The OI Foundation offers several resources for connecting with individuals with OI and OI families. All of the resources listed below allow participants to ask questions, share information, and offer mutual support to others.

OI Foundation Official Facebook Page
“Like” the OI Foundation on Facebook to receive important announcements and updates from the OI Foundation.

OI Community Forum Facebook Group 
Join the OI Community Facebook Forum discussion page for the OI community. Please note: In order to view and participate in  Facebook groups, you will need an active Facebook account.



About the OI Support Group Program
The OI Foundation recognizes the value of creating a space where members of the OI community can share their personal experiences, and both receive and provide support. For many years, OI Support Groups met in person, but with advancements in technology, some of the groups have chosen to meet virtually in recent years. The OIF is now expanding this important program to ensure that everyone in the US has the opportunity to connect either by geography or by interest.

The goal of the OI Support Group Program is to provide a space for sharing, educating, and socializing.

  • Sharing allows participants to talk about their experiences and feelings and offer each other mutual support and encouragement.
  • Education occurs when group members receive new information on topics of interest.
  • Social time provides unstructured opportunity for members to enjoy each other’s company.

The OI Support Group Program is divided into five Regional Groups (Northeast, Southeast, Southwest, Midwest, and West) and OI Affinity Groups. With support from OIF staff, each OI Support Group is led by an OI community member.

The Regional Support Groupsaim to connect and foster a sense of community among OI community members in a specific region of the United States and to provide national and local resources.

Affinity Support Groups offer individuals who share a common identifying characteristic or interest with a place to connect and share resources


Below is a list of Support Group contacts by state. Support Group Leaders and contact information will be shared here when available.

State/AreaContactEmailPhone numbers
AlabamaShellie Gruenwald
Dana Busby 496-2626
(334) 216-2259
ArizonaBarbara Hicks
Lauri Alexander
California (Northern)Bill Scarberry
Anastasia Scarberry
Beth Gero
(916) 955-0978
(916) 474-9073
(925) 516-6439
California (Southern)Michelle Hofhine 484-8723
ConnecticutSharon Werner 647-8095
ColoradoChristina 964-4250
Florida (Tampa)Susie Wilson - support group leader
Gail Bunker - support group leader
Shellie Gruenwald - contact
(239) 482-6892
(813) 657-0049
(850) 969-0006
Florida (Southern)Missy 528-2336
Florida (Broward and Palm Beach County)Amie 334-9683
GeorgiaAnne Smith
Lindsey van der Klei
Sharon Mutnick
Aimee Strickland
(770) 715-3051
(770) 296-9391
IdahoTrisha Taylor(208) 969-0791
IllinoisJean Grys
Mary Rozema
(309) 353-4988
(815) 463-0687
IowaJoan Jacobs
Sola Moffett
Robin and Jerome Hawco
Kyle Thompson
(641) 777-7055
(641) 590-5265
(641) 903-6393
KentuckyCheryl Pena
Angie Skaggs
(859) 744-3679
(270) 860-7746
KansasSusie Gibson
Stephanie Guin
(816) 650-6344
(913) 486-9080
Massachusetts (South Shore)Cheryl 292-0562
MichiganKim 881-3240
MinnesotaErin DeBlieck 931-3454
MissouriSusan Wright
Jennifer Fischer
Stephanie Guin
(636) 931-5607
(417) 845-8105
(417) 592-3117(cell)
(913) 541-4770
MontanaKarrie Levanen 471-4605
New JerseyRicky Britner Jr.
JoAnn Berkenbush
(304) 261-9199
New MexicoCurtiss 750-8207
North CarolinaRay Rogers
Naveen KV Muralidharan
(910) 392-7778
(919) 534-5078
OhioRenee Riegel
Cyndi Ashland
Rena Sorensen-Burnworth
(937) 830-2020
(513) 467-9588
(513) 673-3878
Ohio (Northern)Les & Erin Szavuly
(419) 824-3685
Ohio (SE)Cassandra
(304) 840-9660
OregonShannon Parker
Julie Schlafle
(503) 881-6240
(503) 285-2283
PA (Pittsburgh)Chaz Kellem
Nikki Watson
(412) 913-6357
Rhode IslandDiana Johnson
Sue Kortick
(401) 444-5794
Texas (Central)
Texas (Wise County)
Texas (Houston)
Debbie Wiederhold
Courtney Arant
Lauren Miller
Jocelyn Gomez
(512) 791-2292
(713) 562-5227
Texas (Dallas)Molly Lyke
Elise Russell 733-3288
(817) 577-0056
UtahAngie Livingston(801) 536-3649
Virginia - TidewaterJohn 477-6023
WashingtonDiane Wysocki 713-7208
West VirginiaWendy
WisconsinJennifer Reese
Kathy Shine
Daniel Shine 646-3887
(414) 383-4777
(414) 383-4777