OIF Welcomes Dr. Sandesh Nagamani as Newest OIF MAC Member

Sandesh Nagamani, MD

The OI Foundation is pleased to welcome Dr. Sandesh Nagamani as the newest member of the OI Foundation’s Medical Advisory Council (MAC). Dr. Nagamani, a longtime supporter of the Osteogenesis Imperfecta Foundation, has participated as a speaker at several OIF conferences and collaborated with fellow OI experts and researchers for many years.

Dr. Sandesh Nagamani is an Associate Professor in the Departments of Molecular and Human Genetics and Internal Medicine at Baylor College of Medicine, as well as a Brittle Bone Disorders Consortium Investigator. He is focused on translational research that involves evaluating new and potential therapies for various genetic disorders. Dr. Nagamani is a clinical geneticist and provides clinical care for adult patients with a wide variety of heritable conditions including OI, heritable disorders of bone, and other common forms of metabolic bone diseases.

OI Foundation Medical Advisory Council (MAC)
Even before the OI Foundation was officially incorporated, it benefited from the volunteer service of a team of medical advisors. From the beginning, the Medical Advisory Council (MAC) has been comprised of outstanding men and women who have experience in research and the many clinical care specialties related to OI. Over the years, MAC members have made discoveries that advanced our understanding of the genetics of OI and improved clinical care. Each MAC member is a leader in his/her special area of medical practice and has extensive experience in OI. All current MAC members have published in peer-reviewed medical journals.
MAC members volunteer their time and expertise to review OI Foundation publications, and to advise the OI Foundation’s CEO, staff and Board of Directors on the implications of new research discoveries and new medicines or treatments related to OI. They answer question from the OI community and from the medical community. They also attend meetings in their specialty areas as representatives of the OI Foundation. MAC members speak at OI Foundation national and regional conferences, participate in the OI Foundation’s annual scientific meeting and every three years in the International OI Scientific Meeting.

About the OI Foundation
The Osteogenesis Imperfecta Foundation (OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta. The Foundation’s mission is to improve the quality of life for people affected by OI through research to find treatments and a cure, education, awareness, and mutual support. The OI Foundation began in 1970 when a small group of parents from around the nation met in Chicago to discuss OI and its problems. At that time, they banded together to stimulate public and professional interest, support families and encourage research.

To learn more about the OI Foundation, visit www.oif.org