OIF News
Recording: OIF Community Call – School-Aged Toolkit
During this call, the OIF introduced and reviewed the Toolkit with Dr. Michelle Fynan. The OI Foundation is excited to share our newest resource,...
OIF E-Newsletter: January 2026
The January issue of the OIF E-Newsletter is here! Read about the new School-Aged Toolkit, Impact Grant and Scholarship Opportunities, upcoming events, OI research...
Important Update on the Ultragenyx Clinical Trial
You may have seen information recently on the Ultragenyx results from the Phase 3 Cosmic or Obit studies for setrusumab. Neither study achieved statistical...
OIF E-Newsletter: December 2025
The December issue of the OIF E-Newsletter is here! Read a letter from OIF CEO Tracy Hart, updates from the OI Foundation including a...
Breakthrough: Winter 2025
Have you read the latest issue of the OIF’s Breakthrough Newsletter? 2026 OIF National Conference in Orlando, FL New OIF School-Aged Toolkit A message...
2025 Accomplishments
Dear Friend, As 2025 comes to an end, the year has proved to be one of excitement and progress for the Osteogenesis Imperfecta Foundation!...
New Resource: School-Aged Toolkit
The Osteogenesis Imperfecta Foundation is pleased to introduce the School-Aged Toolkit: Information on Caring for Children with OI Between the Ages of Three to...
Recording: BBDC Research Update
BBDC Research Update: NIH Grant Renewal and the future of OI research On Thursday, December 4, Dr. Reid Sutton, Principal Investigator and Clinical Team...
OIF E-Newsletter: November 2025
The November issue of the OIF E-Newsletter is here! Read about #GivingTuesday, upcoming OI Community Call, OI research updates, and upcoming events! Read this...
Participate in Giving Tuesday on 12/2!
Giving Tuesday is a global celebration of generosity that encourages people everywhere to give and make a positive impact. This year, Giving Tuesday will take...
Physical Therapy, Exercise, and OI Recording Now Available!
Physical Therapy, Exercise, and OI Recording Now Available! Dr. Christopher Joseph (DPT) shared his expertise and answered community questions in this virtual session. He...
OIF E-Newsletter: October 2025
The October issue of the OIF E-Newsletter is here! Read about the recent Physical Therapy, Exercise, and OI session recording, OIF Regional Conference: Portland,...