The Strong Bones Virtual Gala ONLINE AUCTION IS LIVE!

The Strong Bones Virtual Gala Boston

ONLINE AUCTION IS LIVE!

Don’t miss your chance to win signed sports memorabilia, a catered BBQ dinner, private wine tastings, and so much more! In order to bid, make sure to create your Bidding for Good account prior to the event.

Proceeds from this event help the OI Foundation respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research.

Now more than ever, we rely on supporters like yourself to ensure we can continue this important work.

Click Here to Start Bidding!

Please tune in on October 10 at 8:00pm EST for a special video presentation that will include personal messages from OI community members, a live raffle, door prizes, and social hour hosted by OIF Board of Directors Member, Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!

With a new virtual platform, OI community members from across the world can sign on for a fun-filled evening to support the work of the OIF.

Click Here to Register for the FREE Event!

For more information or questions please contact Melissa Bonardi at MBonardi@oif.org or visit www.oif.org/StrongBonesBoston

Employment Accommodations and COVID-19

Employment Accommodations and COVID-19: Understanding your Legal Rights During the Pandemic

THURSDAY, OCTOBER 15, 2020 // 2:00 – 3:00pm EST

 
On Thursday, October 15, Gary Phelan and Michelle Duprey joined the OIF to discuss Employment Accommodations and COVID-19. Both of the speakers have extensive experience practicing law focusing on employment and disability discrimination. In this session, they discussed the ADA and shared best practices for getting accommodations at work related to COVID-19.

Attend an OIF Virtual Gala!

Fine Wines Strong Bones events help the OI Foundation raise funds that are necessary to respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research. We rely on events such as these to continue our important work.

While we are sad we cannot be together in person this year, the health and wellness of our OI community members comes first. With a new virtual platform, OI community members from across the US can sign on for a fun-filled evening to support the work of the OI Foundation.


Strong Bones Virtual Gala Boston
October 10, 2020 | 8:00 – 9:00 PM EST

On October 10, 2020 the OI Foundation will host its first-ever virtual Fine Wines Strong Bones event hosted by Board of Directors member Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!

This fun-filled evening will include an online auction, Zoom social hour, special video presentations, party packages from Sincere Cheer, and the opportunity to fund the mission of the OI Foundation!

Learn More!


Virtual Boots & Bling for Better Bones
November 7, 2020 | 7:00 – 8:00 PM CST

On November 7, 2020, dust off your favorite cowboy chic attire for the
Virtual Boots & Bling for Better Bones. All money raised goes directly to the OI Foundation to benefit the 50,000 men, women and children in the U.S. living with this rare genetic disorder.

This fun-filled evening will include an online auction, live performance from Weldon Henson, special video presentations, Goode Company BBQ, and opportunity to fund the mission of the OI Foundation!

Learn More!

For more information or questions please contact Melissa Bonardi at MBonardi@oif.org or visit www.OIF.org/Events.

Final Reminder: Survey Opportunities

Final Reminder: Survey Opportunities for the OI Community

The Osteogenesis Imperfecta Foundation would like to bring your attention to survey opportunities for OI community members.

Orthopedic Patient Survey

A group of orthopedic surgeons with extensive experience in treating OI have come together to learn more about the patient experience. Please take a moment to complete this survey. Your participation will help these OI experts better understand the needs of people living with osteogenesis imperfecta.

Please take 5-10 minutes to complete the survey by Sunday, October 18, 2020.

Complete the Survey


Rare Diseases Clinical Research Network COVID-19 Survey

How are you being impacted by the novel coronavirus pandemic?
Please complete a 20-minute online research survey from home to share your experiences. This study is being conducted by the NIH’s Rare Diseases Clinical Research Network. Is access to care changing? Can you get needed medical and nutritional supplies? Are stress and anxiety impacting you and your family? Your responses may help researchers understand the impacts of COVID-19 on the rare disease community.

Complete the Survey


 

Disclaimer: The OI Foundation is not involved in the design or management of this research, and as such, is neither endorsing nor supporting these surveys. The mission of the OIF is to keep the OI community informed of all relevant studies. This information is made available as a service to the OI community. We are available to answer questions on this or any other research announcement.

Please contact the OI Foundation at (301) 947-0083 or bonelink@oif.org.

What You Need to Know About Clinical Trials

*NEW OIF RESOURCE*
What You Need to Know About Clinical Trials

While the OI community and the entire world eagerly await a coronavirus vaccine, we want to briefly explain the importance of clinical trials and how people with OI can get involved in helping expand medical knowledge.

CLICK HERE to view the OI Foundation’s What you Need to Know About Clinical Trials fact sheet

OIF Young Investigators Symposium: Call for Abstracts!

OIF Young Investigators Symposium
Basic, Translational and Clinical Aspects of Osteogenesis Imperfecta and Other Rare Bone Disorders

The Osteogenesis Imperfecta Foundation (OIF) is seeking abstract submissions from young investigators working in the field of osteogenesis imperfecta (OI) and/or rare bone disease research to be presented at the 2020 OIF Young Investigator Symposium on Tuesday, November 17 from 5pm-8pm EST.

This virtual one-day meeting is being offered as a pre-meeting event for the 2020 International Conference on Children’s Bone Health’s Virtual Forum and is open to US and international participants. Investigators are welcome to submit abstracts to both meetings. Submissions for the Young Investigator Symposium will be reviewed by a scientific review committee and selected abstracts will be invited to present a 10-15 minute overview of their work with 5 minutes for questions from the audience. Investigators are encouraged to share novel findings.
For more information about the ICCBH Virtual Forum visit www.iccbh.org.


Date of Meeting: November 17, 2020 from 5pm-8pm EST

Deadline for Submission: October 1, 2020

To Apply: Click here for Abstract Submission Form or contact Erika Carter at ecarter@oif.org

To Attend: Click here to register to attend. Registration to attend the meeting is free of charge.


 

ELIGIBILITY

  • Must be a medical or graduate student
    • OR post-doctoral fellow
    • OR young faculty within 10 years of last graduate degree
  • Areas of research include, but are not limited to: Osteogenesis imperfecta, Paget’s disease of bone, Generalized Arterial Calcification of Infancy (GACI), Hypophosphatemia, Autosomal Recessive Hypophosphatemic Rickets (ARHR2), Osteopetrosis, Fibrodysplasia Ossificans Progressiva (FOP), Fibrous Dysplasia and McCune Albright Syndrome, Hypophosphatasia (HPP), Gorham-Stout Disease, Melorheostosis, Jansen’s disease, X-Linked Hypophosphatemia (XLH), Multiple Hereditary Exostoses (MHE), and Multicentric Carpotarsal Osteolysis Syndrome (MCTO)

The OI Foundation is committed to supporting research to help improve the quality of life for people living with OI. This often times includes engaging groups throughout the rare bone disease community, such as the Rare Bone Disease Alliance (www.rbdalliance.org). The OI Foundation is pleased to open this meeting to the entire rare bone disease research community.

Thank you, PanAmerican Seed!

Thank you, PanAmerican Seed! 
Last year, the plant breeders and researchers at PanAmerican Seed launched a selection of impatiens that displayed high resistance to Impatiens downy mildew – Beacon Impatiens. In the spirit of bringing light — and happiness! — to gardens everywhere, they pledged to donate 3% of sales during the 2020 season to the OI Foundation.

Last week, PanAmerican Seed presented a $55,943 donation to past OIF Board Member Tony Benish on behalf of the OI Foundation! Thank you so much for supporting the mission of the OI Foundation! Click here to learn more about PanAmerican Seed’s Beacon Impatiens.