OI Informational Factsheets
The OI Foundation has published factsheets on many topics related to understanding and living with OI.
Check out our NEW resources!
Adult Health Toolkit: Information for Adults Living with OI, Their Families, and Medical Professionals
Navigating a New Diagnosis: A Tool Kit for Parents and Medical Professionals
What You Need To Know About Clinical Trials
Qu’est-ce que l’ostéogenèse imparfaite?
Wheelchair-Based Exercises for People with Osteogenesis Imperfecta (Resource from Hospital for Special Surgery)
About OI
Adult Health
Babies and OI
- Pregnancy: Women who have OI
- Pregnancy: Expecting a Child with OI
- Height and Weight Charts for the Child with OI Type III and IV
- Infant Care Suggestions for Parents
- Navigating a New Diagnosis: A Tool Kit for Parents and Medical Professionals
- Cómo Abordar un Nuevo Diagnóstico
- S’orienter dans un Nouveau Diagnostic
- Treatment Concerns for Children with OI
- Research Article: Cross-Sectional and Longitudinal Growth Patterns In Osteogenesis Imperfecta: Implications For Clinical Care
- Research Article: Longitudinal Growth Curves for Children With Classical Osteogenesis Imperfecta (Types III and IV) Caused By Structural Pathogenic Variants In Type I Collagen
Care/Treatments
Doctors and Hospitals
For Medical Professionals
Education
Families
Health Issues
OIF Video Resources
The OIF’s YouTube channel features videos created for OI community members and medical professionals including podcast episodes, COVID-19 community calls, Virtual Conference Sessions, research updates, stories from OI community members, and more!
