OIF Podcast Series
Leaders in the OI Field on New Advances in Research and Treatment
The OIF’s podcast series, Leaders in the OI Field on New Advances in Research and Treatment, is a part of the OI Foundation’s campaign to increase outreach and educate medical professionals who treat individuals with osteogenesis imperfecta.
Clinical Research in the area of OI
Brendan Lee, M.D., Ph.DIdentifying New OI Genes and what they mean to Understanding OI
Multidisciplinary Care for the Pediatric Patient with OI
Gaps in Care and Information in Treating Adults with OI
Surgical Updates on Treating Children with OI
Pregnancy in Women with OI
Hearing Loss in Patients with Osteogenesis Imperfecta
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Linked Clinical Research Centers and their Effect on the Rare Bone Disease Research Community
Sandesh Nagamani, MD, FACMGThe Importance of Treating the “Whole” Person with OI
Michelle Fynan, PhDPulmonary Issues and OI
Robert A. Sandhaus, MD, PhD, FCCPTransitioning; Taking Charge of your Health as a Young Adult
Update on the Brittle Bone Disorders Consortium
Craniofacial and Dental Issues in OI
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Spinal Issues and Basilar Invagination Whom to Screen, How to Diagnose, When to Treat
Suken Shah, MDThe Spine in Patients with OI article
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Best Practices for Using Anesthesia in Patients with OI
Leelach Rothschild, MDFor closed captioning, click CC at the bottom right corner of the video
Physical and Occupational Therapeutic Strategies for Children with OI
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Physical and Occupational Therapeutic Strategies for Adults with OI
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A Reflection on the Status of OI Research and Clinical Care
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Disability Identity and OI
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Muscle Function in Mouse Models of OI
Myostatin Deficiency Partially Rescues the Bone Phenotype of Osteogenesis Imperfecta Model Mice
Decreasing Maternal Myostatin Programs Adult Offspring Bone Strength in a Mouse Model of Osteogenesis Imperfecta
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Treatment Implications in Genetic Heterogeneity in OI
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Measuring Efficacy of Physical Rehabilitation in Children and Adults
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Rodding Surgery and OI
Maegan Wallace, MDFor closed captioning, click CC at the bottom right corner of the video
What is Patient-Centered Outcomes Research (PCOR)?
Laura Tosi, MDFor closed captioning, click CC at the bottom right corner of the video
COVID-19 Q&A
Dr. Robert Sandhaus and Dr. Francis Glorieux
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COVID-19 Q&A: Mental Health and Self-Care Considerations
Dr. Kara Ayers and Dr. Michelle Fynan
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COVID-19 Q&A: Orthopedic Perspectives on OI
Dr. Jill Flanagan, Dr. Jeanne Franzone, and Dr. Maegen Wallace
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COVID-19 Q&A: Eating Healthy during the COVID-19 Pandemic
Ashley Reese, MMN, RDN, LMNT and Stefanie Sacks, MS, CNS, CDN
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Top 10 Culinary Tips During COVID-19
Nutrition Tips During COVID-19
Example Meal Template
COVID-19 Q&A Update (May 20, 2020)
Dr. Robert Sandhaus (pulmonologist at National Jewish Health) and Dr. Sandesh Nagamani (clinical geneticist at Baylor College of Medicine)
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Current Studies
Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.
