OI Foundation Regional Conference: Washington, DC
The Westin Crystal City at Reagan National Airport
Join the OI Foundation for a Regional Conference on Saturday, June 10.
Virtual registration has closed, but space is still available! Please email Bonelink@oif.org if you want to attend.
This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pulmonary health, dentinogenesis imperfecta, chronic pain management in adults, and more. OI community members will also share personal experiences in panel discussions. Children under the age of 12 can attend for free, however, professional childcare will not be provided during the meeting.
Captioning and Spanish interpreters will be available for all sessions. Habrá un intérprete de español/inglés disponible.
Meeting Agenda
9:00am—9:30am Welcome Remarks: Update on OI Research and OIF Programs
Laura Tosi, MD, Meeting Chair, Children’s National Hospital
Tracy Hart, CEO, OI Foundation
Frank Rauch, MD, Canadian Shriner’s Hospital for Children
9:30am—10:15am PT/OT for Children and Adults: When Therapy Just isn’t Available
Christopher Joseph, PT, DPT, Kennedy Krieger Institute
Scott Frampton, OT, Kennedy Krieger Institute
10:15am – 10: 30am Break
10:30am—11:00am Dentinogenesis Imperfecta: Management Challenges in Children and Adults
Mudrika Chhabra, DMD, Children’s National Hospital
11:00am—11:45pm My Child is on Bisphosphonates: What Should I Expect When They Stop Growing?
Frank Rauch, MD, Canadian Shriner’s Hospital for Children
11:45am – 12:00pm Dr. Sandhaus Research Update (prerecorded)
Robert (Sandy) Sandhaus, MD, PhD, National Jewish Health
12:00pm—12:30pm Hearing: New Technologies to Address Hearing Loss
Alicia L. O’Sullivan, Au.D., South Shore Hearing Center
12:30pm-1:30pm Lunch – Discussion Tables
Topics Include: Mild OI, Orthopedics, Dental, PT/OT, and Bisphosphonates
1:30pm—2:00pm Osteoporosis Medications: Will the Medication Work for Me?
Eric S. Orwoll, MD, Oregon Health and Science University
2:00pm-3:00pm (Panel) Daily life with OI: travel, work, school, etc.
3:00pm – 3:30pm Upper Extremity Management
Jeanne Franzone, MD, Nemours/Alfred I. duPont Hospital for Children
Maegen Wallace, MD, University of Nebraska Children’s Hospital
3:30pm – 3:45pm Break
3:45pm—4:30pm BREAKOUT SESSIONS
Room 1: Multi-Disciplinary Chronic Pain Management for Adults
Mahim Jain, MD, PhD, Kennedy Krieger Institute
Room 2: (Panel) Growing up with OI
Frequently Asked Questions
Who is the OIF Regional Conference intended for?
OIF Regional Conferences are intended for OI community members and their families who live in the local area or region of the event. These are one-day meetings designed to provide opportunities to learn more about osteogenesis imperfecta and current treatment options. Individuals in the greater DC area with all types and severities of OI are welcome to attend.
Will I be able to speak with experts and have my health concerns addressed?
There will be a designated time during each session for Q&A, and we encourage everyone to ask questions and participate.
Will there be information on adult OI health?
Yes! When relevant, speakers will address both adult and pediatric health concerns.
How much does the OIF Regional Conference cost to attend?
Registration for adults is $50 per person, and free for children under the age of 12. Scholarship opportunities are available for attendees to cover registration costs. Please email Bonelink@oif.org to learn more.
Is the OIF Regional Conference: Washington, DC replacing the OIF National Conference?
No, it is not replacing the OIF National Conference. While OIF Regional Conferences have some similarities with OIF National Conferences, they are distinct programs with different goals. Regional Conferences are intended for local community members and highlight local resources and physician speakers in a shorter and more intimate meeting format.
Can I book a hotel room?
The OIF has reserved a small block of rooms at the Westin Crystal City at Reagan National Airport. You can find that link here.
How can I get to The Westin Crystal City?
The hotel is located by the DC Metro system, and garage and street parking are available. Garage parking is $20 per vehicle for registered attendees.
