OIF News
OI Awareness Week Social Media Toolkit
National Osteogenesis Imperfecta Awareness Week is May 2-9, 2026! One of the most effective (and free!) ways to raise awareness during National OI Awareness...
OIF E-News: April 2026
The April issue of the OIF E-Newsletter is here! Read about the National OI Awareness Week, upcoming events, OI research news, and more at...
OIF E-News: March 2026
The March issue of the OIF E-Newsletter is here! Read about the new OIF membership, Conference and college scholarship opportunities, upcoming events, OI research...
Become a Member
Dear Friend, Greetings! As we look back, 2025 was a wonderful year for the OI Foundation. While celebrating our 55th Anniversary, we continued to...
Proclaim National OI Awareness Week 2026 in your State!
We need YOUR help to proclaim National OI Awareness Week (May 2-9, 2026) in every state! To request a proclamation in your state, follow...
OI Community Call Series: Preparing for OIF National Conference
Leading up to OIF National Conference, the OI Foundation will host Zoom calls for OI community members which will be an overview of the...
OIF E-Newsletter: February 2026
The February issue of the OIF E-Newsletter is here! Read about the Impact Grant and Scholarship Opportunities, upcoming events, OI research news, and more...
Recording: OIF Community Call – School-Aged Toolkit
During this call, the OIF introduced and reviewed the Toolkit with Dr. Michelle Fynan. The OI Foundation is excited to share our newest resource,...
OIF E-Newsletter: January 2026
The January issue of the OIF E-Newsletter is here! Read about the new School-Aged Toolkit, Impact Grant and Scholarship Opportunities, upcoming events, OI research...
Important Update on the Ultragenyx Clinical Trial
You may have seen information recently on the Ultragenyx results from the Phase 3 Cosmic or Obit studies for setrusumab. Neither study achieved statistical...
OIF E-Newsletter: December 2025
The December issue of the OIF E-Newsletter is here! Read a letter from OIF CEO Tracy Hart, updates from the OI Foundation including a...
Breakthrough: Winter 2025
Have you read the latest issue of the OIF’s Breakthrough Newsletter? 2026 OIF National Conference in Orlando, FL New OIF School-Aged Toolkit A message...