School-Aged Toolkit

Print Version

The Osteogenesis Imperfecta Foundation is pleased to introduce the School-Aged Toolkit: Information on Caring for Children with OI Between the Ages of Three to Eighteen, designed to help families, healthcare providers, school personnel, coaches and other community members support children and students living with osteogenesis imperfecta (OI).

Click here to access a PDF version of the School-Aged Toolkit.

The OI Foundation would like to thank Kara Ayers, PhD; Mike Bober, MD, PhD; Ricki Carroll, MD, MBE; Jeanne Franzone, MD; Michelle Fynan, PhD, LMHC; Sarah Gosch, OT; Jessica Hansen, APRN-NP; Katherine Harp, LCSW; Mahim Jain, MD, PhD; Joan Marini, MD, PhD; Jessica Minor, MS; Caitlyn Kubik, PA-C; Sarah Little, MSPAS, PA-C; Tina McGreal, MSN, NP-C; Nicole Needles, PT, DPT; Charlette Radik, BSN, RN, CRRN; Brianna
Rezich, MS, CGC; Amee Thedens; Danita Velasco, MD; Brandee Walton, PT; Courtney Wiese, LCSW; and the OI Foundation Medical Advisory Council for their assistance in the development of this resource.

To connect with the OIF Health Educator or request a print version of the toolkit, please contact bonelink@oif.org or call 301-947-0083.

Additional Video and Podcast Resources

School-Aged Toolkit Overview

Managing Pediatric Health Issues: OIF Virtual Conference 2020

Multidisciplinary Care for Pediatric Patients with OI

Pediatric Health Panel: Virtual OIF Conference 2021

Physical and Occupational Therapeutic Strategies for Children with OI

Rodding Surgery and OI

Surgical Updates on Treating Children with OI

Additional Health Factsheets

Flyer: Handle with Care (This flyer may be helpful to display in your hospital room or on your wheelchair)

Adaptive Equipment