Update from the Centers for Disease Control and Prevention on COVID-19 Booster Shots

Update from the Centers for Disease Control and Prevention on COVID-19 Booster Shots

The OIF’s Medical Advisory Council recommends following the Centers for Disease Control and Prevention (CDC) COVID-19 guidelines. The COVID-19 Toolkit is an ever-evolving resource, it is our goal to provide community members with the most up to date medically verified information. The Centers for Disease Control and Prevention released the CDC Statement on ACIP Booster Recommendations regarding the Pfizer-BioNTech COVID-19 booster shot recommendations on Friday, September 24th, 2021.

CDC recommends:

  • people 65 years and older and residents in long-term care settings should receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series,
  • people aged 50–64 years with underlying medical conditions should receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series,
  • people aged 18–49 years with underlying medical conditions may receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series, based on their individual benefits and risks, and
  • people aged 18-64 years who are at increased risk for COVID-19 exposure and transmission because of occupational or institutional setting may receive a booster shot of Pfizer-BioNTech’s COVID-19 vaccine at least 6 months after their Pfizer-BioNTech primary series, based on their individual benefits and risks.

(Source: https://www.cdc.gov/media/releases/2021/p0924-booster-recommendations-.html )

We would like to encourage you to read the press release in its entirety at:  CDC Statement on ACIP Booster Recommendations .

OI and Covid-19

Osteogenesis Imperfecta (OI), while primarily known as a bone disease leading to frequent fractures, is at its core a genetic defect in collagen manufacture, assembly, and/or quantity.  While collagen is important in the normal growth and mineralization of bone, collagen also makes up a large portion of the connective tissue of the lungs.  Individuals with OI have underlying lung disease due to these collagen defects and, in fact, respiratory failure is the major cause of death in individuals with OI.  Therefore, it is highly likely that individuals with OI who develop COVID-19 will get more severe disease than the general population and should therefore be included in the vaccine prioritization group that includes those with chronic lung disease such as COPD. (Source Resource: Sample Vaccine Letter)

Resource: Research on Pulmonary Health and OI
The connection between chronic lung disease and osteogenesis imperfecta has been shown in multiple studies. You can share the following articles with your doctor and relevant parties.

If you have questions about COVID-19 and OI, please contact the OIF at bonelink@oif.org.

LAST CALL – The Impact Survey will close Sept 30!

Don’t miss your chance to make an IMPACT on the future of OI research! Complete the Impact Survey TODAY! 

Participate in the first-ever global OI survey to help us reach 2,000 participants and move OI research forward!
NOW is the time to complete the Impact Survey at www.impactsurveyoi.com. The survey will close on September 30th.

If you are an adult with OI, or a parent/caregiver of a child with OI, WE NEED TO HEAR FROM YOU! Complete the survey today at www.impactsurveyoi.com

Kids Social Zoom: OIF Virtual Costume Party

Kids Social Zoom:

OIF Virtual Costume Party

October 29th | 6pm EST

We had so much fun this summer during the kids zoom social at this year’s virtual conference! What better way to bring in the fall season than with a virtual costume party?

Join us Friday October 29th at 6pm EST for the Kids Social Zoom: Virtual Costume Party. Your child will have the opportunity to socialize with old friends and make new ones, play Halloween-themed ice breaker games, and so much more!

OI Research Announcement: Use of clear aligners…

The OI Foundation would like to bring your attention to a research study being conducted by the Brittle Bone Disorders Consortium.

The purpose of this study is to determine if it is safe to use Invisalign clear aligners in correcting the misalignment of teeth in people with OI. Clear aligners are transparent plastic trays that are designed to fit over your teeth. With each new tray, teeth are moved a little at a time until they reach the desired position. We plan to have approximately 57 people take part in this study.

For more information, please contact Dianne Nguyen (BBDC Project Manager) at (713)798-6694 or diannen@bcm.edu.


 

Don’t Miss Your Chance to Make an IMPACT on the Future of OI Research!

Don’t Miss Your Chance to Make an IMPACT on the Future of OI Research!

The IMPACT Survey is the first-ever international survey aimed at capturing and quantifying the real impact OI has on people’s lives. The results from this survey will be used to enable better healthcare services for both children and adults and to support availability of potential future treatments for OI. The Impact Survey will close at the end of this month.

If you have OI, or are a parent/caregiver of a child with OI, WE NEED TO HEAR FROM YOU!

Make an impact on the future of OI research by completing the Impact Survey TODAY at: www.impactsurveyoi.com

 

If you have any questions, please contact the OI Foundation at bonelink@oif.org.

Our Commitment to the OI Community

The OI Foundation has completed the initial phase of the OIF’s diversity, equity, and inclusion project. This first phase was designed to assess the OIF’s programs, activities, and business structures. With the help of diversity, equity and inclusion professional, Chaz Kellem, we conducted an  internal review of our programs and services to determine how we can be more inclusive as a Foundation in order to support the entire OI community.

Some of the goals of the OIF’s diversity, equity, and inclusion project are:
■ To evolve our OI community to reflect the demographics of the locations in which we serve
■ To make sure all members of the OI community are fully aware of and can access the full scope of OIF resources and services
■ To ensure every OI community member, staff member, and board member feels included and fully engaged

The next phase of this project will consist of incorporating OI Foundation staff training and development, business recommendations, board development, community engagement practices, and more. Please stay tuned for updates on this important project!

 

Research Updates for the OI Community

More research into OI is being done than ever before, and the complex findings and breakthroughs can be hard to understand. On Wishbone Day (May 6), the OIF launched an educational series to highlight and explain the work of the Brittle Bone Disorders Consortium (BBDC).

In the Current State of OI Research: An Update for the OI Community, Cameron Penn (President of the OIF Board of Directors) and Brendan Lee MD, PhD (Principal Investigator of the BBDC and OIF Medical Advisory Council Member) discussed the work of the BBDC and the landscape of OI research.


The second video in this series, Women’s Health and Pregnancy, was held on June 24 with Deborah Krakow, MD (OIF MAC member and Professor and Chair of Obstetrics and Gynecology at UCLA) and Tracy Hart (OIF CEO).

In both talks, the researchers emphasized the importance of the BBDC, how they approach researching OI, and the big questions they seek to answer. To view session recordings, please visit the OIF website (Video Resources page) or OIF YouTube channel.