Welcome to the 2019 OIF Clinic Directory! The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.

All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs

State:Hospital Name:Clinic Name:Clinic Director:Clinic Hours/ Phone Number:OI Patients Seen Last Year:Services:
ALUniversity of Alabama Hospital - Kaul Human Genetics Building 720 20th St. South Birmingham, AL 35294Bone Dysplasia and Connective Tissue Disorders ClinicMaria Descartes, MD(205) 934-4983UnknownChildren & Adults
AZChildren’s Clinics - 2600 N. Wyatt Drive Tucson, AZ 85712Children’s Clinic for Rehabilitative Services (CCRS)Debra Walter, MD(520) 324-543715Children to age 0-99
AZPhoenix Children's Hospital - 1919 E. Thomas Rd. Phoenix, AZ 85016Multidisciplinary Skeletal Dysplasia and Bone Health ClinicMohan Belthur, MD(602) 933-3033150Children to age 21
CAUCLA School of Medicine - 10833 LeConte Ave Los Angeles, CA 90095Bone and Mineral ClinicIsidro Salusky, MDSecond Tuesday of each month: 9-12 Forth Monday of each month: 9-12 (310) 206- 079930Children and adults
CAKaiser Permanente - 275 W. MacArthur Blvd. Oakland, CA 94611Skeletal Dysplasia ClinicBillur Moghaddam, MD(916) 614-517714Children and adults (Kaiser Health Plan Insurance Only)
CAShriners for Children Medical Center - 909 S Fair Oaks Ave Pasadena, CA 91105Osteogenesis Imperfecta ClinicManu S. Raam, MD(626) 389-9300200Children to age 18
CAShriners Hospital for Children - 2425 Stockton Blvd. Sacramento, CA 95815General Orthopedic ProgramDebra Templeton, MD Holly Leshikar, MDInformation:, (916) 453-2000 Ext. 5010 Appointments: (916) 453-218040Children to age 18
CAValley Children’s Hospital - 9300 Valley Children’s Place Madera, CA 93636Medical Genetics/MetabolismSusan Winter, M.D.(559) 353-640059Children & Adults
CAStanford Children’s Health - 1195 West Fremont Ave. Sunnyvale, CA 94087Bone Health ProgramLaura Bachrach, MD Monica Grover, MBBS(650) 721-1811~40Children to age 21
COChildren’s Hospital Colorado - 13123 East 16th Avenue Aurora, CO 80045General Orthopedics ProgramEllen Elias, MDClinics are on the 3rd Friday of each month. 1:00pm- 5:00pm (720) 777-261035Children to age 21
CTConnecticut Children’s Medical Center - 505 Farmington Ave, Suite 200, Farmington, CT 06032 AND 85 Seymour St. 8th Floor, Suite 805 Hartford, CT 06106OI CenterEmily Germain-Lee, MD Nancy Dunbar, MDAppointments & Information: (860) 837-6719 Contact for Research Studies: (860) 837-676385Birth to age 90
DCChildren’s National Health System - 111 Michigan Ave. NW Washington, DC 20010Division of Orthopaedics and Sports MedicineLaura L. Tosi, MDBone Health Appointments: (202) 476-2112 For questions regarding infusions, please contact: Mirini Kim NP (202) 476-647678Children and Young Adults, Individuals any age can enroll in the OI Longitudinal Study
DCChildren’s National Health System - 111 Michigan Ave. NW Washington, DC 20010Division of Genetics and MetabolismKenneth N. Rosenbaum, M.D(202) 476-2187UnknownChildren and Adults
DEA.I. DuPont Hospital for Children - 1600 Rockland Road Wilmington, DE 19803Osteogenesis Imperfecta (OI) ProgramRichard W. Kruse, DO, MBA Michael Bober, MD, Ph.D.Mary Ellen Little, BSN, RN – Nurse Navigator: (302) 651-5833150Prenatal – 35 years of age
FLShriners Hospital for Children - 12502 USF Pine Drive Tampa, FL 33612General Orthopedic ProgramMaureen Maciel, MD Danielle Gomez, MDNew patient registration: (813) 972-2250, Ext. 7740 Existing patients: (813) 975-7106 Information on OI: (813) 972-2250, Ext. 7540~ 80Children to age 18
GAChildren’s Healthcare of Atlanta at Scottish Rite - 5455 Meridian Mark Rd. NE Suite 200 Atlanta, GA 30342Genetic Skeletal Disorders ClinicJill Flanagan, MD William Wilcox, MD, Ph.D. (co-directors)Orthopedics: (404) 255-1933 Genetics: (404) 785-0702~100Children to age 18
HIShriners Hospital for Children- Honolulu - 1310 Punahou Street Honolulu, HI 96826General Orthopedic ProgramCraig Ono, MD8:00am – 4:00pm (808) 941-446630Children to age 18
ILShriners Hospital for Children- Chicago - 2211 N. Oak Park Ave. Chicago, IL 60707-3392Osteogenesis Imperfecta ClinicPeter Smith, MD(773) 385-5579150Children to age 19
INRiley Hospital- Indiana University - 975 W. Walnut St. Indianapolis, IN 46202Division of Clinical Genetics & Metabolism, Bone Dysplasia ClinicBryan Hainline, MDBy referral only: (317) 948- 069822Children & Adults
LAShriners Hospital for Children - 3100 Samford Ave. Shreveport, LA 71103General Orthopedic ProgramCary Mielke, MDAppointments: (800) 830-0606 Information: (318) 226-429615Services: Children to age 18
MAChildren’s Hospital Boston - 300 Longwood Ave. Boston, MA 02115Orthopedic ClinicSamantha Spencer, MD(617) 355-6808100Children & Adults to age 35
MAShriners Hospital for Children - 516 Carew St. Springfield, MA 01104Metabolic Bone Disease ClinicNancy Dunbar, MD(413) 787-200015Children & Adults up to age 21
MDThe Kennedy Krieger Institute & Johns Hopkins Medical Center - 707 N. Broadway Baltimore, MD 21205Bone Center & OI DepartmentMahim Jain, MD, Ph.D.(443) 923-2685300Children and Adults
MDNational Institutes of Health - 10 Center Drive Bldg. 10/Rm 10D39 Bethesda, MD 20892Pediatric Longitudinal Program in OIJoan Marini, MD, Ph.D.(301) 594- 341860Children accepted into clinical trial and adults being followed post clinical trial
MIUniversity of Michigan - 1540 East Hospital Drive Level 3, Reception C, Ann Arbor, MI 48109Osteogenesis Imperfecta Multidisciplinary ClinicMichelle Caird, MD2 – 3 clinics/years lasting 2 days in length. (3 days if seen by Cardiology) (734) 615-359941Newborn to 25
MNGillette Children’s Specialty Healthcare - 200 E. University Ave. St. Paul, MN 55101Multidisciplinary OI ClinicStephen Sundberg, MD(651) 290-871285Children to age 18
MNNew Mexico Clinic Research & Osteoporosis Center - 300 Oak St. NE Albuquerque, NM 87106Research & Osteoporosis CenterE. Michael Lewiecki, MD(505) 855-552510Adults
MOUniversity of Missouri - 204 N Keen St, Ste. 102 Columbia, MO 665201Skeletal Dysplasia ClinicDaniel Hoernschemeyer, MD(572) 882-1351UnknownChildren to age 18
MOShriners Hospital for Children - 4400 Clayton Avenue St. Louis, MO 63110OI ClinicMichael Whyte, MD(314) 432-3600 Ext. 127560Children to age 0-21 years
MOChildren’s Mercy Hospital and Clinics - 2401 Gillham Rd. Kansas City, MO 64108OI services through Children’s Mercy Kidney CenterTarak Srivastava, MDAppointments & Information: (816) 234-303033Children to age 21
NEChildren’s Hospital & Medical Center - 8200 Dodge St. Omaha, NE 68114-4113OI ClinicMaegen Wallace, MD(402) 955-4199 Option 5195Children to age 22
NMNew Mexico Clinic Research & Osteoporosis Center - 300 Oak St. NE Albuquerque, NM 87106Research & Osteoporosis CenterE. Michael Lewiecki, MD(505) 855-552510Adults
NYHospital for Special Surgery - 535 E. 70th St. New York, NY 10021Center for Skeletal Dysplasia & OI ClinicDaniel Green, MD Cathleen Raggio, MDOI Clinic: 2 Tuesdays each month. Center for Skeletal Dysplasias: Monday mornings (212) 774-7332UnknownChildren to age infinity
NYUniversity of Rochester Medical Center - 601 Elmwood Ave. Box 690 Rochester, NY 14642Division of Pediatric EndocrinologyChildren: David Weber, MD P. Christopher Cook, MD Adults: Emily Carmody, MDChildren: (585) 275-7744 Adults: (585) 275-5321~40Children and Adults
NYThe Laurence D. and Lori Weider Fink Children’s Ambulatory Care Center - 160 East 32nd street, L3 Medical New York, NY 10016Clinic for Pediatric Bone HealthJason Klein, MD Emily Breidbart, MDAppointments & Information: Pediatric Endocrinology - (212) 263-5940, Option 519Children to age 18
NCCarolinas Medical Center - 1000 Blythe Blvd. P.O. Box 32861 Charlotte, NC 28232-2861Children’s Specialty CenterCharles P. McKay, MD(704) 381-880250Children to age 21
OHAkron Children’s Hospital - One Perkins Square Akron, OH 44308Osteogenesis Imperfecta ClinicFrank Artinian II, MD William Schrader, MD(330) 543-073530Children & Adults
OHNationwide Children’s Hospital - 700 Children’s Dr. Columbus, OH 43205Metabolic Bone Disease ClinicJohn Mahan, MD(614) 722-4363110Children and adolescents to age 21
OHCincinnati Children’s Medical Center - 3333 Burnet Ave., ML 4006 Cincinnati, OH 45229Skeletal Dysplasia & Connective Tissue ClinicHoward Saal, MD513-636-4760, Option 120Services: All ages, children and adults
OKUniversity of Oklahoma Hospital - 1200 N. Children’s Ave, Suite 4500 Oklahoma City, OK 73014Metabolic Bone Disease ClinicSowmaya Krishana, MD, FAAP, CCD(405) 271-6764UnknownChildren to age 18 Coordination of care between disciplines, Genetics, bisphosphonate infusions if indicated
OROregon Health & Science University - 3181 S.W Sam Jackson Park Rd. Mail Code: CR113 Portland, OR 97239- 3098Bone and Mineral ClinicChaim Vanek, MDPediatrics: (503) 346-0640 Adults: (503) 494-327340Children & Adults
ORShriners Hospital for Children 3101 S.W. Sam Jackson Park Rd. Portland, OR 97239Skeletal Dysplasia ClinicDennis Roy, MD Lindsey Nicol, MD (Co-directors)(503) 221-342260Children to age 18
ORRandall Children’s Hospital at Legacy Emanuel - 2801 N. Gantenbein Ave. Portland, OR 97227Pediatric Genetics ProgramGeorge Anadiotis, DO(503) 413-4505UnknownBirth to Adult
PAShriners Hospital for Children - 3551 N. Broad St. Philadelphia, PA 19140Pediatric OrthopedicDebbie Armstrong, ACM-RN, BSN, ONC(800) 281-4050 Ext. 4073UnknownBirth to age 18
PAHospital of the University of Pennsylvania, Philadelphia PA - 3400 Spruce St, Philadelphia, PA 19104Translational Medicine and Human GeneticsStaci Kallish, DO(215) 662-4740~20Adults, ages 16 and up
PAShriners Hospital for Children - 1645 W. 8th St. Erie, PA 16505Erie Ambulatory Surgery Center and Erie Outpatient Specialty Care CenterTimothy Ward, MD(800) 873-543730Birth to age 18
PAChildren’s Hospital of Philadelphia - 34th & Civic Center Blvd 11 Northwest Tower, Suite 30 Philadelphia, PA 19104Center for Bone HealthMichael A. Levine, MD, FAAP, FACP(215) 590-317440Children & Adults
TNChildren’s Hospital at Vanderbilt - 2200 Children’s Way 6th Floor, Doctor’s Office Tower Nashville, TN 37232Pediatric Metabolic Bone DiseaseJill H. Simmons, M.D.(615) 936-8866 or (615) 875-806575Children to age 19
TNVanderbilt University Medical Center - 8210 Medical Center East, South Tower AND 1215 21st Ave South Nashville, TN 37232Program for Adult Metabolic Bone DiseaseKathryn Dahir, MD(615) 343-833250Adults (Asteroid Study)
TXBaylor College of Medicine at Texas Children’s Hospital - 6621 Fannin St. Suite 1560 Houston, TX 77030Skeletal Dysplasia ClinicBrendan Lee, M.D., Ph.D.(832) 823-429895Children & Adults
TXShriners Hospitals for Children-Houston - 6977 Main Street Houston, Texas 77030OrthopaedicsLindsay Stephenson, MDElizabeth Guzman (new patient intake coordinator); (713)793-3765 Clinic Hours: 8am-5pm50+Children to age 18
TXTexas Scottish Rite Hospital for Children
2222 Welborn Street
Dallas, Texas 75219
OI Coordinated Care CenterB. Stephens Richards MDClinic Hours: 11-4:30 pm
Appointments: 214-224-1589
136Orthopedic surgery, metabolic with genetics, developmental pediatrics, psychology, physical therapy, occupational therapy, orthotics/prosthetics, dental, and child life.
UTShriners Hospital for Children - Fairfax Road at Virginia St. Salt Lake City, Utah 84103OI Multidisciplinary ClinicNadine Ashley, BSN,RN, ACM(801) 536-3564 Intake: (801) 536-364360Children to age 18
VAChildren’s Hospital - of The King’s Daughters 1924 Landstown Centre Way Virginia Beach, VA 23456Center for Bone HealthAllison Tenfelde, MD Eric Gyuricsko, MD (Co-directors)(757) 668-664016Children to age 21
WAShriners Hospital for Children - 911 W 5th Ave Spokane, WA 99218Pediatric OrthopedicGlen Baird, MD(888) 895-595137Children to age 18
WASeattle Children’s Hospital - 4800 Sand Point Way NE Seattle, WA 98105Skeletal Health ProgramKathryn Ness, MD Klane White, MDSkeletal Health: (206) 987-210960Children & Adults
WAUniversity of Washington - 1959 NE Pacific St., Box 357720 Seattle, Washington 98195- 7720Genetic Medicine ClinicPeter H. Byers, M.D.Appointments: (206) 598-403012Children & Adults
WIAmerican Family Children’s Hospital
1675 Highland Ave.
Madison, WI 53792
Pediatric Bone and Mineral Metabolism ClinicNeil Paloian, MD8:30am-4:30pm
Appointments: Every other Friday afternoon from 12:30-3:00pm
Information: 608-263-6420, option 1
11Pediatric Nephrology; Pediatric Orthopedics; Genetic
Ontario, CanadaHospital for Sick Children - 555 University Avenue Toronto, Ontario M5G 1X8The Bone Health ClinicEtienne Sochett, MB, Ch.B., FRCPC(416) 813-7654 Ext. 222823135Children to age 18
Quebec, CanadaShriners Hospital for Children - 1003 Decarie Blvd. Montreal, QuebecOI ClinicFrancis Glorieux, OC, MD, PhD(800) 361-7256 Ext. 8314 (from USA and elsewhere) (514) 282- 8314 (in Canada)UnknownChildren to age 21