OI TeleECHO Clinic Series

The Osteogenesis Imperfecta Foundation is excited to announce the return of the OI TeleECHO Clinic Series. The goal of this educational program is to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta. The goal of this educational program, a partnership with Project ECHO™ (Extension for Community Healthcare Outcomes), is to build capacity to safely and effectively diagnose and treat osteogenesis imperfecta (OI).

The full schedule with links to register for specific session topics is listed below. Participants can also sign up to receive program reminders and updates here.

This series uses Zoom videoconferencing, and will take place on the second Wednesday of every other month at 3pm EST. In each session, faculty members or guest speakers will present a brief didactic presentation, followed by participant-led case presentations and group discussion of the presented cases. The faculty encourages participants to present case studies related to osteogenesis imperfecta at each session. Recordings of each didactic presentation are posted after each session.

The interdisciplinary faculty of the OI ECHO includes:

Jeanne M. Franzone, MD (Chair)
Pediatric Orthopaedic Surgeon
Nemours/A.I. duPont Hospital for Children – Wilmington, DE

Frank Rauch, MD
Shriners Hospital for Children – Canada
Professor of Pediatrics, McGill University Montreal, Qc, Canada

Sandesh C.S. Nagamani, MD
Associate Professor, Department of Molecular and Human Genetics and Internal
Medicine, Baylor College of Medicine, Houston, TX

CME Accreditation Statement
In support of improving patient care, Project ECHO® is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.

Project ECHO® designates this live activity for a maximum of 1.0 AMA PRA Category 1 CreditsTM. Physicians should claim only the credit commensurate with the extent of their participation in the activity.

PROGRAM SCHEDULE
The program schedule below includes recordings of past didactic presentations and links to register for individual sessions of the Osteogenesis Imperfecta ECHO program.

01/10/2024 Recording: Research Updates from the Brittle Bone Disorders Consortium
Sandesh C.S. Nagamani, MD – Associate Professor, Department of Molecular and Human Genetics
and Internal Medicine, Baylor College of Medicine, Houston, TX
02/14/2024 Growth in Children with Osteogenesis Imperfecta
Frank Rauch, MD – Shriners Hospital for Children – Canada, Professor of Pediatrics, McGill University, Montreal, QC
04/10/2024 Prenatal Diagnosis and NICU Care of Children with OI
Michael Bober, MD – Tyra Bioscience
06/12/2024 Assessing/Quantifying Pain’s Impact on Quality of Life in Children with OI
Mercedes Rodriguez Celin, MD – Shriners Hospital for Children, Chicago
08/14/2024 Transition from Pediatric to Adult Care for Patients with OI
Laura Tosi, MD – Children’s National Hospital
10/09/2024 Medical Management of Bone Fragility in Adults with OI
Eric Orwoll, MD – OHSU
12/11/2024 Assessing and Quantifying Pain’s Impact on Quality of Life in Adults with OI
Lena Lande Wekre, PhD – TRS National Resource Centre for Rare Disorders Sunnas Rehabilitation Hospital
02/12/2025 Details coming soon
04/09/2025 Details coming soon
06/11/2025 Details coming soon
08/13/2025 Details coming soon
10/8/2025 Details coming soon

 

To receive reminders and updates on all upcoming OI TeleECHO sessions, please complete the following form. If you have any questions, please contact Melissa Bonardi at mbonardi@oif.org

Past OI ECHO session recordings will be posted here.