COVID-19 Vaccine Update Virtual Session

OIF Virtual Session: COVID-19 Vaccine Update

On November 17, 2021, Dr. Robert Sandhaus (pulmonologist and OIF Medical Advisory Council member) was joined by Admiral Rachel Levine, MD (Assistant Secretary of Health, US Department of Health and Human Services) to share COVID-19 vaccination news and guidelines for people with osteogenesis imperfecta. Watch the recording of this session at https://youtu.be/ytKvoElnbwY.

More OI Foundation resources can be found in the COVID-19 Toolkit.

 


 

Update from the CDC on Pediatric COVID-19 Vaccine  

The OIF’s Medical Advisory Council recommends following the Centers for Disease Control and Prevention (CDC) COVID-19 guidelines. The COVID-19 Toolkit is an ever-evolving resource, and it is our goal to provide community members with the most up to date medically verified information. The  CDC  released the media statement  CDC Recommends Pediatric COVID-19 Vaccine for Children 5 to 11 Years on Tuesday, November 3,  2021  which notes the following:  

Today, CDC Director Rochelle P. Walensky, M.D., M.P.H., endorsed the CDC Advisory Committee on Immunization Practices’ (ACIP) recommendation that children 5 to 11 years old be vaccinated against COVID-19 with the Pfizer-BioNTech pediatric vaccine. CDC now expands vaccine recommendations to about 28 million children in the United States in this age group and allows providers to begin vaccinating them as soon as possible. (Source: CDC Recommends Pediatric COVID-19 Vaccine for Children 5 to 11 Years) 

We encourage you to read the press release in its entirety at: CDC Recommends Pediatric COVID-19 Vaccine for Children 5 to 11 Years


Additional Resources: 

The  CDC  webpage section titled  COVID-19 Vaccines for Children and Teens includes information on vaccine dosage, preparation, side effect and much more.   

Upcoming  OIF Virtual Session: COVID-19 Vaccine Update

Please be sure to register for the upcoming OIF Virtual Session: COVID-19 Vaccine Update on  November 17, 2021 at 4:30pm ET

During this session, pulmonologist and OIF Medical Advisory Council member Dr. Robert Sandhaus will be joined by Admiral Rachel Levine, Assistant Secretary of Health for the US Department of Health and Human Services. During this virtual session, the OIF will ask questions about the current state of the COVID-19 pandemic within the US. Discussion topics will include new and emerging variants, booster shots, vaccine availability for children, and more. The speakers will also be answering audience-submitted questions from registration, so be sure to submit your questions on the registration form. You must register(free of charge) to attend. This session will be recorded and shared on the  OIF’s YouTube channel. 

CLICK HERE TO REGISTER  

We encourage you to reach out the OI Foundation with questions or concerns. Feel free to email  bonelink@oif.org   

Update from the Centers for Disease Control and Prevention on COVID-19 Booster Shots

Update from the Centers for Disease Control and Prevention on COVID-19 Booster Shots

The OIF’s Medical Advisory Council recommends following the Centers for Disease Control and Prevention (CDC) COVID-19 guidelines. The COVID-19 Toolkit is an ever-evolving resource, it is our goal to provide community members with the most up to date medically verified information. The Centers for Disease Control and Prevention released the CDC Statement on ACIP Booster Recommendations regarding the Pfizer-BioNTech COVID-19 booster shot recommendations on Friday, September 24th, 2021.

CDC recommends:

  • people 65 years and older and residents in long-term care settings should receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series,
  • people aged 50–64 years with underlying medical conditions should receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series,
  • people aged 18–49 years with underlying medical conditions may receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series, based on their individual benefits and risks, and
  • people aged 18-64 years who are at increased risk for COVID-19 exposure and transmission because of occupational or institutional setting may receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series, based on their individual benefits and risks.

(Source: https://www.cdc.gov/media/releases/2021/p0924-booster-recommendations-.html )

We would like to encourage you to read the press release in its entirety at:  CDC Statement on ACIP Booster Recommendations .

OI and Covid-19

Osteogenesis Imperfecta (OI), while primarily known as a bone disease leading to frequent fractures, is at its core a genetic defect in collagen manufacture, assembly, and/or quantity.  While collagen is important in the normal growth and mineralization of bone, collagen also makes up a large portion of the connective tissue of the lungs.  Individuals with OI have underlying lung disease due to these collagen defects and, in fact, respiratory failure is the major cause of death in individuals with OI.  Therefore, it is highly likely that individuals with OI who develop COVID-19 will get more severe disease than the general population and should therefore be included in the vaccine prioritization group that includes those with chronic lung disease such as COPD. (Source Resource: Sample Vaccine Letter)

Resource: Research on Pulmonary Health and OI
The connection between chronic lung disease and osteogenesis imperfecta has been shown in multiple studies. You can share the following articles with your doctor and relevant parties.

If you have questions about COVID-19 and OI, please contact the OIF at bonelink@oif.org.

COVID-19 Vaccine Booster Shots

Federal health officials have developed a plan to begin offering COVID-19 vaccine booster shots this fall, pending final FDA evaluation of third doses of the Pfizer and Moderna mRNA vaccines and formal recommendations from CDC’s Advisory Committee on Immunization Practices (ACIP).
Read the full joint statement at https://bit.ly/3sA6rg7.


New CDC Guidelines for People who are Immunocompromised  

New CDC Guidelines for People who are Immunocompromised 
The OIF’s Medical Advisory Council recommends following the Centers for Disease Control and Prevention (CDC) COVID-19 guidelines. TheCDC now recommends that people whose immune systems are moderately to severely compromised receive an additional dose of mRNA COVID-19 vaccine after the initial 2 doses. Having OI alone does not make a person immunocompromised. It is important to check with your doctor about receiving a third dose of the mRNA COVID-19 vaccine. Widespread vaccination is a critical tool to help stop the pandemic. Read CDC’s statement.


COVID-19: Delta Variant
The Centers for Disease Control and Prevention states the following in regards to COVID-19 Delta variant transmission rate and severity:
The Delta variant causes more infections and spreads faster than earlier forms of the virus that causes COVID-19. It might cause more severe illness than previous strains in unvaccinated people.

  • Vaccines continue to be highly effective at preventing hospitalization and death, including against this variant.
  • Fully vaccinated people with breakthrough infections from this variant appear to be infectious for a shorter period.
  • Get vaccinated and wear masks indoors in public spaces to reduce the spread of this variant.

(Source: https://www.cdc.gov/coronavirus/2019-ncov/variants/delta-variant.html)


COVID -19: Delta Variant and Mask Recommendation
The Centers for Disease Control and Prevention states “To maximize protection from the Delta variant and prevent possibly spreading it to others, wear a mask indoors in public if you are in an area of substantial or high transmission.” (Information from the Centers for Disease Control and Prevention website)

Here at the OIF we are pleased that our second COVID-19 survey results showed that 82% of respondents wear a mask or facial covering all the time when they are in public or indoors and unable to socially distance.

For more information about COVID-19, including the Delta variant, COVID-19 Vaccination Updates and Vaccine Finder resource, please visit the OIF’s COVID-19 toolkit at www.oif.org/category/covid19

COVID-19 Update: Delta Variant

The OIF’s Medical Advisory Council recommends following the Centers for Disease Control and Prevention (CDC) COVID-19 guidelines. The Centers for Disease Control and Prevention (CDC) notes the following: To maximize protection from the Delta variant and prevent possibly spreading it to others, wear a mask indoors in public if you are in an area of substantial or high transmission.

For more information about the Delta variant, visit the Centers for Disease Control and Prevention (CDC) resources below:

We are pleased that the OIF’s second COVID-19 survey results showed that 82% of respondents wear a mask or facial covering all the time when they are in public or indoors and unable to socially distance.

Vaccine Finder
We encourage you to check out the Vaccine Finder below to assist with locating COVID-19 vaccines in your area. The Vaccine Finder is a resource operated by Boston Children’s Hospital and supported by the Centers for Disease Control and Prevention and the United States Digital Service. Resources like the Vaccine Finder are one of many included in the OIF’s COVID-19 Toolkit.  If you have questions about COVID-19 and OI, please contact the OIF at bonelink@oif.org.

OIF’s COVID-19 Toolkit
The OIF’s COVID-19 toolkit provides information and resources related to the COVID-19 pandemic for all OI community members. The toolkit includes recordings of COVID-19 Q&A Community calls, the OIF’s COVID-19 surveys and survey results, and up-to-date information. Please visit the OIF’s COVID-19 toolkit at www.oif.org/category/covid19.

COVID-19 Vaccine Resources

The OI Foundation is making every effort to provide the most up to date information about the COVID-19 pandemic for the OI community. Results from the OIF’s second COVID-19 Survey  found that 81% of those not yet vaccinated say they will definitely or likely get the vaccine once available to them. We would like to encourage you to check out the  Vaccine Finder below to assist with searching for vaccines in your area. The Vaccine Finder is a resource operated by Boston Children’s Hospital and supported by the Centers for Disease Control and Prevention and the United States Digital Service. Resources like the Vaccine Finder are one of many included in the OIF’s COVID-19 Tookit.  If you have questions about COVID-19 and OI, please contact the OIF at bonelink@oif.org.

The Results Are In!

Tremendous thanks to the 649 community members who completed the OIF’s second COVID-19 survey. Our COVID-19 surveys are essential to tracking how the pandemic is impacting the OI community. To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.

Please watch out for survey number 3! To complete future surveys about OI, we highly encourage you to sign up for the OI Registry at www.oif.org/OIregistry to be the first to hear about these opportunities. For questions, contact the OIF via email: bonelink@oif.org or telephone: 301-947-0083.

To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.


   

Reminder – Stay Active!
The OI Foundation’s second COVID-19 Survey found that 61% of respondents are less physically active now than they were before the pandemic started. It is our goal to provide community members with resources to stay healthy during this time. We encourage you to check out the following informational resources on physical activity:

To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.

LAST CALL! COVID-19 Survey Closes Wednesday

As a follow-up to the survey in July 2020, the OI Foundation has created a second survey focused on how the COVID-19 pandemic continues to impact the OI community.

More than 500 OI community members have completed this survey. If you have not taken the survey yet, we need to hear from YOU! Please take a few minutes to complete the survey today to help the OIF better understand and serve the OI community in 2021. Survey results will be shared on the OIF website and Breakthrough newsletter this spring.

This survey will close on Wednesday, March 24, 2021.