OI Research Update: Longitudinal Study

Join the OIF for a discussion about the Longitudinal Study of Osteogenesis Imperfecta on Thursday, September 22 at 7:00 PM ET

The Longitudinal Study of Osteogenesis Imperfecta, also known as the Natural History Study, is the largest research project ever conducted on people with OI.  With nearly 1000 people enrolled, it has tracked the life cycle of symptoms for people with OI since 2009.  Findings from this Brittle Bone Disorders Consortium (BBDC) study will help medical professionals better understand OI’s impact on individuals at different stages of life and will be used as a foundation for developing guidelines for care.

To help explain this study and answer audience questions, the OIF will be joined by Dr. Reid Sutton, Geneticist at Baylor College of Medicine, Administrative Director and Principal Investigator of the BBDC, and member of the OIF Medical Advisory Council and Board of Directors. Dr. Sutton will discuss the design of the study, its goals, and what researchers have learned so far.




This session is part of a series meant to demystify and contextualize medical research from the Brittle Bone Disorders Consortium. Previous research updates can be viewed here.