OIF News
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Dear Friend, Greetings! As we look back, 2025 was a wonderful year for the OI Foundation. While celebrating our 55th Anniversary, we continued to...
Proclaim National OI Awareness Week 2026 in your State!
We need YOUR help to proclaim National OI Awareness Week (May 2-9, 2026) in every state! To request a proclamation in your state, follow...
Call for Public Comment: Guideline for the Transition from Pediatric to Adult Care for Individuals with Childhood Rare Bone Diseases.
Call for Public Comment The Rare Bone Disease Alliance and the Osteogenesis Imperfecta Foundation invite public comment on the draft Guideline for the Transition...
OI Community Call Series: Preparing for OIF National Conference
Leading up to OIF National Conference, the OI Foundation is hosting Zoom calls for OI community members which will dive deep into various parts...
OIF E-Newsletter: February 2026
The February issue of the OIF E-Newsletter is here! Read about the Impact Grant and Scholarship Opportunities, upcoming events, OI research news, and more...
Recording: OIF Community Call – School-Aged Toolkit
During this call, the OIF introduced and reviewed the Toolkit with Dr. Michelle Fynan. The OI Foundation is excited to share our newest resource,...
OIF E-Newsletter: January 2026
The January issue of the OIF E-Newsletter is here! Read about the new School-Aged Toolkit, Impact Grant and Scholarship Opportunities, upcoming events, OI research...
Important Update on the Ultragenyx Clinical Trial
You may have seen information recently on the Ultragenyx results from the Phase 3 Cosmic or Obit studies for setrusumab. Neither study achieved statistical...
OIF E-Newsletter: December 2025
The December issue of the OIF E-Newsletter is here! Read a letter from OIF CEO Tracy Hart, updates from the OI Foundation including a...
Breakthrough: Winter 2025
Have you read the latest issue of the OIF’s Breakthrough Newsletter? 2026 OIF National Conference in Orlando, FL New OIF School-Aged Toolkit A message...
2025 Accomplishments
Dear Friend, As 2025 comes to an end, the year has proved to be one of excitement and progress for the Osteogenesis Imperfecta Foundation!...
New Resource: School-Aged Toolkit
The Osteogenesis Imperfecta Foundation is pleased to introduce the School-Aged Toolkit: Information on Caring for Children with OI Between the Ages of Three to...