OIF Podcast Series and Video Resources
To view recordings of the 2020 and 2021 OIF Virtual Conference sessions, please visit the OIF’s YouTube Channel.
Clinical Research in the area of OI
Brendan Lee, M.D., Ph.DIdentifying New OI Genes and what they mean to Understanding OI
Multidisciplinary Care for the Pediatric Patient with OI
Gaps in Care and Information in Treating Adults with OI
Surgical Updates on Treating Children with OI
Pregnancy in Women with OI
Hearing Loss in Patients with Osteogenesis Imperfecta
Linked Clinical Research Centers and their Effect on the Rare Bone Disease Research Community
Sandesh Nagamani, MD, FACMGThe Importance of Treating the “Whole” Person with OI
Michelle Fynan, PhDPulmonary Issues and OI
Robert A. Sandhaus, MD, PhD, FCCPTransitioning; Taking Charge of your Health as a Young Adult
Update on the Brittle Bone Disorders Consortium
Craniofacial and Dental Issues in OI
Spinal Issues and Basilar Invagination Whom to Screen, How to Diagnose, When to Treat
Suken Shah, MDBest Practices for Using Anesthesia in Patients with OI
Leelach Rothschild, MDPhysical and Occupational Therapeutic Strategies for Children with OI
Physical and Occupational Therapeutic Strategies for Adults with OI
A Reflection on the Status of OI Research and Clinical Care
Disability Identity and OI
Muscle Function in Mouse Models of OI
Myostatin Deficiency Partially Rescues the Bone Phenotype of Osteogenesis Imperfecta Model Mice
Decreasing Maternal Myostatin Programs Adult Offspring Bone Strength in a Mouse Model of Osteogenesis Imperfecta
Treatment Implications in Genetic Heterogeneity in OI
Measuring Efficacy of Physical Rehabilitation in Children and Adults
Rodding Surgery and OI
Maegan Wallace, MDWhat is Patient-Centered Outcomes Research (PCOR)?
Laura Tosi, MDCOVID-19 Q&A
Dr. Robert Sandhaus and Dr. Francis Glorieux
Click here to download the video transcription.
COVID-19 Q&A: Mental Health and Self-Care Considerations
Dr. Kara Ayers and Dr. Michelle Fynan
Click here for session transcription.
COVID-19 Q&A: Orthopedic Perspectives on OI
Dr. Jill Flanagan, Dr. Jeanne Franzone, and Dr. Maegen Wallace
Click here to view the session transcription
COVID-19 Q&A: Eating Healthy during the COVID-19 Pandemic
Ashley Reese, MMN, RDN, LMNT and Stefanie Sacks, MS, CNS, CDN
Click here to view the full transcription.
Top 10 Culinary Tips During COVID-19
Nutrition Tips During COVID-19
Example Meal Template
COVID-19 Q&A Update (May 20, 2020)
Dr. Robert Sandhaus (pulmonologist at National Jewish Health) and Dr. Sandesh Nagamani (clinical geneticist at Baylor College of Medicine)
COVID-19 Q&A: Preparing for Your Telehealth Visit
Reid Sutton, MD and Laura Tosi, MD
COVID-19 Q&A: Mental Health during the COVID-19 Pandemic
Dr. Kara Ayers and Dr. Michelle Fynan
COVID-19 Q&A: Employment Accommodations
Gary Phelan and Michelle Duprey
COVID-19 Vaccine Q&A
Maria Elena Bottazzi, Ph.D., FASTMH; Brendan Lee, MD, PhD; Robert A. Sandhaus, MD, PhD, FCCP
COVID-19 Vaccine Q&A Update
Maria Elena Bottazzi, Ph.D., FASTMH; Brendan Lee, MD, PhD; Robert A. Sandhaus, MD, PhD, FCCP
COVID-19 Vaccine Information
Robert A. Sandhaus, MD, PhD, FCCP
The Current State of OI Research: An Update for the OI Community
Brendan Lee, MD, PhD and Cameron Penn
OI Research Update: Women’s Health and Pregnancy
Tracy Hart, CEO of the OI Foundation, and Dr. Deborah Krakow, OIF Medical Advisory Council (MAC) member
OI Research Update: Dental Health and Orthodontics
Tracy Hart and Dr. Jean-Marc Retrouvey
OIF YouTube Channel
SUBSCRIBE to the OIF’s YouTube channel to view the latest OIF video resources! The OIF channel features podcast episodes, COVID-19 community calls, virtual conference sessions, research updates, stories from OI community members and more!
