In Memory of Gemma Geisman

It is with great sadness that the OI Foundation’s Board of Directors and Staff report that Gemma Geisman, founder of the OI Foundation, has passed away.

More than fifty years ago, Redbook magazine published an article written by Gemma Geisman about her 11-year-old son, Mike, who was living with osteogenesis imperfecta. Gemma wrote about the challenges they faced as a family, including the isolation and the frightening lack of information or support for caring for a child with a rare fragile bone condition. Gemma’s words reached families with OI across the nation. Letters started flooding her mailbox and within months, a committed group of parents came together to support each other. In 1970, the OI Foundation was formed.

Gemma, with the help of a small group of parents, made it her mission to bring information and support to families with OI. Gemma was involved in publishing the first issue of the OIF Breakthrough Newsletter, creating the first brochure about OI, establishing the OI support group network, organizing the first OIF National and Regional Conferences, and so much more.

This year is the OI Foundation’s 50th anniversary year. The OI Foundation would not be here today without Gemma’s dream to bring information and support to families with OI.

We owe a very special thank you to Gemma for her dedication to the OI community for more than fifty years. She will be greatly missed.

Gemma Marquis Geisman 85, peacefully passed away on Thursday, April 23, 2020. She was born in Van Buren, Maine on December 7, 1934 and was proud to be number 12 of 13 children born to William and Adele (Castonguay) Marquis.

Gemma married the love of her life Richard “Dick” Geisman on June 27, 1953 at St. Anne’s Catholic Church in Hartford, CT and they shared 54 wonderful years together before his passing on September 30, 2008. Gemma had plans to be a nun after graduation until Dick, a navy sailor, “crashed” a wedding she was attending. It must have been divine intervention as they were truly meant for each other.

Gemma was a loving mother to her four children and in spite of the fact that her second child, Mike, was born with a rare genetic brittle bone disease called Osteogenesis Imperfecta, she and Dick did everything they could to create a normal family life for all.  Their home became the hub of the neighborhood, with wiffle ball games causing a permanent infield in the grass, homemade ice cream being cranked and shared with all, Christmas trees bigger than life, pulling taffy, making fudge, camping and many more activities that have become family traditions. Her children could always count on her to sweep away the boredom of a lazy summer day by writing a script for a summer play with them as the main characters and the neighborhood children as the audience. Gemma was the producer, director, set designer, costume designer, acting coach and marketing genius. Because of her love of reading there were many trips to the local library and piles of books coming home for the children to read.

Gemma was very creative and had a passion, not only for reading, but for writing stories. She is the published author of over 60 articles that have appeared in various magazines such as Redbook, Good Housekeeping, Lady’s Circle, Exceptional Parent, American Legion Magazine, Catholic Digest and many others. Her favorite topic was sharing the joys of growing up in a small town in Northern Maine in a large French-Canadian family in the “House on the Hill”.

Gemma’s writing led her to submit a Young Mother’s Story to Redbook Magazine in 1967 called “My Prison of Dreams” which was the story of how it felt to care for a breakable baby with Osteogenesis Imperfecta. The publication of this story created a flood of mail from all over the country from parents in similar situations and it changed her life forever. Gemma worked together with a few of those parents and the doctors at the Shriners Hospital in Chicago, where Mike spent many days, and the result was the formation of the Osteogenesis Imperfecta Foundation which celebrates its 50th anniversary in 2020. Thousands of children worldwide, born with this rare disease, and their families have been helped over the years because of Gemma.

Some of Gemma’s roles in the OI Foundation included serving as the Foundation’s first Executive Director (1981-1987), serving on the Advisory Council and the Nominating Committee for many years. She also edited Breakthrough (the foundations newsletter) for 14 years, providing information, inspiration, role models and support to a growing readership. Gemma was awarded the Foundation’s highest honor, the Thelma Clack Lifetime Volunteer of the Year Award in 2002. Gemma told the story of raising Mike and the formation of the OI Foundation in her book “From the Seeds of Sadness” which was published in 2009 and can be found on Amazon.

Gemma has impacted the lives of everyone who has known her and she will be greatly missed. She is survived by her children, Cathy Bowen of Goffstown, NH, Cindy Geisman (Jay Williams) of Bastrop, TX, and Richard “Rick” Geisman (Rose) of East Hartford, CT. Gemma has eight grandchildren, Jennifer Bowen, Emily (Bowen) Blossom, Ryan Bowen, Paula (Bowen) Huntley, Sean(Samantha), Trey and Corey Geisman and Gemma “Gem” Williams. She also has seven great-grandchildren, Jacob and Caleb Shepard, Marshall Bracey, Gavin and Corbin Huntley, who lovingly called her triple G (Great Grandma Geisman) and Carson and Camden Geisman. She is also survived by two siblings Peter Marquis (Angie) of Goffstown, NH and Robertine “Bobbie” Dryer (Chuck) of Portsmouth, NH and a brother-in-law Jim Geisman of Horton, MI along with many nieces and nephews who loved her dearly. Gemma is predeceased by her husband Dick and son Mike, her parents and ten siblings.

A Catholic mass and celebration of her life will be held later this year when it is safe once again to come together. Her ashes will be placed next to Dick in the Woodland Cemetery in Van Wert, Ohio. The family requests that in lieu of flowers, donations be made to The Gemma Geisman Funds at the Osteogenesis Imperfecta Foundation, 804 W Diamond Ave Suite 210. Gaithersburg MD 20878 or online at

Obituary: Gemma Geisman 


Pneumonia Vaccine Update

The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI. Thank you to Dr. Robert Sandhaus (University of Colorado School of Medicine, Denver, CO) for helping us update the fact sheet listed below.

Pneumonia Vaccine Update – Information for Children and Adults who have OI

The OI Foundation has published fact sheets on many topics related to understanding and living with OI. View all OIF Fact sheets at


Join the OIF Book Club!

Join the OIF Book Club today and consider your weekend BOOKED!

The OIF Book Club is for students and readers alike who enjoy the company of a good book and want to help support the work of the OIF. Your participation directly support the OIF’s mission to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness and mutual support.

The more you read, the more money you raise, and the more prizes you can win! Visit for more information!

OIF Conference Update

After much consideration, we have decided to make the 2021 OIF National Conference a virtual affair.  The OIF Board of Directors, staff and medical professionals believe there’s still too much uncertainty surrounding travel and large gatherings, and letting this decision linger any longer could create unfair travel burdens or financial hurdles and those are the last things we want for our community.

The success we enjoyed in July with our first virtual National Conference made this decision even easier. Of the thousands who joined us from as far away as Australia, more than half of them were attending their very first conference. Now, we have a tremendous opportunity to build on that reach and amplify that success with expanded programming and even more community elements.

If all goes as planned, the 2022 National Conference at the JW Marriott Grande Lakes in Orlando will be in-person, but will also be available virtually, as will nearly all programming going forward.

We thank you for your understanding and patience as we navigate the Foundation through these unusual times. We’ll release more details in the coming months, but please don’t hesitate to reach out if you have any questions. The OI Foundation can be reached by phone at (844) 889-7579 or by email at

Warm Regards,
Cameron Penn
President, OIF Board of Directors

OIF Welcomes Dr. Sandesh Nagamani as Newest OIF MAC Member

Sandesh Nagamani, MD

The OI Foundation is pleased to welcome Dr. Sandesh Nagamani as the newest member of the OI Foundation’s Medical Advisory Council (MAC). Dr. Nagamani, a longtime supporter of the Osteogenesis Imperfecta Foundation, has participated as a speaker at several OIF conferences and collaborated with fellow OI experts and researchers for many years. Continue reading “OIF Welcomes Dr. Sandesh Nagamani as Newest OIF MAC Member”

The OIF’s Art Auction is Now Open!


In honor of World Art Day, a group of very talented OI community members donated some of their most impressive artwork to the OI Foundation’s Art Auction. The auction is now open – don’t miss your chance to bid on your favorite pieces!

All proceeds will support the OI Foundation’s mission to improve the quality of life for those living with osteogenesis imperfecta. Visit to start bidding today!

COVID-19 Q&A: Nutrition

Eating Healthy during the COVID-19 Pandemic
Thursday, April 9, 2020 – 1:00pm EST

Ashley Reese, MMN, RDN, LMNT (Clinical Pediatric Dietitian) and Stefanie Sacks, MS, CNS, CDN (Culinary Nutritionist and Author of What the Fork Are You Eating?) joined OI community members to discuss Nutrition and Eating Healthy during the COVID-19 pandemic. Continue reading “COVID-19 Q&A: Nutrition”