OI Informational Factsheets
The OI Foundation has published fact sheets on many topics related to understanding and living with OI.
Check out our NEW resources!
Navigating a New Diagnosis: A Tool Kit for Parents and Medical Professionals
What You Need To Know About Clinical Trials
Qu’est-ce que l’ostéogenèse imparfaite?
About OI
Adults: Take Charge of Your Health Tool Kit
- Take Charge of Your Health
- Take Charge of Your Breathing
- Take Charge Before Surgery
- Pneumonia Vaccine Update
- Poster: Handle with Care. Adults
- Take Charge of Your Health Pocket Guide
- Know Your OI: A Basic Health History
- A recommendation from OI experts- treating the adult with OI
- Moving from Pediatric to Adult Care
- Care for the Adult Patient with OI
- Chart: OI and Common Medical Tests and Procedures
- Maintaining Health
- Adults & Fracture Care
- Osteoporosis
- Transition from Pediatric to Adult Care
Babies and OI
- Pregnancy: Women who have OI
- Pregnancy: Expecting a Child with OI
- Height and Weight Charts for the Child with OI Type III and IV
- Infant Care Suggestions for Parents
- Navigating a New Diagnosis: A Tool Kit for Parents and Medical Professionals
- Cómo abordar un nuevo diagnóstico
- Treatment Concerns for Children with OI
- Research Article: Cross-Sectional and Longitudinal Growth Patterns In Osteogenesis Imperfecta: Implications For Clinical Care
- Research Article: Longitudinal Growth Curves for Children With Classical Osteogenesis Imperfecta (Types III and IV) Caused By Structural Pathogenic Variants In Type I Collagen
Bone
Care/Treatments
Doctors and Hospitals
Education
Families
Health Issues
Surgery
OIF Video Resources
The OIF’s YouTube channel features videos created for OI community members and medical professionals including podcast episodes, COVID-19 community calls, Virtual Conference Sessions, research updates, stories from OI community members, and more!
