Stay Up to Date with the OI Foundation!

UPDATES FROM THE OIF

Information Center

The Foundation is continually developing new information resources in response to the needs of families, individuals, and professionals working with those affected by OI.

Resources

The OI Foundation provides  additional resources including the OI Clinic Directory, OIF Newsletters, and Support Networks.

Events

OIF Conferences, events, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Research

Research is an important part of the OI Foundation’s mission. Learn more about available OIF research grants and how to participate in current OI studies.

UPDATES FROM THE OIF

Stay up to date with the OI Foundation! To learn more about upcoming events, OIF Conferences, OI research, new resources, OIF programs, and information for the OI community, please visit the OIF Updates page.

Learn More

Enroll in the OI Registry!

The OI Registry is a database of individuals with OI (parents may enroll on behalf of their children) who are interested in participating in OI research. OI research announcements, surveys and questionnaires will be sent to you via email and you may choose which ones, if any, you would like to complete.

Sign Up Today

Current OI Studies and Publications

Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward. The OI Foundation’s Current OI Studies and Publications page features a list of OI studies that are currently recruiting, as well as a collection of published OI research.

Learn More

Join the OI Registry

Individuals with OI (18+) and parents of children with OI are encouraged to join the OI Registry. Once enrolled, you will receive information on upcoming studies and online surveys about OI. Your participation in these studies helps move OI research forward.

Upcoming Events

Fundraising events, OIF Regional Conferences, and OI support group meetings are held across the country. Attend an upcoming event in your area!

Current Studies

Supporting research is an important part of the OI Foundation’s mission. Your participation in current studies helps move OI research forward.

Rare Bone Disease Alliance

The OIF is proud to be a member of the Rare Bone Disease Alliance (RBDA). The RBDA is a patient advocacy network focused on educating medical professionals, expanding research, and assisting patients and communities affected by rare bone diseases.