The May issue of E-News is here! Read about the OIF National Conference, research updates, and upcoming OIF Events at https://mailchi.mp/oif/may2024
Month: May 2024
OIF E-Newsletter: April 2024
The April issue of E-News is here! Read about the OIF National Conference, research updates, and upcoming OIF Events at https://mailchi.mp/oif/enews-april2024 !
NEW Sexual Health and OI Factsheet
With the help of Michelle Fynan, PhD, LMHC and Deborah Krakow, MD, the OIF has recently published a medically verified Sexual Health and OI factsheet. The Sexual Health and OI factsheet covers sexual self-esteem, common concerns, considerations, sexual health wellness checks, focus on pleasure and more. To read the new Sexual Health and OI factsheet, click HERE
OI Research Update: Ultragenyx Orbit and Cosmic Phase 3 Study Enrollment is Complete
We are pleased to share exciting news from our partners at Ultragenyx. They have completed enrollment for their Phase 2/3 Orbit and Phase 3 Cosmic studies. These studies evaluate setrusumab (UX143) in both pediatric and young adult patients with osteogenesis imperfecta (OI).
“We would like to thank the OI community for its support, trust and participation as we complete this important step in the advancement of the setrusumab program,” said Eric Crombez, M.D., chief medical officer at Ultragenyx.
For more information about the studies and what this development means for our community, please visit https://ir.ultragenyx.com/news-releases/news-release-details/ultragenyx-announces-completion-enrollment-phase-3-orbit-and
