The OI Foundation offers several resources for connecting with individuals with OI and OI families. All of the resources listed below allow participants to ask questions, share information, and offer mutual support to others.
OI Foundation Official Facebook Page
“Like” the OI Foundation on Facebook to receive important announcements and updates from the OI Foundation.
OI Community Forum Facebook Group
Join the OI Community Facebook Forum discussion page for the OI community. Please note: In order to view and participate in Facebook groups, you will need an active Facebook account.
OI FOUNDATION SUPPORT GROUPS
Support Group Leaders listed on this page represent community based groups of people affected by OI. These get-togethers are first and foremost a social gathering. Speakers may be scheduled from time to time to provide information on topics of interest to the group. Some groups choose to organize local fundraisers and raise awareness about OI in their communities.
Local contacts are not responsible for holding meetings but are available to offer support, answer questions and direct you to resources.
The information on this page is intended to help you connect with the OI community in your area. Please email or call a support group leader or contact person to join a group or to learn about local resources and activities.
Meetings are listed on the Online Calendar.
If you are interested in starting a Support Group in your area, contact the OIF at bonelink@oif.org.
State/Area | Name | Phone numbers | |
---|---|---|---|
Alabama | Shellie Gruenwald - contact Dana Busby - support group leader | oipac8@yahoo.com | (850) 496-2626 (334) 216-2259 |
Arizona | Barbara Hicks - support group leader Lauri Alexander - contact | oifromaz@gmail.com lauri@digitalswirl.com | |
California (Northern) | Bill Scarberry - support group leader Anastasia Scarberry - support group leader Beth Gero - support group leader | ncoisg@yahoo.com abgero@sbcglobal.net | (916) 955-0978 (916) 474-9073 (925) 516-6439 |
California (Southern) | Michelle Hofhine - support group leader | mahofhine@gmail.com | (805) 484-8723 |
Connecticut | Sharon Werner - support group leader | sharonlwerner@yahoo.com | (860) 647-8095 |
Colorado | Christina Carney- support group leader | christinalcarney@gmail.com | (970) 964-4250 |
Florida (Tampa) | Susie Wilson - support group leader Gail Bunker - support group leader Shellie Gruenwald - contact | oislw@aol.com gbunker1@aol.com | (239) 482-6892 (813) 657-0049 (850) 969-0006 |
Florida (Southern) | Missy Monokian - support group leader | missymonokianministries@comcast.net | (305) 528-2336 |
Florida (Broward and Palm Beach County) | Michele Burka - support group leader Amie Ludwig - contact | Mishib69@gmail.com amieludwig1@yahoo.com | 954-547-2344 (214) 334-9683 |
Georgia | Anne Smith - support group leader Lindsey van der Klei - support group leader Sharon Mutnick- contact Aimee Strickland - contact | annesmithrn@aol.com lindslang@gmail.com aimeestrcklnd@yahoo.com | (770) 715-3051 (770) 296-9391 |
Idaho | Trisha Taylor - support group leader | (208) 969-0791 | |
Illinois | Jean Grys - contact Mary Rozema - contact | grysmom@yahoo.com merozema@comcast.net | (309) 353-4988 (815) 463-0687 |
Iowa | Joan Jacobs - support group leader Sola Moffett - contact Robin and Jerome Hawco -support group leader Kyle Thompson -support group leader | jfjacobs48@hotmail.com dsc3moff@yahoo.com jhawco@rogers.com suevankt@gmail.com | (641) 777-7055 (641) 590-5265 (641) 903-6393 (641)-420-8050 |
Kentucky | Cheryl Pena - support group leader Angie Skaggs - support group leader | Calli1980@aol.com yorkiemom.aws.@gmail.com | (859) 744-3679 (270) 860-7746 |
Kansas | Susie Gibson - contact Stephanie Guin - support group leader | svgibson1@mybluelight.com guinsteph@yahoo.com | (816) 650-6344 (913) 486-9080 |
Massachusetts (South Shore) | Cheryl Manduca - support group leader | disneyfanatic4eva@gmail.com | (508) 292-0562 |
Michigan | Kim Peck - contact | creativekim1117@comcast.net | (517) 881-3240 |
Minnesota | Erin DeBlieck - support group leader | erinchad@myclearwave.net | (507) 931-3454 |
Missouri | Susan Wright - contact Jennifer Fischer - contact Stephanie Guin-support group leader | sewright03@yahoo.com jlfischer@live.com guinsteph@yahoo.com | (636) 931-5607 (417) 845-8105 (417) 592-3117(cell) (913) 541-4770 |
Montana | Karrie Levanen - support group leader | klevanen@gmail.com | (406) 471-4605 |
New Jersey | Ricky Britner Jr. - support group leader JoAnn Berkenbush - contact | oirickybritnerjr@gmail.com jbcowoi@juno.com | (304) 261-9199 |
New Mexico | Curtiss Wilson - support group leader | oiersofnm@gmail.com | (505) 750-8207 |
North Carolina | Ray Rogers - support group leader Naveen KV Muralidharan | ray@capefear.net naveenspec@gmail.com | (910) 392-7778 (919) 534-5078 |
Ohio | Renee Riegel - contact Cyndi Ashland - support group leader Rena Sorensen-Burnworth - support group leader | bzymomma4@aol.com cyndiashland@aol.com rsburnworth@yahoo.com | (937) 830-2020 (513) 467-9588 (513) 673-3878 |
Ohio (Northern) | Les & Erin Szavuly - contact | eszavuly@lourdes.edu | (419) 824-3685 |
Ohio (SE) | Cassandra Gililland - support group leader | cassi777@gmail.com | (304) 840-9660 |
Oregon | Shannon Parker-support group leader Julie Schlafle - contact | shannonfinleyparker@gmail.com jschlafle@yahoo.com | (503) 881-6240 (503) 285-2283 |
PA (Pittsburgh) | Chaz Kellem - support group leader Nikki Watson - support group leader | chazkellem@yahoo.com Info@nikkiwatson.love | (412) 913-6357 |
Rhode Island | Diana Johnson - support group leader Sue Kortick - support group leader | strongertogether.oi.connected@gmail.com Skortick@lifespan.org | (401) 444-5794 |
Texas (Central) Texas (Wise County) Texas (Houston) | Debbie Wiederhold - support group leader Courtney Arant - support group leader Lauren Miller - support group leader Jocelyn Gomez - support group leader | deb.wiederhold@gmail.com oigroupofwisecountytexas@gmail.com lauren.houstonOI@gmail.com | (512) 791-2292 (713) 562-5227 |
Texas (Dallas) | Molly Lyke - contact Elise Russell - contact | mollylyke@hotmail.com | (214) 733-3288 (817) 577-0056 |
Utah | Angie Livingston - contact | (801) 536-3649 | |
Virginia - Tidewater | John Crandley - support group leader | john@pwcattorneys.com | (757) 477-6023 |
Washington | Diane Wysocki - support group leader | wysocki.diane@hotmail.com | (206) 713-7208 |
West Virginia | Wendy Barb - support group leader | wendyshiflett@hotmail.com | |
Wisconsin | Jennifer Reese - contact Kathy Shine - contact Daniel Shine - contact | thereeses@wi.rr.com | (262) 646-3887 (414) 383-4777 (414) 383-4777 |