As the lead patient advocacy organization of the Brittle Bone Disorders Consortium (BBDC), part of the NIH’s Rare Diseases Clinical Research Network, the OIF is pleased to announce that the BBDC has been funded for an additional five years.
For the past five years, the BBDC has been funded as part of the Rare Diseases Clinical Research Network.
The goal of the initiative is to better understand all genetic forms of OI, expand treatment options and train the next generation of physicians and scientists to study OI. Baylor College of Medicine serves as the lead site of the 14 BBDC centers. Research sites are located across the United States and Canada.
“The formation of the consortium has been transformational in furthering OI research,” said Dr. Brendan Lee, the Principal Investigator of the BBDC from Baylor College of Medicine. He added, “With this new funding we will be able to continue learning about this disorder and finding better ways to treat those who are living with it.”
As the lead patient advocacy organization partner, the OIF will expand on the outreach to medical professionals and constituents through the various online learning portals housed on the OIF’s website as well as continue to provide opportunities for scientists and OI researchers to connect and collaborate. Click here to learn more about the successful work completed in the first cycle of the BBDC and information on upcoming research studies and opportunities for participation.