URGENT RECALL INFORMATION

URGENT RECALL INFORMATION: Supplemental oxygen or a positive pressure breathing device such as CPAP or BiPAP may be prescribed to help manage breathing problems in individuals with osteogenesis imperfecta. On June 14, 2021, the company Philips released a recall notification update. The recall notification update is related to some of their mechanical ventilator devices, Philips Bi-Level Positive Airway Pressure (Bi-Level PAP) and Continuous Positive Airway Pressure (CPAP).   

We strongly encourage you to visit the following link to learn more about possible health risk, replacement and repair, recall notification advice and additional pertinent information related to this recall: June 14th, 2021 Recall Notification Update . The OI Foundation is committed to keeping OI community members informed and as any further notifications become available, we will provide updates.   

For questions regarding the recall, please visit the Additional Information section at the following link: June 14th, 2021 Recall Notification Update. While the OI Foundation is NOT affiliated with the Philips Company, we are committed to providing up-to date information for our OI-Community members.  

Happy #pridemonth!

This #pridemonth and all others, the OIF supports all members of the OI and LGBTQ+ community. The OIF strives to be an inclusive organization for all. To learn more about these long-term efforts, please join us for a special session at the OIF National Conference with diversity, equity, and inclusion consultant Chaz Kellem. To register to attend this session, please visit https://us02web.zoom.us/meeting/register/tZMsduGhqD4tEt0E5OwWJb6gclyk4rJXlnbN

OIF Virtual Conference Schedule

Check out the Virtual Conference program below and click the registration links for each session you would like to attend!

FRIDAY, JULY 9

7:00pm  
Unbreakable Spirit® Trivia


SATURDAY, JULY 10

10:30-11:45am ET
Navigating a New Diagnosis
Sponsored by Ultragenyx Pharmaceutical

12:15-1:45pm ET
Welcome/ Research Update

2:00-4:00pm ET
Pediatric Health Panel 
Sponsored by Shriner’s Canada

2:00-4:00pm ET
Kids Room

2:00-4:00pm ET
Adult Health Panel 
sponsored by Kennedy Krieger Institute

4:30-5:30pm ET
Parents Meet and Greet

7:30-9:30pm ET
Adults Social Hour


SUNDAY, JULY 11

10:30-12:30pm ET
Ask the Expert

12:00-1:00pm
Fitness and OI

1:00-2:00pm ET
Mild OI Forum 
Sponsored by Ultragenyx Pharmaceutical

2:15-3:15pm ET
Dental Session

3:30-5:30pm ET
Youth Forum Focus Group

3:30-5:30pm ET
Women’s Health Session

5:45-6:30pm ET
Closing Session

Registration is now open for the OIF Virtual Conference!

On July 10-11, 2021, the OI Foundation will host the 2021 Virtual OIF National Conference. The conference will provide live online versions of some of the most popular informational and social sessions at the biennial OIF National Conference, including Navigating a New Diagnosis, OIF Research Update, Pediatric and Adult Health Panels, Women’s Health, Ask the Expert, and more! To view the full program and to register to attend, please visit www.oif.org/virtualconference!

The Current State of OI Research: An Update for the OI Community

On Wishbone Day, Cameron Penn (President of the OIF Board of Directors) interviewed Dr. Brendan Lee (Principal Investigator for the Brittle Bone Disease Consortium (BBDC)). During this session, they discussed the history of the BBDC and current OI research, as well as answered audience questions. Watch this recorded session at https://youtu.be/UU-B7XCM45E.
More information on osteogenesis imperfecta (OI), the OIF, and the BDDC can be found at www.oif.org.