Individuals with OI (18 and older) and parents of children with OI are encouraged to join the OI Registry. The OI Registry is a database of individuals with OI who are interested in participating in OI research. Once you are enrolled, you will begin to receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward.
If you have any questions, please contact the OI Foundation at firstname.lastname@example.org or (844)889-7579.