THIS SUNDAY – #RAREDISEASEDAY
Rare Disease Day, which takes place on the last day of February each year, improves knowledge amongst the general public of rare diseases while encouraging researchers and decision makers to address the needs of those living with rare diseases. The OI Foundation is proud to celebrate Rare Disease Day and hope you will join us in raising awareness on this important day! Click here to learn more about Rare Disease Day.
Did you know that there are more than 25 million Americans who are impacted by rare diseases, like osteogenesis imperfecta? On #RareDiseaseDay, we come together to show our stripes and raise awareness! Join us!
- ADD A PROFILE PICTURE FRAME!
More than 400 OI community members have added the OIF’s #RareDiseaseDay frame onto their Facebook profile pictures. Share your Unbreakable Spirit® by adding the frame to your profile picture today!
- LIKE, COMMENT, & SHARE!
Use social media to raise awareness for Rare Disease Day and to share YOUR story.
Be sure to like, comment, and share the OIF’s Rare Disease Day posts on Facebook, Twitter, and Instagram to help us raise awareness for the rare disease community across the world!
- ATTEND #RareDiseaseDay at NIH!
On Monday, March 1, OIF CEO Tracy Hart and OIF Medical Advisory Council member Robert A. Sandhaus, M.D., Ph.D. will participate as panelists for the session ‘How Care and Research Have Changed During COVID-19‘ at the National Institutes of Health’s (NIH) #RareDiseaseDay event. Click here to register to attend.