The OI Foundation is hosting the first Virtual Northeast Regional Conference on Saturday, February 27 from 9:00am to 12:00pm Eastern Time.
This virtual meeting, chaired by OIF Medical Advisory Council Member Dr. Cathleen Raggio (Co-Director of the Kathryn O. and Alan C. Greenberg Center for Skeletal Dysplasias at Hospital for Special Surgery and Pediatric Orthopedic Surgeon at the Hospital for Special Surgery in New York City), will feature a series of presentations by experts from the Hospital for Special Surgery (HSS) and other clinics in the Northeast United States. Like past OIF Regional Conferences, this event will provide a brief overview of multiple topics and will feature speakers with extensive experience in treating OI.
Presentation topics will include orthopedic treatments, cardiopulmonary health, hearing, nutrition, physical therapy, and mental health. After each presentation, the speaker and a panel of Northeast-based medical providers will answer audience questions. The full agenda can be found here.
The OIF Virtual Regional Conferences are for both OI community members and medical professionals who want to learn more about understanding OI from infancy through adulthood. The event will feature speakers and panelists from New York and New England.
OIF Regional Conferences are great opportunities for those who have never attended an OIF event to learn more about osteogenesis imperfecta and connect with local providers.
The OI Foundation hosted a second COVID-19 Vaccine Q&A on Thursday, February 11, 2021 at 6:00pm ET. Drs. Bottazzi, Lee, and Sandhaus shared updates on the COVID-19 vaccines and answered questions from OI community members. Discussion topics included anticipated new vaccines, social-distancing in 2021, and more.
Meet the Speakers
Maria Elena Bottazzi, PhD – Associate Dean of the National School of Tropical Medicine, Professor of Pediatrics, and Co-Director of Texas Children’s Center for Vaccine Development at Baylor College of Medicine. She is an internationally recognized vaccinologist, has published over 150 scientific papers, and co-chairs the New Vaccines and Therapeutics Taskforce of the Lancet Commission on COVID-19.
Brendan Lee, MD, PhD – Robert and Janice McNair Endowed Chair in Molecular and Human Genetics, Professor and Chairman, Department of Molecular and Human Genetics, Baylor College of Medicine
Robert A. Sandhaus, MD, PhD, FCCP – Pulmonologist, National Jewish Health
After much consideration, we have decided to make the 2021 OIF National Conference a virtual affair. The OIF Board of Directors, staff and medical professionals believe there’s still too much uncertainty surrounding travel and large gatherings, and letting this decision linger any longer could create unfair travel burdens or financial hurdles and those are the last things we want for our community.
The success we enjoyed in July with our first virtual National Conference made this decision even easier. Of the thousands who joined us from as far away as Australia, more than half of them were attending their very first conference. Now, we have a tremendous opportunity to build on that reach and amplify that success with expanded programming and even more community elements.
If all goes as planned, the 2022 National Conference at the JW Marriott Grande Lakes in Orlando will be in-person, but will also be available virtually, as will nearly all programming going forward.
We thank you for your understanding and patience as we navigate the Foundation through these unusual times. We’ll release more details in the coming months, but please don’t hesitate to reach out if you have any questions. The OI Foundation can be reached by phone at (844) 889-7579 or by email at email@example.com.
To prepare for the OIF’s 50th anniversary, OIF Founder Gemma Geisman wrote a beautiful letter reflecting on the OI Foundation’s accomplishments and activities since 1970. Her daughter, Cathy, shared this letter with the OI community in Gemma’s Corner.
Gemma was creative, passionate, and a wonderful listener. She listened to learn about you, she listened to find out how to help you, and she listened because she cared about you.
Gemma’s Corner, created in memory of Gemma, encourages the OI community to keep sharing with each other, caring for each other, and providing support to one another.
For more information, or to share your story, please contact Jessica at firstname.lastname@example.org.
As we near the end of 2020, we are taking a moment to reflect on what has certainly been a historic year. We are thankful for the generosity of individuals like you that allows the OI Foundation to continue providing programs and services that benefit all members of the OI community. We have worked hard to pivot and expand our programs to meet the needs of the OI community during this global crisis and want to share a few of our accomplishments this year. Please click here to view the OIF’s list of accomplishments.
If you have not had the chance to remember us with a gift this time of year, please take a moment to do so at www.oif.org/donate. Thank you again for your support!
Join us for the first-ever OIF New Year Extravaganza! All are welcome to participate in this virtual event. Festivities include virtual games, live raffles, and time to socialize! Make sure to register in advance to be included in the live raffle. Click here or the Register Now button below to register to attend.
You are invited to the OIF’s Virtual Friendsgiving Celebration!
For some, this holiday season may look a little different, but our incredible OI community reminds us that we are never alone. Mutual support is at the core of the OIF’s mission and we believe it is important now more than ever.
Please join us for an evening of fun and togetherness with live raffles, bingo, and warm conversation as we come together and give thanks. All are welcome to participate in this virtual event! Don’t forget to register in advance on Zoom to receive login information and to be entered into the live raffles.
CLICK HERE to register to attend OIF Friendsgiving!
Share your recipe! Email your favorite Thanksgiving recipe to email@example.com to be included in the OIF Friendsgiving Cookbook! All recipes will be shared with all attendees.
Don’t miss your chance to win signed sports memorabilia, a catered BBQ dinner, private wine tastings, and so much more! In order to bid, make sure to create your Bidding for Good account prior to the event.
Proceeds from this event help the OI Foundation respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research.
Now more than ever, we rely on supporters like yourself to ensure we can continue this important work.
Please tune in on October 10 at 8:00pm EST for a special video presentation that will include personal messages from OI community members, a live raffle, door prizes, and social hour hosted by OIF Board of Directors Member, Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!
With a new virtual platform, OI community members from across the world can sign on for a fun-filled evening to support the work of the OIF.
Fine Wines Strong Bones events help the OI Foundation raise funds that are necessary to respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research. We rely on events such as these to continue our important work.
While we are sad we cannot be together in person this year, the health and wellness of our OI community members comes first. With a new virtual platform, OI community members from across the US can sign on for a fun-filled evening to support the work of the OI Foundation.
Strong Bones Virtual Gala Boston
October 10, 2020 | 8:00 – 9:00 PM EST
On October 10, 2020 the OI Foundation will host its first-ever virtual Fine Wines Strong Bones event hosted by Board of Directors member Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!
This fun-filled evening will include an online auction, Zoom social hour, special video presentations, party packages from Sincere Cheer, and the opportunity to fund the mission of the OI Foundation!
Virtual Boots & Bling for Better Bones November 7, 2020 | 7:00 – 8:00 PM CST
On November 7, 2020, dust off your favorite cowboy chic attire for the
Virtual Boots & Bling for Better Bones. All money raised goes directly to the OI Foundation to benefit the 50,000 men, women and children in the U.S. living with this rare genetic disorder.
This fun-filled evening will include an online auction, live performance from Weldon Henson, special video presentations, Goode Company BBQ, and opportunity to fund the mission of the OI Foundation!
OIF Young Investigators Symposium Basic, Translational and Clinical Aspects of Osteogenesis Imperfecta and Other Rare Bone Disorders
The Osteogenesis Imperfecta Foundation (OIF) is seeking abstract submissions from young investigators working in the field of osteogenesis imperfecta (OI) and/or rare bone disease research to be presented at the 2020 OIF Young Investigator Symposium on Tuesday, November 17 from 5pm-8pm EST.
This virtual one-day meeting is being offered as a pre-meeting event for the 2020 International Conference on Children’s Bone Health’s Virtual Forum and is open to US and international participants. Investigators are welcome to submit abstracts to both meetings. Submissions for the Young Investigator Symposium will be reviewed by a scientific review committee and selected abstracts will be invited to present a 10-15 minute overview of their work with 5 minutes for questions from the audience. Investigators are encouraged to share novel findings.
For more information about the ICCBH Virtual Forum visit www.iccbh.org.
Date of Meeting: November 17, 2020 from 5pm-8pm EST
OR young faculty within 10 years of last graduate degree
Areas of research include, but are not limited to: Osteogenesis imperfecta, Paget’s disease of bone, Generalized Arterial Calcification of Infancy (GACI), Hypophosphatemia, Autosomal Recessive Hypophosphatemic Rickets (ARHR2), Osteopetrosis, Fibrodysplasia Ossificans Progressiva (FOP), Fibrous Dysplasia and McCune Albright Syndrome, Hypophosphatasia (HPP), Gorham-Stout Disease, Melorheostosis, Jansen’s disease, X-Linked Hypophosphatemia (XLH), Multiple Hereditary Exostoses (MHE), and Multicentric Carpotarsal Osteolysis Syndrome (MCTO)
The OI Foundation is committed to supporting research to help improve the quality of life for people living with OI. This often times includes engaging groups throughout the rare bone disease community, such as the Rare Bone Disease Alliance (www.rbdalliance.org). The OI Foundation is pleased to open this meeting to the entire rare bone disease research community.