New this year, we are excited to feature captioning as well as live Spanish and French translation during the most popular informational sessions!
Category: Updates from the OIF
URGENT RECALL INFORMATION
URGENT RECALL INFORMATION: Supplemental oxygen or a positive pressure breathing device such as CPAP or BiPAP may be prescribed to help manage breathing problems in individuals with osteogenesis imperfecta. On June 14, 2021, the company Philips released a recall notification update. The recall notification update is related to some of their mechanical ventilator devices, Philips Bi-Level Positive Airway Pressure (Bi-Level PAP) and Continuous Positive Airway Pressure (CPAP).
We strongly encourage you to visit the following link to learn more about possible health risk, replacement and repair, recall notification advice and additional pertinent information related to this recall: June 14th, 2021 Recall Notification Update . The OI Foundation is committed to keeping OI community members informed and as any further notifications become available, we will provide updates.
For questions regarding the recall, please visit the Additional Information section at the following link: June 14th, 2021 Recall Notification Update. While the OI Foundation is NOT affiliated with the Philips Company, we are committed to providing up-to date information for our OI-Community members.
OIF E-News: June 2021
The June issue of the OIF E-Newsletter is here! Learn more about Virtual Conference, OI research, and updates from the OIF!
Click here to read this issue.
Happy #pridemonth!
This #pridemonth and all others, the OIF supports all members of the OI and LGBTQ+ community. The OIF strives to be an inclusive organization for all. To learn more about these long-term efforts, please join us for a special session at the OIF National Conference with diversity, equity, and inclusion consultant Chaz Kellem. To register to attend this session, please visit https://us02web.zoom.us/meeting/register/tZMsduGhqD4tEt0E5OwWJb6gclyk4rJXlnbN
OIF Virtual Conference Schedule
FRIDAY, JULY 9
7:00pm
Unbreakable Spirit® Trivia
SATURDAY, JULY 10
10:30-11:45am ET
Navigating a New Diagnosis
Sponsored by Ultragenyx Pharmaceutical
12:15-1:45pm ET
Welcome/ Research Update
2:00-4:00pm ET
Pediatric Health Panel
Sponsored by Shriner’s Canada
2:00-4:00pm ET
Kids Room
2:00-4:00pm ET
Adult Health Panel
sponsored by Kennedy Krieger Institute
4:30-5:30pm ET
Parents Meet and Greet
7:30-9:30pm ET
Adults Social Hour
SUNDAY, JULY 11
10:30-12:30pm ET
Ask the Expert
12:00-1:00pm
Fitness and OI
1:00-2:00pm ET
Mild OI Forum
Sponsored by Ultragenyx Pharmaceutical
2:15-3:15pm ET
Dental Session
3:30-5:30pm ET
Youth Forum Focus Group
3:30-5:30pm ET
Women’s Health Session
5:45-6:30pm ET
Closing Session
Introduction to Meditation
Join the OI Foundation on June 3 at 7pm ET for a guided introduction to meditation for the OI community with Sharon Trahan, former President of the OIF Board of Directors. For this virtual session, you will not need any special equipment or familiarity with meditation. Sharon does suggest you find a quiet space, free of distractions.
CLICK HERE to register!
OIF E-Newsletter: May 2021
The May issue of the OIF E-Newsletter is here! Learn more about Virtual Conference, new OIF video resources, and updates from the OIF!
Click here to read this issue.
COVID-19 Vaccine Information from an OI Expert
Dr. Robert Sandhaus, pulmonologist and member of the OIF’s Medical Advisory Council, answered common questions and concerns regarding people with OI and the COVID-19 vaccines. Watch this recorded session at https://youtu.be/p5KtdCw7X1Y.
Registration is now open for the OIF Virtual Conference!
On July 10-11, 2021, the OI Foundation will host the 2021 Virtual OIF National Conference. The conference will provide live online versions of some of the most popular informational and social sessions at the biennial OIF National Conference, including Navigating a New Diagnosis, OIF Research Update, Pediatric and Adult Health Panels, Women’s Health, Ask the Expert, and more! To view the full program and to register to attend, please visit www.oif.org/virtualconference!