The OI Foundation offers several resources for connecting with individuals with OI and OI families. All of the resources listed below allow participants to ask questions, share information, and offer mutual support to others.

OI Foundation Official Facebook Page
“Like” the OI Foundation on Facebook to receive important announcements and updates from the OI Foundation.

OI Community Forum Facebook Group 
Join the OI Community Facebook Forum discussion page for the OI community. Please note: In order to view and participate in  Facebook groups, you will need an active Facebook account.

 

OI FOUNDATION SUPPORT GROUPS

Support Group Leaders listed on this page represent community based groups of people affected by OI. These get-togethers are first and foremost a social gathering. Speakers may be scheduled from time to time to provide information on topics of interest to the group. Some groups choose to organize local fundraisers and raise awareness about OI in their communities.

Local contacts are not responsible for holding meetings but are available to offer support, answer questions and direct you to resources.

The information on this page is intended to help you connect with the OI community in your area. Please email or call a support group leader or contact person to join a group or to learn about local resources and activities.

Meetings are listed on the Online Calendar.

If you are interested in starting a Support Group in your area, contact the OI Foundation.

State/AreaNameEmailPhone numbers
AlabamaShellie Gruenwald - contact
Dana Busby - support group leader
oipac8@yahoo.com(850) 496-2626
(334) 216-2259
ArizonaBarbara Hicks - support group leader
Lauri Alexander - contact
oifromaz@gmail.com
lauri@digitalswirl.com
California (Northern)Bill Scarberry - support group leader
Anastasia Scarberry - support group leader
Beth Gero - support group leader
ncoisg@yahoo.com
abgero@sbcglobal.net
(916) 955-0978
(916) 474-9073
(925) 516-6439
California (Southern)Michelle Hofhine - support group leadermahofhine@gmail.com(805) 484-8723
ConnecticutSharon Werner - support group leadersharonlwerner@yahoo.com(860) 647-8095
ColoradoChristina Carney- support group leaderchristinalcarney@gmail.com(970) 964-4250
Florida (Tampa)Susie Wilson - support group leader
Gail Bunker - support group leader
Shellie Gruenwald - contact
oislw@aol.com
gbunker1@aol.com
(239) 482-6892
(813) 657-0049
(850) 969-0006
Florida (Southern)Missy Monokian - support group leadermissymonokianministries@comcast.net(305) 528-2336
Florida (Broward and Palm Beach County)Michele Burka - support group leader
Amie Ludwig - contact
Mishib69@gmail.com
amieludwig1@yahoo.com
954-547-2344
(214) 334-9683
GeorgiaAnne Smith - support group leader
Lindsey van der Klei - support group leader
Sharon Mutnick- contact
Aimee Strickland - contact
annesmithrn@aol.com
lindslang@gmail.com
aimeestrcklnd@yahoo.com
(770) 715-3051
(770) 296-9391
IdahoTrisha Taylor - support group leader(208) 969-0791
IllinoisJean Grys - contact
Mary Rozema - contact
grysmom@yahoo.com
merozema@comcast.net
(309) 353-4988
(815) 463-0687
IndianaMichelle Hoppes - contactoikaytesmom@aol.com(765) 553-6600
(765) 278-1840
IowaJoan Jacobs - support group leader
Sola Moffett - contact
Robin and Jerome Hawco -support group leader
Kyle Thompson -support group leader
jfjacobs48@hotmail.com
dsc3moff@yahoo.com
jhawco@rogers.com
suevankt@gmail.com
(641) 777-7055
(641) 590-5265
(641) 903-6393
(641)-420-8050
KentuckyCheryl Pena - support group leader
Angie Skaggs - support group leader
Calli1980@aol.com
yorkiemom.aws.@gmail.com
(859) 744-3679
(270) 860-7746
KansasSusie Gibson - contact
Stephanie Guin - support group leader
svgibson1@mybluelight.com
guinsteph@yahoo.com
(816) 650-6344
(913) 486-9080
Massachusetts (South Shore)Cheryl Manduca - support group leaderdisneyfanatic4eva@gmail.com(508) 292-0562
MichiganMark Peck - contact
Kim Peck - contact
creativekim1117@comcast.net(517) 256-1193
(517) 881-3240
MinnesotaErin DeBlieck - support group leadererinchad@myclearwave.net(507) 931-3454
MissouriSusan Wright - contact
Jennifer Fischer - contact
Stephanie Guin-support group leader
sewright03@yahoo.com
jlfischer@live.com
guinsteph@yahoo.com
(636) 931-5607
(417) 845-8105
(417) 592-3117(cell)
(913) 541-4770
MontanaKarrie Levanen - support group leaderklevanen@gmail.com(406) 471-4605
New JerseyRicky Britner Jr. - support group leader
JoAnn Berkenbush - contact
oirickybritnerjr@gmail.com
jbcowoi@juno.com
(304) 261-9199
New MexicoCurtiss Wilson - support group leaderoiersofnm@gmail.com(505) 750-8207
New York (NYC, Long Island)Brett Eisenberg - contact
Paul Granger - support group leader
netbe17@aol.com
pgranger@h2m.com
(347) 433-3342
(516) 796-0457
North CarolinaRay Rogers - support group leader
Naveen KV Muralidharan
ray@capefear.net
naveenspec@gmail.com
(910) 392-7778
(919) 534-5078
OhioRenee Riegel - contact
Cyndi Ashland - support group leader
Rena Sorensen-Burnworth - support group leader
bzymomma4@aol.com
cyndiashland@aol.com
rsburnworth@yahoo.com
(937) 830-2020
(513) 467-9588
(513) 673-3878
Ohio (Northern)Les & Erin Szavuly - contacteszavuly@lourdes.edu
(419) 824-3685
Ohio (SE)Cassandra Gililland - support group leadercassi777@gmail.com
(304) 840-9660
OregonShannon Parker-support group leader
Julie Schlafle - contact
shannonfinleyparker@gmail.com
jschlafle@yahoo.com
(503) 881-6240
(503) 285-2283
PA (Pittsburgh)Chaz Kellem - support group leader
Nikki Watson - support group leader
chazkellem@yahoo.com
Info@nikkiwatson.love
(412) 913-6357
Rhode IslandDiana Johnson - support group leader
Sue Kortick - support group leader
strongertogether.oi.connected@gmail.com
Skortick@lifespan.org
(401) 444-5794
Texas (Central) Texas (Wise County)
Texas (Houston)
Debbie Wiederhold - support group leader
Courtney Arant - support group leader
Lauren Miller - support group leader
Jocelyn Gomez - support group leader
DDWiederhold@netscape.net
oigroupofwisecountytexas@gmail.com
lauren.houstonOI@gmail.com
(512) 255-4422
(713) 562-5227
Texas (Dallas)Molly Lyke - contact
Elise Russell - contact
mollylyke@hotmail.com(214) 733-3288
(817) 577-0056
UtahAngie Livingston - contact(801) 536-3649
Virginia - TidewaterJohn Crandley - support group leaderjohn@pwcattorneys.com(757) 477-6023
WashingtonDiane Wysocki - support group leaderwysocki.diane@hotmail.com(206) 713-7208
West VirginiaWendy Barb - support group leaderwendyshiflett@hotmail.com
WisconsinJennifer Reese - contact
Kathy Shine - contact
Daniel Shine - contact
thereeses@wi.rr.com(262) 646-3887
(414) 383-4777
(414) 383-4777