NEW OIF Resources!

**NEW OIF RESOURCES**

The OI Foundation is excited to present two new resources for OI community members:

Navigating a New Diagnosis: A Tool Kit for Parents and Medical Professionals
This tool kit, sponsored in part by a memorial donation from Minnesota Neonatal Physicians in memory of Michael Johnston, covers topics including diagnosis of OI, types of OI, caring for a newborn with OI, and information to share with your doctor.

What You Need to Know About Clinical Trials
While the OI community and the entire world eagerly await a coronavirus vaccine, we want to briefly explain the importance of clinical trials and how people with OI can get involved in helping expand medical knowledge.

The Strong Bones Virtual Gala ONLINE AUCTION IS LIVE!

The Strong Bones Virtual Gala Boston

ONLINE AUCTION IS LIVE!

Don’t miss your chance to win signed sports memorabilia, a catered BBQ dinner, private wine tastings, and so much more! In order to bid, make sure to create your Bidding for Good account prior to the event.

Proceeds from this event help the OI Foundation respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research.

Now more than ever, we rely on supporters like yourself to ensure we can continue this important work.

Click Here to Start Bidding!

Please tune in on October 10 at 8:00pm EST for a special video presentation that will include personal messages from OI community members, a live raffle, door prizes, and social hour hosted by OIF Board of Directors Member, Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!

With a new virtual platform, OI community members from across the world can sign on for a fun-filled evening to support the work of the OIF.

Click Here to Register for the FREE Event!

For more information or questions please contact Melissa Bonardi at MBonardi@oif.org or visit www.oif.org/StrongBonesBoston

Employment Accommodations and COVID-19

Employment Accommodations and COVID-19: Understanding your Legal Rights During the Pandemic

THURSDAY, OCTOBER 15, 2020 // 2:00 – 3:00pm EST

 
On Thursday, October 15, Gary Phelan and Michelle Duprey joined the OIF to discuss Employment Accommodations and COVID-19. Both of the speakers have extensive experience practicing law focusing on employment and disability discrimination. In this session, they discussed the ADA and shared best practices for getting accommodations at work related to COVID-19.

Attend an OIF Virtual Gala!

Fine Wines Strong Bones events help the OI Foundation raise funds that are necessary to respond to more than 11,000 inquiries each year for medically verified information and support; produce new information resources for individuals and medical professionals; and fund research. We rely on events such as these to continue our important work.

While we are sad we cannot be together in person this year, the health and wellness of our OI community members comes first. With a new virtual platform, OI community members from across the US can sign on for a fun-filled evening to support the work of the OI Foundation.


Strong Bones Virtual Gala Boston
October 10, 2020 | 8:00 – 9:00 PM EST

On October 10, 2020 the OI Foundation will host its first-ever virtual Fine Wines Strong Bones event hosted by Board of Directors member Christine Wyman Rossi, former Board of Directors member Dick Wyman, and the rest of their amazing host committee for the 4th annual Strong Bones Virtual Gala Boston!

This fun-filled evening will include an online auction, Zoom social hour, special video presentations, party packages from Sincere Cheer, and the opportunity to fund the mission of the OI Foundation!

Learn More!


Virtual Boots & Bling for Better Bones
November 7, 2020 | 7:00 – 8:00 PM CST

On November 7, 2020, dust off your favorite cowboy chic attire for the
Virtual Boots & Bling for Better Bones. All money raised goes directly to the OI Foundation to benefit the 50,000 men, women and children in the U.S. living with this rare genetic disorder.

This fun-filled evening will include an online auction, live performance from Weldon Henson, special video presentations, Goode Company BBQ, and opportunity to fund the mission of the OI Foundation!

Learn More!

For more information or questions please contact Melissa Bonardi at MBonardi@oif.org or visit www.OIF.org/Events.

Final Reminder: Survey Opportunities

Final Reminder: Survey Opportunities for the OI Community

The Osteogenesis Imperfecta Foundation would like to bring your attention to survey opportunities for OI community members.

Orthopedic Patient Survey

A group of orthopedic surgeons with extensive experience in treating OI have come together to learn more about the patient experience. Please take a moment to complete this survey. Your participation will help these OI experts better understand the needs of people living with osteogenesis imperfecta.

Please take 5-10 minutes to complete the survey by Sunday, October 18, 2020.

Complete the Survey


Rare Diseases Clinical Research Network COVID-19 Survey

How are you being impacted by the novel coronavirus pandemic?
Please complete a 20-minute online research survey from home to share your experiences. This study is being conducted by the NIH’s Rare Diseases Clinical Research Network. Is access to care changing? Can you get needed medical and nutritional supplies? Are stress and anxiety impacting you and your family? Your responses may help researchers understand the impacts of COVID-19 on the rare disease community.

Complete the Survey


 

Disclaimer: The OI Foundation is not involved in the design or management of this research, and as such, is neither endorsing nor supporting these surveys. The mission of the OIF is to keep the OI community informed of all relevant studies. This information is made available as a service to the OI community. We are available to answer questions on this or any other research announcement.

Please contact the OI Foundation at (301) 947-0083 or bonelink@oif.org.

What You Need to Know About Clinical Trials

*NEW OIF RESOURCE*
What You Need to Know About Clinical Trials

While the OI community and the entire world eagerly await a coronavirus vaccine, we want to briefly explain the importance of clinical trials and how people with OI can get involved in helping expand medical knowledge.

CLICK HERE to view the OI Foundation’s What you Need to Know About Clinical Trials fact sheet