OIF Resources to Share with Your Doctor

The OI Foundation has resources for medical professionals.

Does your doctor or treatment team want to learn more about osteogenesis imperfecta? The OI Foundation has a variety of free resources intended to help improve medical professional understanding and treatment of people with OI. We encourage you to forward this email to let them know!

All of the OIF’s resources are created in close collaboration with our Medical Advisory Council members and other leading experts.

Medical Professional Emails 
Sign up to receive OIF medical professional emails to learn about upcoming events, programs, and resources to better understand and treat patients with osteogenesis imperfecta.

Professional Consultations
Finding knowledgeable colleagues to consult on patients with osteogenesis imperfecta can be challenging. The OIF is happy to connect any medical professional with members of our Medical Advisory Council (MAC) or other clinicians with expertise in treating patients with OI.

Medical Professional Database
The OIF maintains a list of medical professionals who have experience treating patients with osteogenesis imperfecta. Please contact the OIF’s Health Educator, Jessica Ransome, at jransome@oif.org if you would like to be added to this database or if you want to request information on other local clinicians

Medical Professional Calendar
The OIF maintains a calendar for medical professionals to keep track of upcoming medical professional events and meetings. To see this regularly updated list of public meetings, go to www.oif.org/medprocalendar/.

OIF Information Center
The OIF has a library of resources to help explain various topics about understanding, treating, and living with OI. The OIF Information Center includes factsheets and publications on genetics, respiratory issues, dental care, pregnancy, and much more.

TeleECHO Sessions and Recordings
The OI Foundation holds monthly TeleECHO Clinic sessions on rare bone disease and OI topics for medical professionals. In each session, an expert speaker delivers the main presentation on a rare bone disease topic, followed by discussion and participant-led case presentations. Medical professionals of all levels are welcome to attend and present cases, and we especially encourage early-stage clinicians to present cases. Free CME is available for all attendees. A full schedule of upcoming Rare Bone Disease TeleECHO sessions can be found here, and recordings of all past presentations can be found on the OIF’s YouTube channel. The OI ECHO is hoping to announce an update on its next year soon.

Educational Videos and Recorded Professional Meetings
The OIF has multiple videos of past professional meetings available on the OIF Youtube channel. This includes Rare Bone Disease and OI TeleECHO presentations, Rare Bone Disease Alliance Scientific Symposiums, and OI Research Updates. Also, we have a wide variety of patient-facing recordings, including sessions of past OIF National Conferences in English, Spanish, and French.

Wishbone Day 2022

The OI Foundation will be posting #WishboneDay posts every hour on the hour from 7:00am – 7:00pm ET. Be sure to LIKE, SHARE, AND RETWEET to help us spread OI awareness across social media! Make sure to wear yellow and follow the OI Foundation on Facebook, Twitter, and Instagram so you can help us raise OI awareness worldwide by liking and sharing every #SHAREforAWARENESS and #WishboneDay post!

We would love to see your photos! Please email your Awareness Week and Wishbone Day photos to the OI Foundation at bonelink@oif.org

Double Good Popcorn Store is back!

Double Good Popcorn Awareness Week Fundraiser
Whether you are into salty or sweet, this awareness week fundraiser has something for everyone! Double Good popcorn is not only delicious but 50% of the sales go towards supporting the mission of the OI Foundation when you purchase from the OIF’s virtual popcorn store or create a store of your own!

CLICK HERE TO SHOP NOW!

To create your own Double Good Popcorn Shop for the OI Foundation:
1. Download the Double Good app
2. Enter our Event Code VTNGKM in the app
3. Create your Pop-Up Store

The OIF Popcorn store will be open May 3-7 during National OI Awareness Week!

 

Breakthrough Newsletter: Spring 2022

 

Have you read the latest issue of the OIF’s Breakthrough newsletter? 

In this issue:

  • OIF National/Regional Conferences
  • National OI Awareness Week
  • OIF Programs for Medical Professionals
  • A letter from OIF Board of Directors President, Cameron Penn
  • Upcoming Events
  • COVID-19 Survey Results

CLICK HERE TO READ THIS ISSUE

 


 

COVID-19 Survey 3 Results

Thank you to all of the 577 OI community members who took the time to fill out the OI Foundation’s third COVID-19 survey! Our goal in gathering the community’s input is to provide feedback during the changing landscape of COVID-19 and direct the OIF’s resources where most needed. CLICK HERE to view the full survey results and important findings.

 

To complete future surveys about OI, we highly encourage you to sign up for the OI Registry at www.oif.org/OIregistry to be the first to hear about these opportunities.