Please take a moment to read a letter from OIF Board of Directors President Cameron Penn that was shared in the latest issue of the OIF’s Breakthrough newsletter.
Category: Updates from the OIF
Wishbone Day 2022
The OI Foundation will be posting #WishboneDay posts every hour on the hour from 7:00am – 7:00pm ET. Be sure to LIKE, SHARE, AND RETWEET to help us spread OI awareness across social media! Make sure to wear yellow and follow the OI Foundation on Facebook, Twitter, and Instagram so you can help us raise OI awareness worldwide by liking and sharing every #SHAREforAWARENESS and #WishboneDay post!
We would love to see your photos! Please email your Awareness Week and Wishbone Day photos to the OI Foundation at bonelink@oif.org
Double Good Popcorn Store is back!
Double Good Popcorn Awareness Week Fundraiser
Whether you are into salty or sweet, this awareness week fundraiser has something for everyone! Double Good popcorn is not only delicious but 50% of the sales go towards supporting the mission of the OI Foundation when you purchase from the OIF’s virtual popcorn store or create a store of your own!
To create your own Double Good Popcorn Shop for the OI Foundation:
1. Download the Double Good app
2. Enter our Event Code VTNGKM in the app
3. Create your Pop-Up Store
The OIF Popcorn store will be open May 3-7 during National OI Awareness Week!
National OI Awareness Week begins Tomorrow!
National OI Awareness Week is scheduled around Wishbone Day (May 6), the international OI Awareness Day. Each year during National OI Awareness Week, OI community members host events, tell their story, and share social media posts to raise OI awareness!
Breakthrough Newsletter: Spring 2022
Have you read the latest issue of the OIF’s Breakthrough newsletter?
In this issue:
- OIF National/Regional Conferences
- National OI Awareness Week
- OIF Programs for Medical Professionals
- A letter from OIF Board of Directors President, Cameron Penn
- Upcoming Events
- COVID-19 Survey Results
CLICK HERE TO READ THIS ISSUE
OIF E-Newsletter: April 2022
The April E-Newsletter is here!
Read about National OI Awareness Week, National and Regional OIF Conferences, New OIF Video Resources, COVID-19 Survey Results, Upcoming Events, and more at https://mailchi.mp/oif/april2022
COVID-19 Survey 3 Results
Thank you to all of the 577 OI community members who took the time to fill out the OI Foundation’s third COVID-19 survey! Our goal in gathering the community’s input is to provide feedback during the changing landscape of COVID-19 and direct the OIF’s resources where most needed. CLICK HERE to view the full survey results and important findings.
To complete future surveys about OI, we highly encourage you to sign up for the OI Registry at www.oif.org/OIregistry to be the first to hear about these opportunities.
NEW OI Awareness Apparel!
Order NEW OI awareness apparel from the OIF online store! With adult, youth, toddler, and infant sizes, there is something for everyone! Shop now at www.bonfire.com/store/oifstore.
To receive your order in time for Awareness Week (April 30 – May 7) and Wishbone Day (May 6), you must place your order by April 7, 2022.
OI Research Update: New Medical Treatments
This session is the fifth in a series meant to demystify and contextualize medical research from the Brittle Bone Disorders Consortium (BBDC). The BBDC is a multicenter initiative that focuses on understanding and providing better treatment options for osteogenesis imperfecta. The previous BBDC research updates can be viewed here
As a partner of the OIF, the BBDC has 3 major goals:
- Gain a better understanding of all genetic forms of OI
- Expand treatment options for those with OI
- Help guide the next generation of physicians and scientists.
This series is intended for anyone who wants to learn more about OI medical research. We hope you will attend a future session!
New study results on drug treatment for OI published in Journal of Clinical Investigation
The study, “Targeting transforming growth factor- β (TGF-β) for treatment of osteogenesis imperfecta” was led by OIF MAC Member Dr. Brendan Lee of Baylor College of Medicine. Click here to learn more about this study.
