Donor Advised Funds Support the OIF Throughout the Year!

The Osteogenesis Imperfecta Foundation would like to thank those that are making donations through their donor advised funds. Your gifts made through donor advised fund providers like Fidelity Charitable, Schwab Charitable, Vanguard Charitable and T.Rowe Price Charitable are truly appreciated. We continue to update our Guidestar profile to ensure that you are provided with the most up to date information on the OIF but please also continue to visit our website at www.oif.org for information.

For those not familiar with a donor advised fund, here is some information that might be helpful. This information is taken from the Fidelity Charitable’s website as well as from articles written that compare donor advised fund providers.

A donor advised fund, or DAF, is like a charitable investment account for the sole purpose of supporting charitable organizations you care about…like the OIF! A DAF is an investment account that lets you take a tax deduction now and give the money to charity later. When you give money to a DAF, you can deduct that money just as you would deduct a charitable contribution. The DAF invests the money tax-free. At any time, you can direct the DAF to donate some or all of its holdings to the charity of your choice.

You can open a DAF through a donor-advised fund provider. A provider charges an administrative fee to invest your DAF and make donations in accordance with your recommendations. Donor advised funds are the fastest growing charitable giving vehicle in the United States because they are one of the easiest and most tax-advantageous ways to give to charity.

Roger Bache, an OIF donor through his donor advised fund says, “I have found donor advised accounts to be the easiest and most tax-advantageous way to give to charities. Among their many advantages, DAFs allow you to donate appreciated assets, which allows you to avoid long-term capital gains while taking the full tax deduction for your donation”.

How do I set up a donor advised fund and how do I direct my donations to the OIF?

  • If you have a brokerage account at Fidelity, Schwab, Vanguard or T. Rowe Price, the easiest thing to do is to open a DAF with your brokerage account. That way, you can manage all your investments in one place. Your advisor at your brokerage firm can assist you with setting up your charitable account.
  • Once you set up your account you can donate cash, stocks, or non-publicly traded assets into the account to be eligible for an immediate tax deduction to that account.
  • From that account you can then make a gift to the OIF at any time!

If you already have a DAF you can choose the Osteogenesis Imperfecta Foundation as your charity of choice…thank you!

If you have additional questions on donor advised funds you can call our office at 301-947-0083 or you can email us at bonelink@oif.org. Thank you again for supporting the OIF.

The OI Foundation is on TikTok!

The OI Foundation is now on TikTok!

As part of our commitment to connecting with the OI community and spreading awareness in new and engaging ways, we’ve joined TikTok! Be sure to follow us @oifoundation to stay updated with all the latest content and to join us in our mission to raise OI awareness.

How You Can Get Involved:

  1. Follow Us: Search for @oifoundation and hit that follow button!
  2. Engage: Like, share, and comment on our videos to help us reach more people.
  3. Participate: Use the hashtag #UnbreakableSpirit to spread the word.

Thank you for your continued support and for being a part of our community. Let’s make some noise on TikTok!

OI Research Grants

Michael Geisman Fellowship Grant

The Michael Geisman Fellowship Grant program awards funding to post-doctoral trainees who are currently working on projects with clear relevance to osteogenesis imperfecta (OI), or who have projects that will enable them to develop expertise in OI research.

Applicant Requirements:

  • Applicant must hold an MD, DDS, DO, or PhD, and be appointed at the level of a post-doctoral trainee, or equivalent, within an academic institution.
  • Applicant should have completed their Ph.D. or clinical training within the past five (5) years.

Fellowship Guidelines:

  • Michael Geisman Fellowship awards provide up to $50,000 per year. It is the intention of the OI Foundation that grant monies be used to fund actual costs related to the research being performed including Fellow salary, fringe benefits, and supplies.
  • Fellowship awards are for one year; a second year of funding may be approved based upon satisfactory performance during the first year of funding.
  • Research must be done under the supervision of mentor with training and experience in osteogenesis imperfecta research or research in a related field.

How to Apply:

  1. Complete application
  2. Mentor of applicant must submit a copy of his/her biosketch and a letter of recommendation on behalf of the trainee, which also confirms that the mentor will supervise the trainee’s research.
  3. Applications require two additional letters of recommendation from scientists or clinicians who can comment upon the applicant’s training, ability, and potential to develop expertise in OI research.
  4. Submit application, reference letters, and mentor biosketch as PDF documents to bonelink@oif.org NO LATER THAN October 21, 2024.

If you have any questions, please contact  bonelink@oif.org.

The application cycle is now closed

 


NEW! Francis Glorieux Research Fellowship Grant

New this year, the Canadian OI Society (COIS) is proud to announce the Francis Glorieux Research Fellowship for Medical Research. Funded by the COIS, this Research Fellowship honors the lifetime work and achievements of Dr Francis Glorieux, a current member of the OI Foundation’s Medical Advisory Council. Dr. Glorieux served as Chair of the OIF’s Medical Advisory Council from 2009-2024. His groundbreaking research into the treatment and care of OI patients and his commitment to the global community is world renowned. This Fellowship provides an opportunity for medical researchers to continue Dr. Glorieux’s legacy by making important and far-reaching contributions to OI research and the OI community.

The grant awards $75,000 CAD per year to post-doctoral trainees who are currently working on projects with clear relevance to osteogenesis imperfecta (OI), or who have projects that will enable them to develop expertise in OI research. Applications are due October 21, 2024. Special consideration will be given to Canadian applications.

Applicant Requirements:

  • Applicant must hold an MD, DDS, DO, or PhD, and be appointed at the level of a post-doctoral trainee, or equivalent, within an academic institution.
  • Applicants should have completed their Ph.D. or clinical training within the past five (5) years.

Fellowship Guidelines:

  • Francis Glorieux Research Fellowship awards provide up to $75,000 CAD per year. It is the intention of the Canadian OI Society (COIS) that grant monies be used to fund actual costs related to the research being performed including Fellow salary, fringe benefits, and supplies.
  • Fellowship awards are for one year; a second year of funding may be approved based upon satisfactory performance during the first year of funding.
  • Research must be done under the supervision of mentor with training and experience in osteogenesis imperfecta research or research in a related field.
  • Special consideration will be given to Canadian applications.

How to Apply:

  1. Complete the application. Applications are available in French and English.
  2. The mentor of applicant must submit a copy of his/her biosketch and a letter of recommendation on behalf of the trainee, which also confirms that the mentor will supervise the trainee’s research.
  3. Applications require two additional letters of recommendation from scientists or clinicians who can comment upon the applicant’s training, ability, and potential to develop expertise in OI research.
  4. Submit application, reference letters, and mentor biosketch as PDF documents to bonelink@oif.org NO LATER THAN OCTOBER 21, 2024. *Deadline Extended to November 4, 2024

The application cycle is now closed


 

OIF National Conference 2024

Thank you for joining us at OIF National Conference 2024 in Omaha, Nebraska!

We want to hear from you! Please take a moment to provide your feedback by filling out the OIF National Conference Evaluation Survey! Your feedback will help shape future OIF Conferences. Click here to complete the survey.

Recorded Sessions:

Please click the session titles below to watch session recordings.

Opening Session
*Keynote address will be available soon!*

Research Update

Understanding and Managing Pain in OI

OIF National Conference 2026 will take place at the Rosen Centre Hotel in Orlando, Florida!