OIF News
Welcome to the OIF Board
The OI Foundation is pleased to announce the appointment of two new Board of Directors members: Emily Voorde and Scott Walls. Learn more about the...
OI Factsheet & Toolkit Chatbox
The OI Factsheet & Toolkit Chatbox is a custom GPT (Generative Pre-trained Transformer), an AI language model, created by the Osteogenesis Imperfecta Foundation using OpenAI’s...
OIF E-Newsletter: June 2025
The June issue of the OIF E-Newsletter is here! Read about Dr. Francis Glorieux, Medics on the March, updates from the OI Foundation, current...
In Memoriam: Dr. Francis Glorieux
It is with great sadness that we share the passing of Dr. Francis Glorieux, MD, PhD. Dr. Glorieux served as Chair of the OI...
Help the OIF Understand the Support Needs of the OI Community
The OI Foundation is committed to understanding and responding to the needs of our community. To better support individuals and families living with...
OIF E-Newsletter: May 2025
The May issue of the OIF E-Newsletter is here! Read about National OI Awareness Week, updates from the OI Foundation, OI research updates, and...
OI Research Update: Mental Health
During this session, Dr. Eric Storch of Baylor College of Medicine provided an overview of the OI Wellbeing Study—a multi-phase research initiative examining the...
Potential Drug Therapies: A Conversation
During National OI Awareness Week, Dr. Reid Sutton joined OIF CEO Tracy Hart and OI community member to discuss potential drug therapies. Hosted by...
Join the OIF Email List!
Join the OIF Email List! Sign up to receive updates from the OI Foundation including our monthly e-newsletter, research updates, and upcoming event information....
Support Medics on the March!
Support the doctors representing the OIF at Medics on the March 2025 as they prepare to walk 57 miles through Scotland to spread awareness,...
OIF E-Newsletter: April 2025
The April issue of the OIF E-Newsletter is here! Read about National OI Awareness Week, updates from the OI Foundation, OI research updates, and...
OI Awareness Week Social Media Toolkit
National Osteogenesis Imperfecta Awareness Week is May 3-10, 2025! One of the most effective (and free!) ways to raise awareness during National OI Awareness...