The Results Are In! – OI Foundation

Tremendous thanks to the 649 community members who completed the OIF’s second COVID-19 survey. Our COVID-19 surveys are essential to tracking how the pandemic is impacting the OI community. To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.

Please watch out for survey number 3! To complete future surveys about OI, we highly encourage you to sign up for the OI Registry at www.oif.org/OIregistry to be the first to hear about these opportunities. For questions, contact the OIF via email: bonelink@oif.org or telephone: 301-947-0083.

To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.

Reminder – Stay Active!
The OI Foundation’s second COVID-19 Survey found that 61% of respondents are less physically active now than they were before the pandemic started. It is our goal to provide community members with resources to stay healthy during this time. We encourage you to check out the following informational resources on physical activity:

Exercise and Activity: Key Elements in the Management of OI
Osteogenesis Imperfecta Foundation Factsheet
Wheelchair-Based Exercises for People with Osteogenesis Imperfecta
Hospital for Special Surgery resource – includes a four-part series of videos
How to Be Physically Active While Social Distancing
Centers for Disease Control and Prevention resource
Move Your Way®
Visit the U.S. Department of Health and Human Services webpage to learn about the Move Your Way campaign. They have a number of resources for adults, parents, and children including their Activity Planner At Home with options specific to the home environment.

To read the full survey results report published in the the OIF’s Breakthrough newsletter, please click here.