The Strong Bones Virtual Gala ONLINE AUCTION IS LIVE!

The Strong Bones Virtual Gala Boston

ONLINE AUCTION IS LIVE!

Don’t miss your chance to win signed sports memorabilia, a catered BBQ dinner, private wine tastings, and so much more! In order to bid, make sure to create your Bidding for Good account prior to the event.

Proceeds from this event help the OI Foundation respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research.

Now more than ever, we rely on supporters like yourself to ensure we can continue this important work.

Click Here to Start Bidding!

Please tune in on October 10 at 8:00pm EST for a special video presentation that will include personal messages from OI community members, a live raffle, door prizes, and social hour hosted by OIF Board of Directors Member, Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!

With a new virtual platform, OI community members from across the world can sign on for a fun-filled evening to support the work of the OIF.

Click Here to Register for the FREE Event!

For more information or questions please contact Melissa Bonardi at MBonardi@oif.org or visit www.oif.org/StrongBonesBoston

Attend an OIF Virtual Gala!

Fine Wines Strong Bones events help the OI Foundation raise funds that are necessary to respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research. We rely on events such as these to continue our important work.

While we are sad we cannot be together in person this year, the health and wellness of our OI community members comes first. With a new virtual platform, OI community members from across the US can sign on for a fun-filled evening to support the work of the OI Foundation.


Strong Bones Virtual Gala Boston
October 10, 2020 | 8:00 – 9:00 PM EST

On October 10, 2020 the OI Foundation will host its first-ever virtual Fine Wines Strong Bones event hosted by Board of Directors member Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!

This fun-filled evening will include an online auction, Zoom social hour, special video presentations, party packages from Sincere Cheer, and the opportunity to fund the mission of the OI Foundation!

Learn More!


Virtual Boots & Bling for Better Bones
November 7, 2020 | 7:00 – 8:00 PM CST

On November 7, 2020, dust off your favorite cowboy chic attire for the
Virtual Boots & Bling for Better Bones. All money raised goes directly to the OI Foundation to benefit the 50,000 men, women and children in the U.S. living with this rare genetic disorder.

This fun-filled evening will include an online auction, live performance from Weldon Henson, special video presentations, Goode Company BBQ, and opportunity to fund the mission of the OI Foundation!

Learn More!

For more information or questions please contact Melissa Bonardi at MBonardi@oif.org or visit www.OIF.org/Events.

OIF Young Investigators Symposium: Call for Abstracts!

OIF Young Investigators Symposium
Basic, Translational and Clinical Aspects of Osteogenesis Imperfecta and Other Rare Bone Disorders

The Osteogenesis Imperfecta Foundation (OIF) is seeking abstract submissions from young investigators working in the field of osteogenesis imperfecta (OI) and/or rare bone disease research to be presented at the 2020 OIF Young Investigator Symposium on Tuesday, November 17 from 5pm-8pm EST.

This virtual one-day meeting is being offered as a pre-meeting event for the 2020 International Conference on Children’s Bone Health’s Virtual Forum and is open to US and international participants. Investigators are welcome to submit abstracts to both meetings. Submissions for the Young Investigator Symposium will be reviewed by a scientific review committee and selected abstracts will be invited to present a 10-15 minute overview of their work with 5 minutes for questions from the audience. Investigators are encouraged to share novel findings.
For more information about the ICCBH Virtual Forum visit www.iccbh.org.


Date of Meeting: November 17, 2020 from 5pm-8pm EST

Deadline for Submission: October 1, 2020

To Apply: Click here for Abstract Submission Form or contact Erika Carter at ecarter@oif.org

To Attend: Click here to register to attend. Registration to attend the meeting is free of charge.


 

ELIGIBILITY

  • Must be a medical or graduate student
    • OR post-doctoral fellow
    • OR young faculty within 10 years of last graduate degree
  • Areas of research include, but are not limited to: Osteogenesis imperfecta, Paget’s disease of bone, Generalized Arterial Calcification of Infancy (GACI), Hypophosphatemia, Autosomal Recessive Hypophosphatemic Rickets (ARHR2), Osteopetrosis, Fibrodysplasia Ossificans Progressiva (FOP), Fibrous Dysplasia and McCune Albright Syndrome, Hypophosphatasia (HPP), Gorham-Stout Disease, Melorheostosis, Jansen’s disease, X-Linked Hypophosphatemia (XLH), Multiple Hereditary Exostoses (MHE), and Multicentric Carpotarsal Osteolysis Syndrome (MCTO)

The OI Foundation is committed to supporting research to help improve the quality of life for people living with OI. This often times includes engaging groups throughout the rare bone disease community, such as the Rare Bone Disease Alliance (www.rbdalliance.org). The OI Foundation is pleased to open this meeting to the entire rare bone disease research community.

OI Community Call: Mental Health during COVID-19

On Thursday, September 3, 2020, Dr. Kara Ayers (Associate Director of the University of Cincinnati Center for Excellence in Developmental Disabilities) and Dr. Michelle Fynan (Online Instructor at LA Film School, Online Coach and Therapist) joined fellow OI community members on a video call to discuss mental health considerations during the COVID-19 pandemic.

OIF Young Investigators Symposium

OIF Young Investigators Symposium
Basic, Translational and Clinical Aspects of Osteogenesis Imperfecta and Other Rare Bone Disorders

The Osteogenesis Imperfecta Foundation (OIF) is seeking abstract submissions from young investigators working in the field of osteogenesis imperfecta (OI) and/or rare bone disease research to be presented at the 2020 OIF Young Investigator Symposium on Tuesday, November 17 from 5pm-8pm EST.

This virtual one-day meeting is being offered as a pre-meeting event for the 2020 International Conference on Children’s Bone Health’s Virtual Forum and is open to US and international participants. Investigators are welcome to submit abstracts to both meetings. Submissions for the Young Investigator Symposium will be reviewed by a scientific review committee and selected abstracts will be invited to present a 10-15 minute overview of their work with 5 minutes for questions from the audience. Investigators are encouraged to share novel findings.
For more information about the ICCBH Virtual Forum visit www.iccbh.org.


Date of Meeting: November 17, 2020 from 5pm-8pm EST

Deadline for Submission: October 1, 2020

To Apply: Click here for Abstract Submission Form or contact Erika Carter at ecarter@oif.org

To Attend: Click here to register to attend. Registration to attend the meeting is free of charge. 


ELIGIBILITY

  • Must be a medical or graduate student
    • OR post-doctoral fellow
    • OR young faculty within 10 years of last graduate degree
  • Areas of research include, but are not limited to: Osteogenesis imperfecta, Paget’s disease of bone, Generalized Arterial Calcification of Infancy (GACI), Hypophosphatemia, Autosomal Recessive Hypophosphatemic Rickets (ARHR2), Osteopetrosis, Fibrodysplasia Ossificans Progressiva (FOP), Fibrous Dysplasia and McCune Albright Syndrome, Hypophosphatasia (HPP), Gorham-Stout Disease, Melorheostosis, Jansen’s disease, X-Linked Hypophosphatemia (XLH), Multiple Hereditary Exostoses (MHE), and Multicentric Carpotarsal Osteolysis Syndrome (MCTO)

The OI Foundation is committed to supporting research to help improve the quality of life for people living with OI. This often times includes engaging groups throughout the rare bone disease community, such as the Rare Bone Disease Alliance (www.rbdalliance.org). The OI Foundation is pleased to open this meeting to the entire rare bone disease research community.

It’s not too late to support your favorite Walk-n-Wheel participant!

Thank you so much to everyone who participated in the first-ever Virtual Unbreakable Spirit® Walk-n-Wheel!

Across the United States, Canada, and even as far as Uganda, people came together virtually to support the OI Foundation and raise OI awareness. Together we raised over $60,000 to support the OIF’s mission to improve the quality of life for those living with OI through research, education, awareness, and mutual support. Thank you to our wonderful co-chairs Mark Birdwhistell, Stephanie Greenwood, and Dr. Maegen Wallace for making this event such a success. To watch the recorded Walk-n-Wheel Zoom call, please visit the OIF Facebook page.

It’s not too late to make a donation to the Virtual Walk-n-Wheel! Click here to make a donation to in honor of your favorite participant.

We can’t wait to walk and wheel with you in person next year at the OIF National Conference in Omaha, NE on July 8, 2021!

Virtual OIF Walk-n-Wheel – Register for the LIVE Zoom Call!

Don’t forget to register for the live Zoom call!
 
Join the OIF staff, Walk-n-Wheel Co-chairs (Mark Birdwhistell, Stephanie Greenwood, and Dr. Maegen Wallace), and OI community members live on Zoom from 7:00-8:00pm ET to participate in the Virtual OIF Walk-n-Wheel! Walk around your neighborhood or living room to raise OI awareness and support the mission of the OI Foundation.
 
 
TAG US! Tag us on social media with #OIFwalknwheel to show us where you are walking and wheeling!

Happy National Iced Tea Day!

 

Today is National Iced Tea Day! If you have yet to participate in Bone China Tea this year, consider hosting a Bone China ICED Tea event! The OIF’s NEW Bone China Iced Tea event will be available all summer long.

Invite your friends and family to sip on tea, soak up the sun, and support the mission of the OI Foundation. Fundraisers like Bone China Tea directly support the mission of the OIF to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness and mutual support. Now more than ever, we rely on community members like yourself to help us achieve our mission.

To request invitations, contact Christina at cteufert@oif.org. For more information visit, www.oif.org/campaign/bonechinatea. Summer campaign available until August 2020. #NationalIcedTeaDay

Register to Attend the Virtual OIF Conference!

 
In place of the in-person OIF National Conference this year, the OI Foundation will host a Virtual Conference on July 10-12, 2020. The Virtual OIF Conference will provide live online versions of some of the most popular informational and social sessions at the biennial OIF National Conference.
 
OIF Virtual Conference is free of charge, but you must register for each session you would like to attend. To learn more, or register for the OIF Virtual Conference, visit www.oif.org/virtualconference.

You are invited to a Virtual Bone China Tea Party!

Celebrate National Bone China Tea Day with OI community members!

On Thursday, May 7, OI community members will come together virtually to celebrate National Bone China Tea Day! You are invited to attend the OIF’s virtual Bone China Tea party, hosted by Bone China Tea Chair Susie Wilson. 

THURSDAY, MAY 7, 2020 // 4:00pm ET

Click here to join the Zoom Virtual Meeting

Meeting ID: 879 5237 1329
Password: 049742

 

To set up your own Bone China Tea event or to learn more, visit www.oif.org/campaign/bonechinatea