 | 15 | Children & Adults up to age 21 |
| MD | The Kennedy Krieger Institute & Johns Hopkins Medical Center - 707 N. Broadway Baltimore, MD 21205 | Bone Center & OI Department | Mahim Jain, MD, Ph.D. | (443) 923-2685 | 300 | Children and Adults |
| MD | National Institutes of Health - 10 Center Drive Bldg. 10/Rm 10D39 Bethesda, MD 20892 | Pediatric Longitudinal Program in OI | Joan Marini, MD, Ph.D. | (301) 594- 3418 | 60 | Children accepted into clinical trial and adults being followed post clinical trial |
| MI | University of Michigan - 1540 East Hospital Drive Level 3, Reception C, Ann Arbor, MI 48109 | Osteogenesis Imperfecta Multidisciplinary Clinic | Michelle Caird, MD | 2 3 clinics/years lasting 2 days in length. (3 days if seen by Cardiology) (734) 615-3599 | 41 | Newborn to 25 |
| MN | Gillette Childrens Specialty Healthcare - 200 E. University Ave. St. Paul, MN 55101 | Multidisciplinary OI Clinic | Stephen Sundberg, MD | (651) 290-8712 | 85 | Children to age 18 |
| MN | New Mexico Clinic Research & Osteoporosis Center - 300 Oak St. NE Albuquerque, NM 87106 | Research & Osteoporosis Center | E. Michael Lewiecki, MD | (505) 855-5525 | 10 | Adults |
| MO | University of Missouri - 204 N Keen St, Ste. 102 Columbia, MO 665201 | Skeletal Dysplasia Clinic | Daniel Hoernschemeyer, MD | (572) 882-1351 | Unknown | Children to age 18 |
| MO | Shriners Hospital for Children - 4400 Clayton Avenue St. Louis, MO 63110 | OI Clinic | Michael Whyte, MD | (314) 432-3600 Ext. 1275 | 60 | Children to age 0-21 years |
| MO | Childrens Mercy Hospital and Clinics - 2401 Gillham Rd. Kansas City, MO 64108 | OI services through Childrens Mercy Kidney Center | Tarak Srivastava, MD | Appointments & Information: (816) 234-3030 | 33 | Children to age 21 |
| NE | Childrens Hospital & Medical Center - 8200 Dodge St. Omaha, NE 68114-4113 | OI Clinic | Maegen Wallace, MD | (402) 955-4199 Option 5 | 195 | Children to age 22 |
| NM | New Mexico Clinic Research & Osteoporosis Center - 300 Oak St. NE Albuquerque, NM 87106 | Research & Osteoporosis Center | E. Michael Lewiecki, MD | (505) 855-5525 | 10 | Adults |
| NY | Hospital for Special Surgery - 535 E. 70th St. New York, NY 10021 | Center for Skeletal Dysplasia & OI Clinic | Daniel Green, MD Cathleen Raggio, MD | OI Clinic: 2 Tuesdays each month. Center for Skeletal Dysplasias: Monday mornings (212) 774-7332 | Unknown | Children to age infinity |
| NY | University of Rochester Medical Center - 601 Elmwood Ave. Box 690 Rochester, NY 14642 | Division of Pediatric Endocrinology | Children: David Weber, MD P. Christopher Cook, MD Adults: Emily Carmody, MD | Children: (585) 275-7744 Adults: (585) 275-5321 | ~40 | Children and Adults |
| NY | The Laurence D. and Lori Weider Fink Childrens Ambulatory Care Center - 160 East 32nd street, L3 Medical New York, NY 10016 | Clinic for Pediatric Bone Health | Jason Klein, MD Emily Breidbart, MD | Appointments & Information: Pediatric Endocrinology - (212) 263-5940, Option 5 | 19 | Children to age 18 |
| NC | Carolinas Medical Center - 1000 Blythe Blvd. P.O. Box 32861 Charlotte, NC 28232-2861 | Childrens Specialty Center | Charles P. McKay, MD | (704) 381-8802 | 50 | Children to age 21 |
| OH | Akron Childrens Hospital - One Perkins Square Akron, OH 44308 | Osteogenesis Imperfecta Clinic | Frank Artinian II, MD William Schrader, MD | (330) 543-0735 | 30 | Children & Adults |
| OH | Nationwide Childrens Hospital - 700 Childrens Dr. Columbus, OH 43205 | Metabolic Bone Disease Clinic | John Mahan, MD | (614) 722-4363 | 110 | Children and adolescents to age 21 |
| OH | Cincinnati Childrens Medical Center - 3333 Burnet Ave., ML 4006 Cincinnati, OH 45229 | Skeletal Dysplasia & Connective Tissue Clinic | Howard Saal, MD | 513-636-4760, Option 1 | 20 | Services: All ages, children and adults |
| OK | University of Oklahoma Hospital - 1200 N. Childrens Ave, Suite 4500 Oklahoma City, OK 73014 | Metabolic Bone Disease Clinic | Sowmaya Krishana, MD, FAAP, CCD | (405) 271-6764 | Unknown | Children to age 18 Coordination of care between disciplines, Genetics, bisphosphonate infusions if indicated |
| OR | Oregon Health & Science University - 3181 S.W Sam Jackson Park Rd. Mail Code: CR113 Portland, OR 97239- 3098 | Bone and Mineral Clinic | Chaim Vanek, MD | Pediatrics: (503) 346-0640 Adults: (503) 494-3273 | 40 | Children & Adults |
| OR | Shriners Hospital for Children 3101 S.W. Sam Jackson Park Rd. Portland, OR 97239 | Skeletal Dysplasia Clinic | Dennis Roy, MD Lindsey Nicol, MD (Co-directors) | (503) 221-3422 | 60 | Children to age 18 |
| OR | Randall Childrens Hospital at Legacy Emanuel - 2801 N. Gantenbein Ave. Portland, OR 97227 | Pediatric Genetics Program | George Anadiotis, DO | (503) 413-4505 | Unknown | Birth to Adult |
| PA | Shriners Hospital for Children - 3551 N. Broad St. Philadelphia, PA 19140 | Pediatric Orthopedic | Debbie Armstrong, ACM-RN, BSN, ONC | (800) 281-4050 Ext. 4073 | Unknown | Birth to age 18 |
| PA | Hospital of the University of Pennsylvania, Philadelphia PA - 3400 Spruce St, Philadelphia, PA 19104 | Translational Medicine and Human Genetics | Staci Kallish, DO | (215) 662-4740 | ~20 | Adults, ages 16 and up |
| PA | Shriners Hospital for Children - 1645 W. 8th St. Erie, PA 16505 | Erie Ambulatory Surgery Center and Erie Outpatient Specialty Care Center | Timothy Ward, MD | (800) 873-5437 | 30 | Birth to age 18 |
| PA | Childrens Hospital of Philadelphia - 34th & Civic Center Blvd 11 Northwest Tower, Suite 30 Philadelphia, PA 19104 | Center for Bone Health | Michael A. Levine, MD, FAAP, FACP | (215) 590-3174 | 40 | Children & Adults |
| TN | Childrens Hospital at Vanderbilt - 2200 Childrens Way 6th Floor, Doctors Office Tower Nashville, TN 37232 | Pediatric Metabolic Bone Disease | Jill H. Simmons, M.D. | (615) 936-8866 or (615) 875-8065 | 75 | Children to age 19 |
| TN | Vanderbilt University Medical Center - 8210 Medical Center East, South Tower AND 1215 21st Ave South Nashville, TN 37232 | Program for Adult Metabolic Bone Disease | Kathryn Dahir, MD | (615) 343-8332 | 50 | Adults (Asteroid Study) |
| TX | Baylor College of Medicine at Texas Childrens Hospital - 6621 Fannin St. Suite 1560 Houston, TX 77030 | Skeletal Dysplasia Clinic | Brendan Lee, M.D., Ph.D. | (832) 823-4298 | 95 | Children & Adults |
| TX | Shriners Hospitals for Children-Houston - 6977 Main Street Houston, Texas 77030 | Orthopaedics | Lindsay Stephenson, MD | Elizabeth Guzman (new patient intake coordinator); (713)793-3765 Clinic Hours: 8am-5pm | 50+ | Children to age 18 |
| TX | Texas Scottish Rite Hospital for Children 2222 Welborn Street Dallas, Texas 75219 | OI Coordinated Care Center | B. Stephens Richards MD | Clinic Hours: 11-4:30 pm Appointments: 214-224-1589 | 136 | Orthopedic surgery, metabolic with genetics, developmental pediatrics, psychology, physical therapy, occupational therapy, orthotics/prosthetics, dental, and child life. |
| UT | Shriners Hospital for Children - Fairfax Road at Virginia St. Salt Lake City, Utah 84103 | OI Multidisciplinary Clinic | Nadine Ashley, BSN,RN, ACM | (801) 536-3564 Intake: (801) 536-3643 | 60 | Children to age 18 |
| VA | Childrens Hospital - of The Kings Daughters 1924 Landstown Centre Way Virginia Beach, VA 23456 | Center for Bone Health | Allison Tenfelde, MD Eric Gyuricsko, MD (Co-directors) | (757) 668-6640 | 16 | Children to age 21 |
| WA | Shriners Hospital for Children - 911 W 5th Ave Spokane, WA 99218 | Pediatric Orthopedic | Glen Baird, MD | (888) 895-5951 | 37 | Children to age 18 |
| WA | Seattle Childrens Hospital - 4800 Sand Point Way NE Seattle, WA 98105 | Skeletal Health Program | Kathryn Ness, MD Klane White, MD | Skeletal Health: (206) 987-2109 | 60 | Children & Adults |
| WA | University of Washington - 1959 NE Pacific St., Box 357720 Seattle, Washington 98195- 7720 | Genetic Medicine Clinic | Peter H. Byers, M.D. | Appointments: (206) 598-4030 | 12 | Children & Adults |
| WI | American Family Children’s Hospital 1675 Highland Ave. Madison, WI 53792 | Pediatric Bone and Mineral Metabolism Clinic | Neil Paloian, MD | 8:30am-4:30pm Appointments: Every other Friday afternoon from 12:30-3:00pm Information: 608-263-6420, option 1 | 11 | Pediatric Nephrology; Pediatric Orthopedics; Genetic |
| Ontario, Canada | Hospital for Sick Children - 555 University Avenue Toronto, Ontario M5G 1X8 | The Bone Health Clinic | Etienne Sochett, MB, Ch.B., FRCPC | (416) 813-7654 Ext. 222823 | 135 | Children to age 18 |
| Quebec, Canada | Shriners Hospital for Children - 1003 Decarie Blvd. Montreal, Quebec | OI Clinic | Francis Glorieux, OC, MD, PhD | (800) 361-7256 Ext. 8314 (from USA and elsewhere) (514) 282- 8314 (in Canada) | Unknown | Children to age 21 |
OIF National Conference
After careful consideration, the OIF’s Board of Directors and OIF Staff have postponed this summer’s OIF National Conference to JULY 8-11, 2021.
In place of the in-person OIF National Conference this year, we will host a Virtual Conference on July 10-12, 2020.
