The OI Foundation and OI Federation of Europe (OIFE) have partnered on a new project investigating the experience of pain for people with OI. The following survey investigates the experience of pain for people with OI. This survey is for anyone 18 years old or older and was written with input from OI experts from North America and Europe.
Through this survey, the international Pain and OI Project hopes to learn more about the different types of pain people experience, severity of pain and frequency, and how it impacts people’s lives. Findings from this survey will be published online and presented at OIFE’s Topical Meeting, “Balancing Life with OI” in Stockholm, Sweden from June 9-10, 2023.