The COVID-19 toolkit provides information and resources related to the COVID-19 pandemic for OI community members. If you have questions about COVID-19 and OI, please contact the OIF at email@example.com.
OIF Virtual Session: COVID-19 Vaccine Update DATE & TIME TBD
Due to the changing information and current COVID-19 updates, this virtual session has been postponed. More information about this session, including date and time, will be available as soon as possible.
Join the OI Foundation to hear updates on COVID-19 vaccination news and guidelines for people with OI. In this meeting, pulmonologist and OIF Medical Advisory Council member Dr. Robert “Sandy” Sandhaus will be joined by Dr. Rachel Levine, Assistant Secretary of Health for the US Department of Health and Human Services. During this virtual session, the OIF will ask questions about the current state of the COVID-19 pandemic within the US. Discussion topics will include new and emerging variants, booster shots, vaccine availability for children, and more. The speakers will also be answering audience-submitted questions from registration, so don’t miss out!
You must register (free of charge) to attend. When the date and time of this session are confirmed, you will be notified. This session will be recorded and shared on the OIF’s YouTube channel.
Federal health officials have developed a plan to begin offering COVID-19 vaccine booster shots this fall, pending final FDA evaluation of third doses of the Pfizer and Moderna mRNA vaccines and formal recommendations from CDC’s Advisory Committee on Immunization Practices (ACIP).
New CDC Guidelines for People who are Immunocompromised
The OIF’s Medical Advisory Council recommends following the Centers for Disease Control and Prevention (CDC) COVID-19 guidelines. TheCDC now recommends that people whose immune systems are moderately to severely compromised receive an additional dose of mRNA COVID-19 vaccine after the initial 2 doses. Having OI alone does not make a person immunocompromised. It is important to check with your doctor about receiving a third dose of the mRNA COVID-19 vaccine. Widespread vaccination is a critical tool to help stop the pandemic. Read CDC’s statement.
COVID-19: Delta Variant The Centers for Disease Control and Prevention states the following in regards to COVID-19 Delta variant transmission rate and severity: The Delta variant causes more infections and spreads faster than earlier forms of the virus that causes COVID-19. It might cause more severe illness than previous strains in unvaccinated people.
Vaccines continue to be highly effective at preventing hospitalization and death, including against this variant.
Fully vaccinated people with breakthrough infections from this variant appear to be infectious for a shorter period.
Get vaccinated and wear masks indoors in public spaces to reduce the spread of this variant.
COVID -19: Delta Variant and Mask Recommendation The Centers for Disease Control and Prevention states “To maximize protection from the Delta variant and prevent possibly spreading it to others, wear a mask indoors in public if you are in an area of substantial or high transmission.” (Information from the Centers for Disease Control and Prevention website)
Here at the OIF we are pleased that our second COVID-19 survey results showed that 82% of respondents wear a mask or facial covering all the time when they are in public or indoors and unable to socially distance.
For more information about COVID-19, including the Delta variant, COVID-19 Vaccination Updates and Vaccine Finder resource, please visit the OIF’s COVID-19 toolkit at www.oif.org/category/covid19
The OIF’s Medical Advisory Council recommends following the Centers for Disease Control and Prevention (CDC) COVID-19 guidelines. The Centers for Disease Control and Prevention (CDC) notes the following: To maximize protection from the Delta variant and prevent possibly spreading it to others, wear a mask indoors in public if you are in an area of substantial or high transmission.
For more information about the Delta variant, visit the Centers for Disease Control and Prevention (CDC) resources below:
We are pleased that the OIF’s second COVID-19 survey results showed that 82% of respondents wear a mask or facial covering all the time when they are in public or indoors and unable to socially distance.
We encourage you to check out the Vaccine Finder below to assist with locating COVID-19 vaccines in your area. The Vaccine Finder is a resource operated by Boston Children’s Hospital and supported by the Centers for Disease Control and Prevention and the United States Digital Service. Resources like the Vaccine Finder are one of many included in the OIF’s COVID-19 Toolkit. If you have questions about COVID-19 and OI, please contact the OIF at firstname.lastname@example.org.
OIF’s COVID-19 Toolkit The OIF’s COVID-19 toolkit provides information and resources related to the COVID-19 pandemic for all OI community members. The toolkit includes recordings of COVID-19 Q&A Community calls, the OIF’s COVID-19 surveys and survey results, and up-to-date information. Please visit the OIF’s COVID-19 toolkit at www.oif.org/category/covid19.
Dr. Robert Sandhaus, pulmonologist and member of the OIF’s Medical Advisory Council, answered common questions and concerns regarding people with OI and the COVID-19 vaccines. Watch this recorded session at https://youtu.be/p5KtdCw7X1Y.
The OI Foundation is making every effort to provide the most up to date information about the COVID-19 pandemic for the OI community. Results from the OIF’s second COVID-19 Survey found that 81% of those not yet vaccinated say they will definitely or likely get the vaccine once available to them. We would like to encourage you to check out the Vaccine Finder below to assist with searching for vaccines in your area. The Vaccine Finder is a resource operated by Boston Children’s Hospital and supported by the Centers for Disease Control and Prevention and the United States Digital Service. Resources like the Vaccine Finder are one of many included in the OIF’s COVID-19 Tookit. If you have questions about COVID-19 and OI, please contact the OIF at email@example.com.
Tremendous thanks to the 649 community members who completed the OIF’s second COVID-19 survey. Our COVID-19 surveys are essential to tracking how the pandemic is impacting the OI community. To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.
Please watch out for survey number 3! To complete future surveys about OI, we highly encourage you to sign up for the OI Registry at www.oif.org/OIregistry to be the first to hear about these opportunities. For questions, contact the OIF via email: firstname.lastname@example.org or telephone: 301-947-0083.
To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.
Reminder – Stay Active!
The OI Foundation’s second COVID-19 Survey found that 61% of respondents are less physically active now than they were before the pandemic started. It is our goal to provide community members with resources to stay healthy during this time. We encourage you to check out the following informational resources on physical activity:
Move Your Way®
Visit the U.S. Department of Health and Human Services webpage to learn about the Move Your Way campaign. They have a number of resources for adults, parents, and children including their Activity Planner At Home with options specific to the home environment.
To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.
As a follow-up to the survey in July 2020, the OI Foundation has created a second survey focused on how the COVID-19 pandemic continues to impact the OI community.
More than 500 OI community members have completed this survey. If you have not taken the survey yet, we need to hear from YOU! Please take a few minutes to complete the survey today to help the OIF better understand and serve the OI community in 2021. Survey results will be shared on the OIF website and Breakthrough newsletter this spring.
This survey will close on Wednesday, March 24, 2021.
The following is a statement from the OIF’s Medical Advisory Council regarding COVID-19 vaccines. As with any health decision, it is important to discuss with your physician before receiving this or any vaccine, especially if you have a history of allergic reactions after receiving vaccinations.
At the time of this statement, two vaccines (Pfizer and Moderna) have received emergency use authorization in the United States. In the general population, both vaccines seem to have similar safety profiles. Thus, it would be reasonable to think that the two vaccines are likely to have a similar safety profile in individuals with osteogenesis imperfecta. The Pfizer vaccine is approved for use in individuals ages 16 years and older; the Moderna vaccine is approved for individuals 18 years and older.
While some individuals may develop side effects after receiving the vaccine, the OIF’s Medical Advisory Council strongly recommends that individuals with OI who do not have any contraindications to receiving the vaccines, get the vaccination. A contraindication would be any symptom or condition you have that would make these vaccines inadvisable. This is especially relevant in individuals who are at risk for developing significant pulmonary complications. Both the Pfizer and Moderna vaccines are two dose vaccinations and it is important that you receive both doses of the vaccine to maximize the protection the vaccination offers you. Vaccination appears to protect about 95% of people from becoming infected with COVID-19. In individuals who got infected with COVID-19 despite receiving the vaccine, vaccination appears to reduce the severity of disease.
Currently, it is not known whether the vaccines can prevent transmission of the virus from person-to-person; thus, the OIF’s Medical Advisory Council urges people to follow all public health guidelines related to COVID-19 prevention, including wearing of face coverings, social distancing, and frequent washing of hands.
The OIF and the Medical Advisory Council strongly encourage you to talk with your physician before you receive this vaccine, especially if you have a history of allergic reactions after receiving other vaccinations or have a known allergy to any component that is present in the Pfizer and Moderna vaccines. We will update information as it becomes available, and as new vaccines from other companies are approved for use in the United States.
The OI Foundation hosted a second COVID-19 Vaccine Q&A on Thursday, February 11, 2021 at 6:00pm ET. Drs. Bottazzi, Lee, and Sandhaus shared updates on the COVID-19 vaccines and answered questions from OI community members. Discussion topics included anticipated new vaccines, social-distancing in 2021, and more.
Meet the Speakers
Maria Elena Bottazzi, PhD – Associate Dean of the National School of Tropical Medicine, Professor of Pediatrics, and Co-Director of Texas Children’s Center for Vaccine Development at Baylor College of Medicine. She is an internationally recognized vaccinologist, has published over 150 scientific papers, and co-chairs the New Vaccines and Therapeutics Taskforce of the Lancet Commission on COVID-19.
Brendan Lee, MD, PhD – Robert and Janice McNair Endowed Chair in Molecular and Human Genetics, Professor and Chairman, Department of Molecular and Human Genetics, Baylor College of Medicine
Robert A. Sandhaus, MD, PhD, FCCP – Pulmonologist, National Jewish Health