Join us for the Osteogenesis Imperfecta Foundation (OI) National Conference on July 19-21, 2024!

More than 600 members of the OI community will come together for three days of specialized sessions on managing OI, free medical consultations, and fun social events for attendees of all ages! The entire conference will take place at the Hilton Omaha in Omaha, NE.

CONFERENCE DETAILS

Adult (18 years old and older)
Adult Early Bird – $175
Adult Regular – $190

Child with childcare (12months to 12 years old)
Child Early Bird – $150
Child Regular – $165

Child without childcare (3 to 17 years old)
Child Early Bird – $100
Child Regular – $115

Infant without childcare (2 year and under)
Free

Early bird registration ends April 30, 2024

 

 

Here at the OIF we do everything we can to keep conference fees as low as possible. Even with our fundraising efforts, we know attending the OIF National Conference can be a big expense for many people. Here are the current programs that can help with the costs:

  • Jeanie Coleman Impact Grants
    Applications are now closed
  • Kasper/Kendall Conference Scholarships
    Applications are now closed.

 

Help the Osteogenesis Imperfecta Foundation raise awareness by joining members of the OI community at the OI Foundation’s National Unbreakable Spirit® Walk-n-Wheel in conjunction with the OI Foundation’s biennial National Conference on July 19, 2024 in Omaha, Nebraska!

STEP 1
Register as an individual, start a new team or join an existing team and follow the prompts to register yourself as a participant. Sign up as a Team Captain and recruit everyone you know, come up with a fun name, and motivate each other!

STEP 2
Set your fundraising goal that you wish to reach by the walk-n-wheel on July 19, 2024. We’ve written a little bit to get you started, but you should take a moment to personalize your page with your story and a picture of yourself. Be sure to keep your page updated and share often!

STEP 3
Invite your friends and family to support you by joining your team or making a donation to help you meet your goal. We’ve created some template emails but telling your personal story will always have a greater impact! Share your page on social media and send out emails to all your family and friends to invite them to support you with a donation.

CLICK HERE TO GET STARTED!

Hilton Omaha
1001 Cass St
Omaha, NE 68102

The full OIF Conference will take place at the Hilton Omaha. The hotel is offering registered conference attendees a discounted room rate of $129 per night.

To ensure everyone registered for the conference is able to take advantage of the discount, Conference attendees MUST be registered for the OIF National Conference in order to receive the discounted hotel room rate of $129 per night.

Reservations must be made on or before June 27, 2024.

To request an accessible room this year, YOU MUST CONTACT THE OIF DIRECTLY. DO NOT REQUEST ADA ROOMS THROUGH THE HOTEL. The hotel is unable to guarantee an ADA reservation, they are only able to accept a ‘request’. The only way to guarantee an ADA room is through the OIF directly. Once you have registered, please email bonelink@oif.org or call 301-947-0083. ADA rooms will be assigned in order of request. To ensure that you receive an ADA room, please consider registering and submitting your request as early as possible.

Please remember that with every hotel, there are a limited number of ADA rooms available. Please be considerate to fellow attendees and only book an ADA room if a standard room cannot accommodate your needs. ADA rooms are available on a first come, first serve basis, and will sell out early! Remember, the hotel can provide you with certain items like hand-held shower heads and shower stools free of charge (but based on availability) to help make a standard room more accessible.

Guest Room measurements are as follows:

Standard Room
Exterior Door: 36”
Bathroom Door: 30”
Bathroom Vanity Height: 35 ¾”

ADA Room
Exterior Door Width – 36″
Bathroom Door Width – 34 1/2”
Bathroom Counter Height –  33”


Hotel Parking
$22 overnight or $3 per hour with a daily max of $25

Travel

The Hilton Omaha is located approximately 2 miles from OMA Omaha Eppley Airfield Airport.

Airport Transportation to Hotel
A complimentary accessible shuttle is available from The Hilton Omaha.

Airport Security
For information about Federal regulations governing the use of oxygen and mobility aids in airports and on planes, visit the Transportation Safety Authority’s website at http://www.tsa.gov/travel

Traveling with Oxygen
For information about regulations governing the use of oxygen in airports and on planes, visit the Transportation Safety Authority’s website at http://www.tsa.gov/ and search for the word “oxygen.”

 

Resources for Travelers with Disabilities

Accessible Travel 101 Webinar

Wheelchair Travel Guide by Aaron Busch

Travel Agents – American Society of Travel Agents, or Accessible Journeys

Train- Amtrak’s Accessible Travel Services

Bus- Greyhound’s Customers with Disabilities page

Rental Vans- http://www.wheelchairgetaways.com/

Wheelchair and oxygen rentals –  http://www.disabilitytravel.com/

Websites and vendors listed on this page should not be considered an endorsement or recommendation by the OI Foundation. They are offered for informational and comparison purposes only.

Welcome to Camp Unbreakable Spirit® sponsored by:

Once again, ACCENT on Children’s Arrangements, Inc. has planned an exciting children’s activity center for the children (ages 12 months – 12 years) of conference attendees.

ACCENT is a nationally recognized professional childcare company organized to provide on-site children’s activities in a nurturing, safe and educational environment. Their staff will be trained in the special needs of children with OI and the childcare center will be conveniently located in the conference hotel.

Saturday, July 20 8:30am-5:30pm
Sunday, July 21 8:30am-5:30pm

To register your child for Childcare, you must first register yourself, then Add a Family Member and select Registration Type: “Child with Childcare.”

Space for Childcare is extremely limited so be sure to register early!

For questions or additional information, contact ACCENT on Children’s Arrangements, Inc.
by email at registration@accentoca.com or by phone at (504) 524-0188

The OI Foundation Medical Consultation Day offers families and adults with OI the opportunity to have a face-to-face meeting with a physician or physical therapist who has extensive experience with OI. A consultation is a conversation, no exams can be given. It is the chance to get questions answered, to have a test or diagnostic letter explained or to get a second opinion about a treatment.
There are many medical consultants from a variety of specialized fields available to choose from. Each attendee may request up to three appointments with the specialists of their choice. Each appointment lasts 20 minutes. The program runs from 8:30am until 3pm on Friday, July 19th.

Important Information:

  • Appointments are free of charge
  • Each appointment is 20 minutes long
  • All appointments are held in the conference hotel ballroom
  • No examinations are allowed; only conversation
  • Appointments are limited – each person will receive time with one or two of the
    specialists depending on the number of people who submit a request
  • Adults and Parents must be registered for the National Conference by June 1st, 2024 to receive a priority appointment

To request an appointment, make sure to select Medical Consultations when you register and then fill out this form and return it to the OIF. Appointment times will be assigned in the spring. 

Medical Consultation Appointment Request Form

Omaha is known for its pioneer history, museums and cultural centers.

Things to do in Omaha, NE:

Gene Leahy Mall
A longtime and iconic feature of downtown Omaha, Gene Leahy Mall is the most urban of The RiverFront’s three parks, spanning from 13th to 8th streets between Douglas and Farnam streets. The entire area was redesigned in 2019 adding over 40,000 square feet of lawn space in the heart of Omaha’s urban core. Along with the preservation of park artifacts, The RiverFront renovations also added a number of new features including a performance pavilion for live music, a sculpture garden filled with interesting works of art, a state-of-the-art playground and a modern dog park.

Kiewet Luminarium
With more than 100 interactive exhibits, a kaleidoscope of engaging programs, and weekly special events, there will always be more to explore at Kiewit Luminarium.

Heartland of America Park
Located at the corner of 8th and Farnam Street, in the newly renovated Heartland of America Park, the Skate Ribbon offers year-round skating options for the community. Roller Skating is open and free to anyone bringing their own equipment. Use the link above to access your skate waiver before arriving. Make sure to check in at the Skate Kiosk prior to entering the Skate Ribbon to verify the skate waiver has been completed.

Skate Rentals are available. For adults, skates can be rented for $5 while children 12 and under can rent skates for $4.

Henry Doorly Zoo
Unleash your sense of wonder across 160 acres of plants, animals and unique habitats from around the world right here in Omaha, Nebraska.

CONFERENCE PROGRAM

  • 10:00am - 4:00pm

    Women's Wellness Forum

    Join OI community members and OI experts to discuss Women's Wellness topics in this forum. You can register for the OIF Women's Wellness Forum while registering for the OIF National Conference.


  • *Program is subject to change and will be updated regularly


  • 8:30am - 3:00pm

    Medical Consultations

    The OI Foundation Medical Consultation Day offers families and adults who have OI the opportunity to have a face-to-face meeting with a physician or physical therapist who has extensive experience with OI. It is the chance to get questions answered, to have a test or diagnostic letter explained or to get a second opinion about a treatment.
    There are many medical consultants from a variety of specialized fields available to choose from. Each attendee may request up to three appointments with the specialists of their choice. Each appointment lasts 20 minutes.

    Appointments will be assigned in the spring.


    Click Here For Registration
  • 2:00pm - 3:00pm

    The Basics of OI

    This session is an introduction to osteogenesis imperfecta for individuals and families with a new diagnosis, for first-timers to the OIF National Conference, and for those who want a refresher on the basic facts about OI.


  • 3:30pm - 5:00pm

    Opening Session

    Welcome to the 2024 OIF National Conference. Join OI Foundation CEO, Tracy Hart as we celebrate being "Together Again!"
    (closed captioning)


  • 6:00pm - 7:00pm

    National Unbreakable Spirit Walk-n-Wheel

    Join your fellow National Conference attendees at the Lewis & Clark Landing to walk or wheel along Omaha's famous waterfront.


  • 8:00pm - 9:00pm

    Teen Room Ice Breaker

    Get to know your fellow teens in the teen room with an evening of ice breaker activities.


  • *Program is subject to change and will be updated regularly


  • 7:00am - 8:00am

    Movement Moment

    Join OI Community member, Tony Jacobsen to get start your day with some fun stretch and movement exercises.


  • 7:00am - 9:00am

    Breakfast

    Complimentary continental breakfast for all registered Conference attendees


  • 9:00am - 10:30am

    Research Update

    Hear about the latest research priorities including an update from Brittle Bone Disorders Consortium, pain study, adult health & transition, and clinical trials.
    (closed captioning)


  • 10:45am - 12:30pm

    Pediatric and Adult Physician Panels

    Attendees can choose one of two large group panel sessions featuring OI experts discussing pediatric issue with OI or adult issues with OI.


  • 2:00pm - 3:15pm

    Breakout Sessions

    Rodding Surgery for Children Living with OI
    Genetics and You
    Physical Therapy
    Mental Health, Stress Management, and Living with a Chronic Disorder (closed captioning)


  • 2:00pm - 4:00 pm

    Mild OI Forum

    Hear from a panel of OI community members and physicians about their experiences with mild OI.


  • 3:30pm - 4:45pm

    Breakout Sessions

    Cardiopulmonary Health in Children and Adults with OI
    Medical Management


  • 3:30pm - 5:30pm

    Peer to Peer Sessions

    Break into small groups of your peers to ask for advice and discuss your experiences.

    Peer groups may include: parents, siblings, young adults, men, etc. If you would like to guide a peer group, please contact bonelink@oif.org


  • 5:30pm - 7:30pm

    Adult Happy Hour

    Gather with your fellow adults, 21-years and older in the hotel lobby bar. Attendees are responsible for purchasing their own drinks and snacks.


  • 7:30pm - 9:00pm

    OIF Talent Show and After Party

    Always a crowd-favorite! The OIF Talent Show allows members of the OI Community to showcase their talents in an evening of memorable performances.


  • 9:00pm - 11:00pm

    Movie Sing Along

    If you don't want the night to end, join fellow conference attendees for a casual movie sing along.


  • 9:00pm - 11:00pm

    Teen Room After-Hours


  • 9:00pm - 11:00pm

    Relationships and Dating


  • *Program is subject to change and will be updated regularly


  • 7:00am - 8:00am

    Morning Meditation


  • 7:00am - 9:00am

    Breakfast

    Complimentary continental breakfast for all registered Conference attendees


  • 9:00am - 10:15am

    Pain and Coping Circus

    (closed captioning)


  • 10:30am - 11:30am

    Breakout Sessions

    Dental Issues in OI (closed captioning)
    Women's Health
    Fitness and OI


  • 2:00pm - 3:00pm

    Breakout Sessions

    Hearing Loss: Prevention and Treatments (closed captioning)
    Nutrition
    Parent Panel: Growing up with OI
    Independent Living Strategies


  • 3:15pm - 4:15pm

    Breakout Sessions

    Aging with OI(closed captioning)
    Peer to Peer Session: Break into small groups of your peers to ask for advice and discuss your experiences.

    Peer groups may include: parents, siblings, young adults, men, etc. If you would like to guide a peer group, please contact bonelink@oif.org


  • 6:30pm - 9:30pm

    Closing Dinner and Dance

    (closed captioning)


  • *Program is subject to change and will be updated regularly


SPONSORS

Titanium Sponsor

Platinum Sponsor

Gold Sponsor

Bronze Sponsor

Clinic Sponsor

For more information about Sponsorship or Exhibiting, contact mbonardi@oif.org