Join the OIF Book Club!

Join the OIF Book Club today and consider your weekend BOOKED!

The OIF Book Club is for students and readers alike who enjoy the company of a good book and want to help support the work of the OIF. Your participation directly support the OIF’s mission to improve the quality of life for those living with osteogenesis imperfecta through research, education, awareness and mutual support.

The more you read, the more money you raise, and the more prizes you can win! Visit www.oif.org/campaign/OIFBookClub for more information!

OIF Conference Update

After much consideration, we have decided to make the 2021 OIF National Conference a virtual affair.  The OIF Board of Directors, staff and medical professionals believe there’s still too much uncertainty surrounding travel and large gatherings, and letting this decision linger any longer could create unfair travel burdens or financial hurdles and those are the last things we want for our community.

The success we enjoyed in July with our first virtual National Conference made this decision even easier. Of the thousands who joined us from as far away as Australia, more than half of them were attending their very first conference. Now, we have a tremendous opportunity to build on that reach and amplify that success with expanded programming and even more community elements.

If all goes as planned, the 2022 National Conference at the JW Marriott Grande Lakes in Orlando will be in-person, but will also be available virtually, as will nearly all programming going forward.

We thank you for your understanding and patience as we navigate the Foundation through these unusual times. We’ll release more details in the coming months, but please don’t hesitate to reach out if you have any questions. The OI Foundation can be reached by phone at (844) 889-7579 or by email at bonelink@oif.org.

Warm Regards,
Cameron Penn
President, OIF Board of Directors
cameron@heyguymedia.com

OIF Welcomes Dr. Sandesh Nagamani as Newest OIF MAC Member

Sandesh Nagamani, MD

The OI Foundation is pleased to welcome Dr. Sandesh Nagamani as the newest member of the OI Foundation’s Medical Advisory Council (MAC). Dr. Nagamani, a longtime supporter of the Osteogenesis Imperfecta Foundation, has participated as a speaker at several OIF conferences and collaborated with fellow OI experts and researchers for many years. Continue reading “OIF Welcomes Dr. Sandesh Nagamani as Newest OIF MAC Member”

The OIF’s Art Auction is Now Open!

           

In honor of World Art Day, a group of very talented OI community members donated some of their most impressive artwork to the OI Foundation’s Art Auction. The auction is now open – don’t miss your chance to bid on your favorite pieces!

All proceeds will support the OI Foundation’s mission to improve the quality of life for those living with osteogenesis imperfecta. Visit www.oif.org/artauction to start bidding today!

COVID-19 Q&A: Nutrition

Eating Healthy during the COVID-19 Pandemic
Thursday, April 9, 2020 – 1:00pm EST

Ashley Reese, MMN, RDN, LMNT (Clinical Pediatric Dietitian) and Stefanie Sacks, MS, CNS, CDN (Culinary Nutritionist and Author of What the Fork Are You Eating?) joined OI community members to discuss Nutrition and Eating Healthy during the COVID-19 pandemic. Continue reading “COVID-19 Q&A: Nutrition”

COVID-19 Q&A; Orthopedic Perspectives on OI

COVID-19 Q&A: Orthopedic Perspectives on OI during the COVID-19 Pandemic with OI experts
Thursday, March 26, 2020

On Thursday, March 26, 2020 at 5:30 p.m. ET,  Jill Flanagan, MD (Children’s Healthcare of Atlanta), Jeanne Franzone, MD (Nemours/Alfred I. duPont Hospital for Children), and Maegen Wallace, MD (Children’s Hospital & Medical Center, Omaha) joined OI community members on a video meeting to discuss orthopedic perspectives on OI during the COVID-19 Pandemic.

Click here to view the full transcription of this recording.

To suggest a topic for upcoming COVID-19 Q&A video sessions, please email bonelink@oif.org.


COVID-19 Q&A: Mental Health and Self-Care

COVID Q&A; Mental Health and Self-Care during the COVID-19 Pandemic
Thursday, March 26, 2020

On Thursday, March 26, 2020 at 1:00 p.m. ET, the OI Foundation hosted a video meeting to connect OI community members with Dr. Kara Ayers (Associate Director of the University of Cincinnati Center for Excellence in Developmental Disabilities) and Dr. Michelle Fynan (Online Instructor at LA Film School, Online Coach and Therapist) to discuss mental health and self-care considerations during the COVID-19 pandemic.

Click here to view the transcription of this recording 

To suggest a topic for upcoming COVID-19 Q&A video sessions, please email bonelink@oif.org.