Month: December 2021

Edible Invitation: Clean Cooking, Clean Eating, A Demo + Dialogue RECORDING AVAILABLE

Posted on by OI Foundation

On December 6th, Culinary Nutritionist, Stefanie Sacks, MS, CNS, CDN hosted a community call titled Edible Invitation: Clean Cooking, Clean Eating, A Demo + Dialogue with OI community member, Susie Wilson, as her cooking partner. During this call, Stefanie explored adaptable culinary techniques, one-pot meals, food storage ideas and more. To watch the recording, click here.

For a copy of the recipe, please go to www.oif.org/edibleinvitation.

Shop Now to Donate This Holiday Season!

Posted on by OI Foundation

Shop Now to Donate This Holiday Season!

You Shop, Amazon Donates!

Are you holiday shopping on Amazon.com this year? Make sure your account is set to support the OI Foundation!

When you shop using AmazonSmile, you’ll find the exact same low prices and convenient shopping experience as Amazon.com, with the added benefit that AmazonSmile will donate to the OI Foundation.

Shop in the Amazon app! Simply follow these instructions to turn on AmazonSmile and start generating donations for the OI Foundation:

  1. Open the Amazon Shopping app on your device
  2. Go into the main menu of the Amazon Shopping app and tap into ‘Settings’
  3. Tap ‘AmazonSmile’ and follow the on-screen instructions to complete the process

Start shopping at smile.amazon.com/ch/23-7076021! 

Shop NEW OIF Merchandise!

Gift Unbreakable Spirit® apparel to friends, family, and yourself! 

When you order from the OIF’s online store, you are helping the OIF move forward in our mission to improve the quality of life for those living with OI. Shop the new items of the OI Foundation’s online store today at www.oif.org/shop!

Click here to shop now!

OIF Research Update: Mental Health and OI

Posted on by OI Foundation

Thursday, November 18, 2021   |   6:00 PM

During this session, Dr. Reid Sutton (Geneticist at Baylor College of Medicine and OIF Medical Advisory Council member) and Dr. Eric Storch (Vice-Chair and Head of Psychology at Baylor College of Medicine) share their experience working with the OI community, outline the new study the BBDC is undertaking around mental health, and explain what they hope to learn. Click here to watch the recording of this session.

This session is the fourth in a series meant to demystify and contextualize medical research from the Brittle Bone Disorders Consortium (BBDC). The BBDC is a multicenter initiative that focuses on understanding and providing better treatment options for osteogenesis imperfecta. The previous BBDC research updates can be viewed here

As a partner of the OIF, the BBDC has 3 major goals:

  1. Gain a better understanding of all genetic forms of OI
  2. Expand treatment options for those with OI
  3. Help guide the next generation of physicians and scientists.

This series is intended for anyone who wants to learn more about OI medical research. We hope you will attend a future session!