Welcome to the OI Clinic Directory! The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.

All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs

STATECLINIC WebsitePhone NumberServices (Children or Adult)
ALABAMAMetabolic Bone Clinic
Children’s of Alabama
Birmingham, AL 35233
Website 205-638-5025 (Dr. McCormick)
205-638-5027 (Dr. Ashraf)
Children’s Clinics Comprehensive Care for Kids &Teens
Tucson, AZ 85712
Website 520.324-KIDS (5437)
Toll Free: 1-800-231-8261 ext. 45437
Children & Young Adults
ARIZONASkeletal Dysplasia & Bone Health Clinic
Phoenix Children's Hospital
Phoenix, Arizona 85016
Website 602-933-1000Children to age 21
CALIFORNIAChildren's Hospital Los Angeles (CHLA) Pediatric Metabolic Bone Disorders ClinicWebsite 323-361-4606Infants, Children, Adolescents
CALIFORNIAOsteogenesis Imperfecta Clinic
CHOC Hospital
1201 W. LaVeta
Orange, CA 92868
Website 714-997-3000Pediatrics, up to age 21
CALIFORNIAPediatric Bone Disorders Program
Mattel Childrens Hospital UCLA Witherbee Foundation
Children’s Health Center
Los Angeles, CA 90095
Website (310) 206-6987Pediatric services
CALIFORNIAShriners for Children Medical Center
Pasadena, CA 91105
CALIFORNIAShriners Hospitals for Children — Northern California
Sacramento, CA 95817
Website 916-453-2191Children
CALIFORNIAThe Kaiser Regional Skeletal Dysplasia Program
Oakland, CA 94611
Website 510-752-5101Children and adults (Kaiser Health Plan Insurance Only)
CALIFORNIAStanford Childrens Health/Lucille Packard Children’s Hospital Stanford - Bone Health
P alo Alto, CA 94304
Website (650) 721-1811Pediatric services
CALIFORNIATijuana Ambulatory Clinic
22010 Tijuana, B.C.
Website 664-977-2500Up to Age 18
CALIFORNIAUCSF (University of California San Francisco) Metabolic Bone ClinicWebsite (415) 353-2350
CALIFORNIAGenetic Medicine and Metabolism (Multidisciplinary Services-Orthopaedics)
Valley Children’s Healthcare
Madera, CA 93636-8762
Website 559-353-3000Children
COLORADOThe General Orthopedics Program
Orthopedics Institute at Children's Hospital Colorado
Aurora, CO 80045
Website 720-777-6600Children, adolescents, and young adults
Connecticut Children’s Center for Rare Bone Disorders (Center for Osteogenesis Imperfecta)
Connecticut Children’s Diabetes & Endocrinology
Farmington, CT 06032
Website (860)837-6700All Ages
WASHINGTON, DCChildrens National Bone Health Program
Rare Disease Institute Genetics and Metabolism
Skeletal Dysplasia Clinic
Children's National-Main Hospital
Washington, DC 20010
Website 202-476-2112
Rare Disease Institute Genetics and Metabolism-Children and Adults
DELAWARE Osteogenesis Imperfecta (OI) Program
Nemours/Alfred I. duPont Hospital for Children
Wilmington, DE 19803
Website (302) 651-4111 Prenatal - 35 years of age
FLORIDAOsteogenesis Imperfecta Program
Nemours Children’s Hospital
Orlando, FL, 32827
Website 407-650-77150-18 years old
GEORGIAOI Clinic at Children’s Healthcare of Atlanta
Atlanta, GA
Website 404-785-5438
Email: OIclinic@choa.org
Children up to age 21
HAWAIIShriners Hospitals for Children — Honolulu
Honolulu, HI 96826
Website 808-941-4466Children
ILLINOISOsteogenesis Imperfecta Clinic
Shriners Hospitals for Children — Chicago
Chicago, IL 60707
Website 773-622-5400Children
INDIANABone Dysplasia Clinic
Riley Hospital for Children at IU Health
Indianapolis, IN, 46202
Website 317-944-5000Children & Adults
Shriners Hospitals for Children — Shreveport
Shreveport, LA 71103
Website 800-830-0606Children
MASSACHUSETTSBoston Children's Hospital
Orthopedic Center
Boston, MA 02115
Website 617-355-6021
Children & Young Adult
MASSACHUSETTSMetabolic Bone Disease Clinic
Shriners Hospitals for Children — Springfield
Springfield, MA 01104
Website 413-787-2000Children
MARYLANDJohns Hopkins Pediatric Orthopaedic Surgery
Baltimore, MD
Website 443-997-2663Children
MARYLANDJohns Hopkins Bayview Metabolic Bone and Osteoporosis Center
Bayview Musculoskeletal Center
Baltimore, Maryland 21224
Website (410) 955-3663Adult
MARYLANDOsteogenesis Imperfecta Clinic
Kennedy Krieger Institute
Baltimore, MD 21205
Website (443) 923-2703Children & Adults
MARYLANDPediatric Longitudinal Program in OI
National Institutes of Health
Website 800-411-1222
MICHIGANDepartment of Pediatric Orthopaedic Surgery
University of Michigan C.S. Mott Children’s Hospital
Ann Arbor, MI 48109
Website 734-936-5780.Children
MINNESOTAInterdisciplinary Osteogenesis Imperfecta Clinic
Gillette Children's Specialty Healthcare
St. Paul, MN 55101
Website 651-291-2848 / 800-719-4040
MISSOURISkeletal Dysplasia Program
Missouri Orthopaedic Institute
Columbia, MO
Website (573)-882-2663Children
MISSOURIHospital St Louis Children’s Hospital for Kids
Barnes Jewish Christian Hospital for Adults
St. Louis, MO 63110
Website 314-454-6093Children and Adults
MISSOURIKidney Center Bone and Mineral Disorder Clinic (Nephrology)
Children's Mercy Kansas City
Kansas City, MO 64108
Website (816) 234-3030Children
MISSOURIHospital St Louis Childrens Hospital for Kids and Barnes Jewish Christian Hospital for adults
1 Childrens Place, St Louis, MO 63110
Website (314) 454-6093Children & Adults
NEBRASKAOsteogenesis Imperfecta Clinic at Children's Nebraska
Omaha, NE 68114
Website 402-955-6300Children
NEBRASKAUniversity of Nebraska Medical Center Diabetes ClinicWebsite 402-559-8700Adult OI care
NEW MEXICONew Mexico Clinic Research & Osteoporosis Center - Research & Osteoporosis Center
Albuquerque, NM 87106
Website (505)-855-5525

NEW YORKThe Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias
Hospital for Special Surgery
New York, NY 10021
Website (212)-774-7332Children & Adults
NEW YORKOI Clinic – Lerner Children’s Pavilion
Hospital for Special Surgery
Dr. Daniel Green
New York, NY 10021
Website 212-606-1267Pediatric & Adults
NEW YORKPediatric Bone Health Program/Metabolic Bone Disease Clinic
Golisano Children's Hospital
Rochester, NY 14642
Website(585) 275-2901Children-Pediatric
NEW YORKClinic for Pediatric Bone Health
Hassenfeld Children’s Hospital at NYU Langone
New York, NY 10016
Website (212)-263-5940Children
NORTH CAROLINAAtrium Health Levine Children’s-Children’s Specialty Center
Charlotte, NC 28203
Website (704)-381-8840Children
OHIOOsteogenesis Imperfecta Clinic
Akron Children's Hospital
Akron, Ohio 44308
Website (330)-543-0735Children & Adults
OHIOMetabolic Bone Clinic
Nationwide Children's Hospital
Columbus, OH 43205
Website (614) 722-6200Children
OHIOThe Skeletal Dysplasia Center at Cincinnati Children’s
The Connective Tissue Clinic at Cincinnati Children’s
Cincinnati Children's Hospital Medical Center
Cincinnati, OH 45229
Website 513-636-4760Children & Adults
OKLAHOMAMetabolic Bone Disease Clinic
OU Children's Physicians Building
Oklahoma City, OK 73104
Website 405-271-3303Children
OREGONShriners Hospitals for Children – PortlandWebsite 503-221-3422Children
OREGONBone and Mineral Unit
Portland, OR 97201-3098
Website 503 494-1385Children & Adults
OREGONPediatric Genetics Program
Randall Children’s Genetics and Metabolism
Portland, OR 97227
Website 503-413-4505Children
PENNSYLVANIAShriners Hospital for Children
Philadelphia, PA 19140
Website 215-430-4000Children
PENNSYLVANIADivision of Translational Medicine and Human Genetics
Hospital of the University of Pennsylvania
Philadelphia, PA 19104
Website (800)-798-7366Children & Adults
PENNSYLVANIACenter for Bone Health
Children's Hospital of Philadelphia
Philadelphia, PA 19104-4399
Website 1-877-972-2663Children
TENNESSEEProgram for Metabolic Bone Disorders at Vanderbilt -Adult Clinic
Vanderbilt Medical Center
Nashville, TN 37232
Website (615) 936-8866 Adults
TENNESSEEMetabolic Bone Disease Clinic
Monroe Carell Jr. Childrens Hospital at Vanderbuilt
Nashville, TN 37232
Website (615) 936-8866Children
TEXASSkeletal Dysplasia Program
Texas Children's Hospital
Texas Medical Center
Website (832)-822-4298Children & Adults
TEXASAdult Genetics Clinic
Baylor Medicine
Website 713–798–7820Adults
TEXASOI Coordinated Care Center
Texas Scottish Rite Hospital for Children
Dallas, Texas 75219
Website (214)-224-1589Children & Adolescents
TEXAS OI Clinic - Baylor College of Medicine at Christus Children's
San Antonio, TX 78207
Website 210-704-3611Children up to age 18
UTAHOsteogenesis Imperfecta Clinic
Shriners Hospital for Children - Salt Lake City
Salt Lake City, Utah 84103
Website (801)-536-3777Children
VIRGINIACHKD's Center for Bone Health
Children's Hospital of The King's Daughters
Norfolk, VA 23507
Website (757) 668-6640Children
WASHINGTONShriners Hospitals for Children-Spokane
Spokane, WA 99218
Website (509)-623-0431
Toll-free: (888)-895-5951
Children up to age 18
WASHINGTONSkeletal Health Program
Seattle Children's Hospital Main Campus
Seattle, WA
Website (206)-987-2000
(866)-987-2000 (toll-free)
(206)-987-0391 (TTY)Orthopedics
Children & Adults
WASHINGTONGenetic Medicine Clinic
Center on Human Development and Disability Center
Seattle, WA 98195
Website (206)-598-4030Adults
WISCONSINPediatric Bone and Mineral Metabolism Clinic
American Family Children's Hospital
Madison, WI 53792
Website (608)263-6428Children
CANADAThe Bone Health Clinic
The Hospital for Sick Children
Toronto, ON M5G 1X8, Canada
Website 416-813-7654 ext. 201768Children
CANADAMetabolic and brittle bone disease
Shriners Hospital for Children
Montreal, Quebec
Website 514-282-6971 Children


Physician Directory
The OIF Information Center also maintains a list of medical professionals (ie. general physician, dentist, specialist) who have experience treating patients with osteogenesis imperfecta (OI). To locate care in your area, please email bonelink@oif.org.