OI Study: Evidera

Evidera, a company specialized in patient-centered outcomes research, are currently looking for individuals living with osteogenesis imperfecta (OI).

Please take a moment to read a message from Evidera below:

We are conducting a study to understand patients’ experiences of living with osteogenesis imperfecta (OI) and how symptoms, such as pain and fatigue, affect their everyday lives. This information will inform future clinical trials to ensure relevant patient experiences are captured.  The study does not involve treatments; we are only interested in opinions.

Those interested will be invited to take part in two 60 minute online or telephone qualitative interviews. We very much value and respect your time, so you will be compensated with a total amount of $250 ($125 per interview). Compensation will be placed onto an e-gift card.

If you have been diagnosed with OI or are the parent/caregiver of a child (8-17 years old) with OI and would like more information about the study, please contact Katherine Kirk via Katherine.kirk@evidera.com or +1 301 312 5386.