Registration is now open for the OIF Virtual Conference!

On July 10-11, 2021, the OI Foundation will host the 2021 Virtual OIF National Conference. The conference will provide live online versions of some of the most popular informational and social sessions at the biennial OIF National Conference, including Navigating a New Diagnosis, OIF Research Update, Pediatric and Adult Health Panels, Women’s Health, Ask the Expert, and more! To view the full program and to register to attend, please visit www.oif.org/virtualconference!

The Current State of OI Research: An Update for the OI Community

On Wishbone Day, Cameron Penn (President of the OIF Board of Directors) interviewed Dr. Brendan Lee (Principal Investigator for the Brittle Bone Disease Consortium (BBDC)). During this session, they discussed the history of the BBDC and current OI research, as well as answered audience questions. Watch this recorded session at https://youtu.be/UU-B7XCM45E.
More information on osteogenesis imperfecta (OI), the OIF, and the BDDC can be found at www.oif.org.

Special Virtual Office Hours Event: Mom, Me, & Tea

On Tuesday, May 11th, join OIF Health Educator, Jessica Ransome, for a special office hours event, Mom, Me, & Tea at 6:00 pm ET. Log on to learn more about the new OIF resource, Navigating a New Diagnosis: A toolkit for parents and medical professionals as well as the popular Bone China Tea fundraising campaign. This event is perfect for families with a new diagnosis interested in learning more about osteogenesis imperfecta and supporting the work of the OI Foundation.

Click here to register for the event or go to https://zoom.us/meeting/register/tJEpdu6vqTktH914AOK3jbG-Af5PuyDFIXDm.

Mother’s Day Honor Gift Campaign

From now until the end of May let a wonderful mother figure in your life know how much you appreciate them by making a gift in honor of them to the OI Foundation. We will send a special Mother’s Day card to the person that means everything to you! To make a Mother’s Day honor gift, visit www.oif.org/donate and select ‘Memorial or Honor Gift’ from the dropdown and then ‘Mother’s Day Honor Gift’ as gift type.

THE OIF POPCORN STORE IS OPEN!

The OI Foundation’s Double Good Popcorn Store is officially OPEN!

You can feel good about ordering these salty or sweet treats – not only will delicious popcorn be delivered to your doorstep, but 50% of sales will be donated to the OI Foundation! Double Good popcorn is a crowd favorite and perfect for gifts, so be sure to order a few extra for friends and family. With sixteen different flavor options, there is something for everyone!

CLICK HERE to place your popcorn order today.

The OIF popcorn store will close at 1:00pm EST on Friday, May 7, 2021

COVID-19 Vaccine Resources

The OI Foundation is making every effort to provide the most up to date information about the COVID-19 pandemic for the OI community. Results from the OIF’s second COVID-19 Survey  found that 81% of those not yet vaccinated say they will definitely or likely get the vaccine once available to them. We would like to encourage you to check out the  Vaccine Finder below to assist with searching for vaccines in your area. The Vaccine Finder is a resource operated by Boston Children’s Hospital and supported by the Centers for Disease Control and Prevention and the United States Digital Service. Resources like the Vaccine Finder are one of many included in the OIF’s COVID-19 Tookit.  If you have questions about COVID-19 and OI, please contact the OIF at bonelink@oif.org.

National Osteogenesis Imperfecta (OI) Awareness Week begins Saturday, May 1!

How will YOU raise OI awareness this week?
National OI Awareness Week is scheduled around Wishbone Day (May 6), the international day of OI awareness. There are so many ways to raise OI awareness during OI Awareness Week and Wishbone Day – check out some ideas below!

Raise OI Awareness 

Raise OI Awareness on Social Media
Last year, we reached more than 200,000 people on social media during National OI Awareness Week! We need your help to reach even more this year! Be sure to like and share our #SHAREforAWARENESS posts on Facebook, Twitter, and Instagram pages throughout the week!


Update your Facebook Profile Picture! 

Use your Facebook page to raise OI awareness! Click here to add a National OI Awareness Week frame to your Facebook profile picture!


Share Your OI Story

One of the best ways to raise awareness of osteogenesis imperfecta is to share your OI story and experiences. Gemma’s Corner, created in memory of OIF Founder Gemma Geisman, is a place where OI community members can share their OI story, as well as listen to others. Click here to listen to OI community member stories in Gemma’s Corner. We want to hear from you! To share your story, please record a 3 to 5 minute video and send it to jransome@oif.org. For more information, or if you need assistance recording or sending in your video, please contact the OI Foundation.


Support the OI Foundation

Create a Facebook Fundraiser
Invite your family and friends to join you in raising OI awareness and supporting the OI Foundation during National OI Awareness Week by creating a fundraiser for the OI Foundation on Facebook! Click here to get started!

Double Good Popcorn Fundraiser
Whether you are into salty or sweet, this awareness week fundraiser has something for everyone! Double Good popcorn is not only delicious but 50% of the sales go towards supporting the mission of the OI Foundation when you purchase from the OIF’s virtual popcorn store or create a store of your own! Here’s how to get started:

  1. Download the Double Good app
  2. Create your own pop up store using the OIF’s code: TJHSBQ
  3. Invite your friends and family to purchase popcorn from your pop up store in support of the OI Foundation from Monday, May 3 – Friday, May 7!

Interested in ordering Double Good popcorn? The OIF Popcorn store will be open May 3-7!

 

Bone China Tea
Bone China Tea participants can contribute to the OIF’s awareness, support and research efforts by enjoying a cup of tea in the comfort of their own home. The best part is, there is no event to plan! Simply invite your guests to enjoy a relaxing cup of tea at home and then make a gift to the OI Foundation with the money they may have saved by not going out to a real event.

While planning your Bone China Tea, you have the option to mail physical invitations to your guests, or hold the event completely online. Start planning your Bone China Tea event at www.oif.org/campaign/bonechinatea/


 

Mark Your Calendar

May 1, 2021
Virtual Bone China Tea Party

Sip, Sip, Hooray! Please join the staff of the OIF and OI community member, Susie Wilson, for a virtual tea party on May 1st for Bone China Tea Day during National OI Awareness Week. Bring your finest china and freshest baked good for warm conversation and togetherness on May 1 at 3:30pm ET. Dress to impress… your mug that is! During the event, we will take a poll of best teacup and the winner will receive a prize. All ages are welcome to attend. To register for the event, please visit www.oif.org/event/virtualbonechinateaparty/

May 6, 2021
Wishbone Day (International OI Awareness Day)

Wear your yellow in celebration of Wishbone Day! Each year on Wishbone Day, the OI Foundation shares facts about OI on social media every hour. Make sure you are following the OI Foundation on Facebook, Twitter, and Instagram so you can help us raise OI awareness worldwide by liking and sharing every #SHAREforAWARENESS and #OIstrong post!

May 6, 2021
The Current State of OI Research: An Update for the OI Community

There is more OI research being done now than ever before, and the complex findings and breakthroughs can be hard to decipher. Join the OIF in the first of a new series as we demystify and contextualize medical research in The Current State of OI Research: An Update for the OI Community. This series kicks off on Wishbone Day, May 6 at 6pm ET with a conversation between Cameron Penn, President of the OIF Board of Directors, and Dr. Brendan Lee MD, PhD, Principal Investigator of the Brittle Bones Disorders Consortium and OIF Medical Advisory Council Member. Click here to register to attend.

 

We can’t wait to celebrate National OI Awareness Week with you!