As a follow-up to the survey in July 2020, the OI Foundation has created a second survey focused on how
The March E-Newsletter is here! CLICK HERE Read about COVID-19 resources,  the OIF's COVID-19 survey, National OI Awareness Week, upcoming
Wow! Last year,  23 states officially proclaimed National OI Awareness Week! Thank you to everyone who helped raise awareness of
Rare Diseases Clinical Research Network Patient Advocate Spotlight  Tracy Hart, chief executive officer of the Osteogenesis Imperfecta Foundation, serves as
THIS SUNDAY - #RAREDISEASEDAY Rare Disease Day, which takes place on the last day of February each year, improves knowledge
Impact Grant Applications are due on MONDAY (3/1/21)! Impact grants may help cover the cost of items such as a
The February E-Newsletter is here! CLICK HERE Read about COVID-19 resources, upcoming virtual events, updates from the OIF, and more!
Virtual Northeast Regional Conference The OI Foundation is hosting the first Virtual Northeast Regional Conference on Saturday, February 27 from
The following is a statement from the OIF’s Medical Advisory Council regarding COVID-19 vaccines.  As with any health decision, it
OI Love You! This month only! Make a gift to the OIF in honor of a special someone and will