The OI Foundation offers several resources for connecting with individuals with OI and OI families. All of the resources listed below allow participants to ask questions, share information, and offer mutual support to others.

OI Foundation Official Facebook Page
“Like” the OI Foundation on Facebook to receive important announcements and updates from the OI Foundation.

OIF Forum Facebook Page 
Join the OIF’s Forum discussion page for the OI community. Please note: In order to view and participate in  Facebook groups, you will need an active Facebook account.

Additional Resources for OI-Related Online Support
For questions or concerns about any support resource, please contact bonelink@oif.org.

 

OI FOUNDATION SUPPORT GROUPS

Support Group Leaders listed on this page represent community based groups of people affected by OI. These get-togethers are first and foremost a social gathering. Speakers may be scheduled from time to time to provide information on topics of interest to the group. Some groups choose to organize local fundraisers and raise awareness about OI in their communities.

Local contacts are not responsible for holding meetings but are available to offer support, answer questions and direct you to resources.

The information on this page is intended to help you connect with the OI community in your area. Please email or call a support group leader or contact person to join a group or to learn about local resources and activities.

Meetings are listed on the Online Calendar.

If you are interested in starting a Support Group in your area, contact the OI Foundation.

State/AreaName (Email link)Phone
AlabamaShellie Gruenwald - contact Dana Busby - support group leader(850) 496-2626 (334) 216-2259
ArizonaBarbara Hicks - support group leader Lauri Alexander - contact
Northern CaliforniaBill Scarberry - support group leader Anastasia Scarberry - support group leader Beth Gero - support group leader(916) 955-0978 (916) 474-9073(925) 516-6439
Southern CaliforniaMichelle Hofhine - support group leader(805) 484-8723
ConnecticutSharon Werner - support group leader(860) 647-8095
ColoradoChristina Carney- support group leader(970) 964-4250
Florida- TampaSusie Wilson - support group leader Gail Bunker - support group leader Shellie Gruenwald - contact(239) 482-6892 (813) 657-0049 (850) 969-0006
Florida-SouthernMissy Monokian - support group leader(305) 528-2336
Florida- Broward and Palm Beach CountyMichele Burka - support group leader Amie Ludwig - contact954-547-2344 (214) 334-9683
GeorgiaAnne Smith - support group leader Lindsey van der Klei - support group leaderSharon Mutnick- contact Aimee Strickland - contact(770) 715-3051 (770) 296-9391
IdahoTrisha Taylor - support group leader(208) 969-0791
IllinoisJean Grys - contact Mary Rozema - contact(309) 353-4988 (815) 463-0687
IndianaMichelle Hoppes - contact(765) 553-6600 (765) 278-1840
IowaJoan Jacobs - support group leader Sara Moffett - contactRobin and Jerome Hawco -support group leader(641) 777-7055 (641) 903-6393
KentuckyCheryl Pena - support group leader Angie Skaggs - support group leader(859) 744-3679 (270) 860-7746
KansasSusie Gibson - contact Stephanie Guin - support group leader(816) 650-6344 (913) 486-9080
Massachusetts-South ShoreCheryl Manduca - support group leader(508) 292-0562
MichiganMark Peck - contact Kim Peck - contact(517) 256-1193 (517) 881-3240
MinnesotaErin DeBlieck - support group leader(507) 931-3454
MissouriSusan Wright - contact Jennifer Fischer - contact Stephanie Guin-support group leader(636) 931-5607 (417) 845-8105 (417) 592-3117(cell) (913) 541-4770
MontanaKarrie Levanen - support group leader(406) 471-4605
New JerseyRicky Britner Jr. - support group leader JoAnn Berkenbush - contact(304) 261-9199
New MexicoCurtiss Wilson - support group leader(505) 750-8207
New York New York-Long IslandBrett Eisenberg - contact Paul Granger - support group leader(347) 433-3342 (516) 796-0457
North CarolinaRay Rogers - support group leader Naveen KV Muralidharan(910) 392-7778 (919) 534-5078
OhioRenee Riegel - contact Cyndi Ashland - support group leader Rena Sorensen-Burnworth - support group leader(937) 830-2020 (513) 467-9588 (513) 673-3878
Ohio (Northern)Les & Erin Szavuly - contact(419) 824-3685
Ohio (SE)Cassandra Gililland - support group leader(304) 840-9660
OregonShannon Parker-support group leader Julie Schlafle - contact(503) 881-6240 (503) 285-2283
PA (Pittsburgh)Chaz Kellem - support group leader Nikki Watson - support group leader(412) 913-6357
Rhode IslandDiana Johnson - support group leader Sue Kortick - support group leader(401) 444-5794
Texas (Central) Texas (Wise County) Texas (Houston)Debbie Wiederhold - support group leader Courtney Arant - support group leader Lauren Miller - support group leader Jocelyn Gomez - support group leader(512) 255-4422 (713) 562-5227
Texas (Dallas)Molly Lyke - contact Elise Russell - contact(214) 733-3288 (817) 577-0056
UtahAngie Livingston - contact(801) 536-3649
Virginia - TidewaterJohn Crandley - support group leader(757) 477-6023
WashingtonDiane Wysocki - support group leader(206) 713-7208
West VirginiaWendy Barb - support group leader
WisconsinJennifer Reese - contact Kathy Shine - contact Daniel Shine - contact(262) 646-3887 (414) 383-4777 (414) 383-4777