OI Clinic Directory

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    OI Clinic Directory

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    The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.

    All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs.

    Physicians Directory

    The OIF Information Center maintains a list of medical professionals (i.e. general physicians, dentists, specialists) who have experience treating patients with osteogenesis imperfecta (OI). To locate care in your area, please email bonelink@oif.org.

     

    Please note that the OIF does not have medical providers on staff. We can offer general information about OI, but we are unable to provide individualized medical advice. If you need personalized medical guidance, please email the OIF to request information about providers in your area who have experience with OI. Please do not send your personal medical records, including x-rays, to the OIF. 

    Clinic Directory

    STATECLINIC WebsitePhone NumberServices (Children or Adult)
    ALABAMAMetabolic Bone Clinic
    Children’s of Alabama
    Birmingham, AL 35233    		Website 205-638-9107 Children
    ARIZONA
    		Children’s Clinics Comprehensive Care for Kids &Teens
    Tucson, AZ 85712    		Website 520.324-KIDS (5437)
    Toll Free: 1-800-231-8261 ext. 45437    		Children & Young Adults
    ARIZONAOI Clinic
    Phoenix Children's Hospital
    Phoenix, Arizona 85016    		Website 602-933-3094 Children and Young Adults
    CALIFORNIAPediatric Metabolic Bone Disorder Clinic Children's Hospital Los Angeles (CHLA) Orange, CA 92868Website 323-361-4606Infants, Children, Adolescents
    CALIFORNIAOsteogenesis Imperfecta Clinic
    Rady Children's Health (formally CHOC)
    1201 W. LaVeta
    Orange, CA 92868    		Website 714-997-3000Pediatrics, up to age 21
    CALIFORNIA Skeletal Dysplasia Clinic
    UCLA Health
    Los Angeles, CA
    		Website 310-825-2631Children and Adults
    CALIFORNIAPediatric Bone Disorders Program
    Mattel Childrens Hospital UCLA Witherbee Foundation
    Children’s Health Center
    Los Angeles, CA 90095    		Website 310-825-0867Pediatric services
    CALIFORNIAShriners Children's Hospital - Southern California
    Pasadena, CA 91105    		Website626-389-9330
    		Children
    CALIFORNIAShriners Children's Hospital — Northern California
    Orthopaedics
    Sacramento, CA 95817    		Website 916-610-0667Children
    CALIFORNIAThe Kaiser Regional Skeletal Dysplasia Program Kaiser Permanente Genetics
    Oakland, CA 94611    		Website 510-752-5101Children and adults (Kaiser Health Plan Insurance Only)
    CALIFORNIABone Health Program Stanford Medicine Children's Hospital
    Palo Alto, CA 94304    		Website 650-721-1811Pediatric services
    CALIFORNIAUCSF (University of California San Francisco) Metabolic Bone Clinic San Francisco, CA 94143Website 415-353-2350
    CALIFORNIAGenetic Medicine and Metabolism
    Valley Children’s Healthcare
    Madera, CA 93636-8762    		Website 559-353-3000Children
    CALIFORNIAMetabolic Bone Clinic
    Cedars-Sinai
    Los Angeles, CA 90048    		Website 301-423-3870Age 2 and older
    COLORADOSkeletal Dysplasia Program Children's Hospital Colorado
    Aurora, CO 80045    		Website 720-777-6875 Email: bones@childrenscolorado.org Children, adolescents, and young adults
    CONNECTICUT
    		Connecticut Children’s Center for Rare Bone Disorders (Center for Osteogenesis Imperfecta) Connecticut Children’s Diabetes & Endocrinology
    Farmington, CT 06032    		Website 860-837-6700All Ages
    WASHINGTON, DCChildrens National Bone Health Program
    Rare Disease Institute Genetics and Metabolism
    Skeletal Dysplasia Clinic
    Children's National-Main Hospital
    Washington, DC 20010    		Website Bone Health Program: 202-476-2112 Rare Disease Institute: 202-545-2500 Skeletal Dysplasia Clinic: 202-476-2187 Rare Disease Institute Genetics and Metabolism-Children and Adults
    DELAWARE Osteogenesis Imperfecta (OI) Program
    Nemours/Alfred I. duPont Hospital for Children
    Wilmington, DE 19803    		Website 800-416-4441Prenatal - 35 years of age
    FLORIDAOsteogenesis Imperfecta Program
    Nemours Children’s Hospital
    Orlando, FL, 32827
    		Website 407-650-77150-18 years old
    GEORGIAOI Clinic at Children’s Healthcare of Atlanta
    Atlanta, GA     		Website 404-785-5438
    Email: OIclinic@choa.org    		Children up to age 21
    HAWAIIShriners Hospitals for Children — Hawaii
    Honolulu, HI 96826    		Website 808-900-7038Children
    ILLINOISOsteogenesis Imperfecta Clinic
    Shriners Hospitals for Children — Chicago
    Chicago, IL 60707    		Website 708-358-6693Children
    INDIANABone Dysplasia Clinic
    Riley Hospital for Children at IU Health
    Indianapolis, IN, 46202    		Website 317-944-5000Children & Adults
    LOUISIANA
    		Shriners Hospitals for Children — Shreveport
    Orthopaedics
    Shreveport, LA 71103    		Website 318-220-1407Children
    MASSACHUSETTSSkeletal Health Center Boston Children's Hospital
    Boston, MA 02115    		Website 617-355-7476
    International:
    +1-617-355-5209    		Children & Young Adult
    MASSACHUSETTSMetabolic Bone Disease Clinic
    Shriners Hospitals for Children — New England
    Springfield, MA 01104    		Website 413-846-1761Children
    MARYLANDJohns Hopkins Pediatric Orthopaedic Surgery
    Baltimore, MD    		Website 443-997-2663Children
    MARYLANDJohns Hopkins Bayview Metabolic Bone and Osteoporosis Center
    Bayview Musculoskeletal Center
    Baltimore, Maryland 21224    		Website 410-550-2565Adult
    MARYLANDOsteogenesis Imperfecta Clinic
    Kennedy Krieger Institute
    Baltimore, MD 21205    		Website (443) 923-2703Children & Adults
    MICHIGANPediatric Orthopaedic Surgery Clinic
    University of Michigan C.S. Mott Children’s Hospital
    Ann Arbor, MI 48109    		Website 734-936-5780Children
    MINNESOTAOsteogenesis Imperfecta Clinic
    Gillette Children's Specialty Healthcare
    St. Paul, MN 55101
    		Website 651-290-8707
    		Children
    MINNESOTAPediatric Metabolic Bone Clinic
    Mayo Clinic
    Rochester, MN     		Website 844-244-1795Children
    MINNESOTAClinical Genomics Skeletal Dysplasia Clinic
    Mayo Clinic
    Rochester, MN    		Website 507-229-0169Adults
    MISSOURISkeletal Dysplasia Program
    Missouri Orthopaedic Institute
    Columbia, MO     		Website (573)-882-2663Children
    MISSOURISkeletal Dysplasia Services Hospital St Louis Children’s Hospital (Children and Adults)
    Barnes Jewish Christian Hospital (Adults)
    St. Louis, MO 63110     		Website 314-454-5437Children and Adults
    MISSOURIBone and Mineral Health Clinic
    Children's Mercy Kansas City
    Kansas City, MO 64108    		Website (816) 234-3030Children
    NEBRASKAOsteogenesis Imperfecta Clinic at Children's Nebraska
    Omaha, NE 68114    		Website 402-955-6300, option 2 Email: OIClinic@ChildrensNebraska.org Children to age 22

    Transition to Adult Care Clinic
    NEBRASKADiabetes and Endocrinology Center at Specialty Services Pavilion University of Nebraska Medical Center Diabetes ClinicWebsite 402-559-8700Adult OI care
    NEW MEXICONew Mexico Clinic Research & Osteoporosis Center - Research & Osteoporosis Center
    Albuquerque, NM 87106    		Website (505)-855-5525


    		Adults
    NEW YORKThe Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias
    Hospital for Special Surgery
    New York, NY 10021    		Website (212)-774-7332 Email: csd@hss.edu Children & Adults
    NEW YORKOI Clinic – Lerner Children’s Pavilion
    Hospital for Special Surgery
    Dr. Daniel Green
    Dr. Jessica Heyer
    Dr. Alyson Weiner
    New York, NY 10021    		Website 212-224-7967 (commercial insurance) 212-606-1267 (New York Medicaid) Pediatric & Adults
    NEW YORKPediatric Bone Health Program
    Golisano Children's Hospital
    Rochester, NY 14642    		Website(585) 244-7744Children-Pediatric
    NEW YORKPediatric Bone Health Program
    Hassenfeld Children’s Hospital at NYU Langone
    New York, NY 10016    		Website (212)-263-5940Children
    NORTH CAROLINAAtrium Health Levine Children’s-Children’s Specialty Center
    Charlotte, NC 28203    		Website (704)-381-8840Children
    OHIOOsteogenesis Imperfecta Clinic
    Akron Children's Hospital
    Akron, Ohio 44308    		Website 330-543-2778Children & Adults
    OHIOMetabolic Bone Clinic
    Nationwide Children's Hospital
    Columbus, OH 43205     		Website (614) 722-4363Children
    OHIOThe Skeletal Dysplasia Center at Cincinnati Children’s Hospital Medical Center
    Cincinnati, OH 45229    		Website 513-636-4760Children & Adults
    OHIOMetabolic Bone Clinic Cincinnati Children's Hospital Medical Center Cincinnati, OH 45229Website 513-639-4744Children
    OKLAHOMAMetabolic Bone Disease Program
    OU Children's
    Oklahoma City, OK 73104    		Website 405-271-6764 (Oklahoma City) 918-619-4803 (Tulsa) Children
    OKLAHOMADr. James Webb and Associates
    Tulsa, OK 74133
    		Website 918-260-9322Adults
    OREGONShriners Hospitals for Children – PortlandWebsite 503-683-3268Children
    OREGONBone and Mineral Unit
    OHSU
    Portland, OR 97201-3098    		Website 503 494-7480Adults
    OREGONPediatric Genetics Program
    Randall Children’s Genetics and Metabolism
    Portland, OR 97227    		Website 503-944-5970 (Genetics & Metabolism) 503-413-4505 (Development & Rehabilitation) Children
    PENNSYLVANIAShriners Hospital for Children - Philadelphia
    Philadelphia, PA 19140    		Website 484-412-662Children
    PENNSYLVANIADivision of Translational Medicine and Human Genetics
    Hospital of the University of Pennsylvania
    Philadelphia, PA 19104    		Website 215-316-5151 800-789-7366Children & Adults
    PENNSYLVANIACenter for Bone Health
    Children's Hospital of Philadelphia
    Philadelphia, PA 19104-4399    		Website 1-877-972-2663Children
    TENNESSEEProgram for Metabolic Bone Disorders at Vanderbilt -Adult Clinic
    Vanderbilt Medical Center
    Nashville, TN 37232    		Website 615-343-8332Adults
    TENNESSEEMetabolic Bone Disease Clinic
    Monroe Carell Jr. Childrens Hospital at Vanderbuilt
    Nashville, TN 37232    		Website 615-322-7472Children
    TEXASSkeletal Dysplasia Program
    Texas Children's Hospital
    Texas Medical Center    		Website 832-822-2100Children & Adults
    TEXASMetabolic and Genetic Disorders of the Bone - Adult Genetics Clinic
    Baylor Medicine    		Website 713–798–7820Adults
    TEXASOI Coordinated Care Center
    Texas Scottish Rite Hospital for Children
    Dallas, Texas 75219    		Website 214-559-8670
    		Children & Adolescents
    TEXAS OI Clinic - Baylor College of Medicine at Christus Children's
    San Antonio, TX 78207    		Website 210-704-3611Children up to age 18
    TEXAS Osteogenesis Imperfecta Clinic El Paso Children's Multi Specialty Center at El Paso Children's Hospital El Paso, TX Website 915-242-8402Birth-18 years of age
    UTAHOsteogenesis Imperfecta Clinic
    Shriners Hospital for Children - Salt Lake City
    Salt Lake City, Utah 84103    		Website 385-541-3935Children
    VIRGINIACHKD's Center for Bone Health
    Children's Hospital of The King's Daughters
    Norfolk, VA 23507    		Website 757-668-6640Children
    WASHINGTONShriners Hospitals for Children-Spokane
    Orthopaedic
    Spokane, WA 99218     		Website 509-931-2277Children up to age 18
    WASHINGTONSkeletal Health Program
    Seattle Children's Hospital Main Campus
    Seattle, WA    		Website 206-987-2109
    		Infants, Children & Teens
    WASHINGTONGenetic Medicine Clinic
    Institute on Human Development and Disability Center
    Seattle, WA 98195    		Website 206-598-4030Adults
    WISCONSINPediatric Bone and Mineral Metabolism Clinic
    American Family Children's Hospital
    Madison, WI 53792    		Website 608-915-0540Children
    CANADABone Health Clinic
    The Hospital for Sick Children
    Toronto, ON M5G 1X8, Canada    		Website 416-813-6530Children
    CANADAMetabolic and brittle bone disease
    Shriners Hospital for Children
    Montreal, Quebec    		Website 438-238-8307 Children
    MexicoShriners Hospital for Children - Tijuana Ambulatory Clinic
    22010 Tijuana, B.C.    		Website 664-977-2500 ext. 1 Up to Age 18

     

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