Check out the Virtual Conference program below and click the registration links for each session you would like to attend!
FRIDAY, JULY 9
7:00pm
Unbreakable Spirit® Trivia
SATURDAY, JULY 10
10:30-11:45am ET
Navigating a New Diagnosis
Sponsored by Ultragenyx Pharmaceutical
12:15-1:45pm ET
Welcome/ Research Update
2:00-4:00pm ET
Pediatric Health Panel
Sponsored by Shriner’s Canada
2:00-4:00pm ET
Kids Room
2:00-4:00pm ET
Adult Health Panel
sponsored by Kennedy Krieger Institute
4:30-5:30pm ET
Parents Meet and Greet
7:30-9:30pm ET
Adults Social Hour
SUNDAY, JULY 11
10:30-12:30pm ET
Ask the Expert
12:00-1:00pm
Fitness and OI
1:00-2:00pm ET
Mild OI Forum
Sponsored by Ultragenyx Pharmaceutical
2:15-3:15pm ET
Dental Session
3:30-5:30pm ET
Youth Forum Focus Group
3:30-5:30pm ET
Women’s Health Session
5:45-6:30pm ET
Closing Session
