OIF Podcast Series
Leaders in the OI Field on New Advances in Research and Treatment
The OIF’s podcast series, Leaders in the OI Field on New Advances in Research and Treatment, is a part of the OI Foundation’s campaign to increase outreach and educate medical professionals who treat individuals with osteogenesis imperfecta.
Clinical Research in the area of OI
Brendan Lee, M.D., Ph.DIdentifying New OI Genes and what they mean to Understanding OI
Multidisciplinary Care for the Pediatric Patient with OI
Gaps in Care and Information in Treating Adults with OI
Surgical Updates on Treating Children with OI
Pregnancy in Women with OI
Hearing Loss in Patients with Osteogenesis Imperfecta
Click here for the podcast transcription
For closed captioning, click CC at the bottom right corner of the video
Linked Clinical Research Centers and their Effect on the Rare Bone Disease Research Community
Sandesh Nagamani, MD, FACMGThe Importance of Treating the “Whole” Person with OI
Michelle Fynan, PhDPulmonary Issues and OI
Robert A. Sandhaus, MD, PhD, FCCPTransitioning; Taking Charge of your Health as a Young Adult
Update on the Brittle Bone Disorders Consortium
Craniofacial and Dental Issues in OI
For closed captioning, click CC at the bottom right corner of the video
Spinal Issues and Basilar Invagination Whom to Screen, How to Diagnose, When to Treat
Suken Shah, MDThe Spine in Patients with OI article
For closed captioning, click CC at the bottom right corner of the video
Best Practices for Using Anesthesia in Patients with OI
Leelach Rothschild, MDFor closed captioning, click CC at the bottom right corner of the video
Physical and Occupational Therapeutic Strategies for Children with OI
For closed captioning, click CC at the bottom right corner of the video
Physical and Occupational Therapeutic Strategies for Adults with OI
For closed captioning, click CC at the bottom right corner of the video
A Reflection on the Status of OI Research and Clinical Care
For closed captioning, click CC at the bottom right corner of the video
Disability Identity and OI
For closed captioning, click CC at the bottom right corner of the video
Muscle Function in Mouse Models of OI
Myostatin Deficiency Partially Rescues the Bone Phenotype of Osteogenesis Imperfecta Model Mice
Decreasing Maternal Myostatin Programs Adult Offspring Bone Strength in a Mouse Model of Osteogenesis Imperfecta
For closed captioning, click CC at the bottom right corner of the video
Treatment Implications in Genetic Heterogeneity in OI
For closed captioning, click CC at the bottom right corner of the video
Measuring Efficacy of Physical Rehabilitation in Children and Adults
For closed captioning, click CC at the bottom right corner of the video
Rodding Surgery and OI
Maegan Wallace, MDFor closed captioning, click CC at the bottom right corner of the video
What is Patient-Centered Outcomes Research (PCOR)?
Laura Tosi, MDFor closed captioning, click CC at the bottom right corner of the video
COVID-19 Q&A
Dr. Robert Sandhaus and Dr. Francis Glorieux
Click here to download the video transcription.
For closed captioning, click CC at the bottom right corner of the video
COVID-19 Q&A: Mental Health and Self-Care Considerations
Dr. Kara Ayers and Dr. Michelle Fynan
Click here for session transcription.
For closed captioning, click CC at the bottom right corner of the video
COVID-19 Q&A: Orthopedic Perspectives on OI
Dr. Jill Flanagan, Dr. Jeanne Franzone, and Dr. Maegen Wallace
Click here to view the session transcription
For closed captioning, click CC at the bottom right corner of the video
Current Studies
Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.
