OI Foundation Regional Conference:
Phoenix, Arizona
Phoenix Children’s Hospital Conference Center
Join the OI Foundation for a Regional Conference on Saturday, September 9th.
This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pulmonary health, dentinogenesis imperfecta, chronic pain management in adults, and more. OI community members will also share personal experiences in panel discussions.
Children under the age of 12 can attend for free. A Kids Room with activities will be available during the event.
** Online Registration will close Wednesday, September 6th at 3pm EST/12pm MST **
** Walk-in Registration will still be available at the door on Saturday, September 9th **
** Please email bonelink@oif.org for more information or questions **
Agenda
| 9:00am – 9:30am | Welcome and Housekeeping Announcements Tracy Hart, OI Foundation Pam Smith, MD, Phoenix Children’s Hospital |
| 9:30am – 10:00am | Genetics of OI Rachel Lombardo, MD, Phoenix Children’s Hospital Deborah Krakow, MD, UCLA |
| 10:00am – 10:30am | Medical Management of OI for Children Pam Smith, MD, Phoenix Children’s Hospital |
| 10:30am – 10:45am | Break |
| 10:45am – 11:15am | Medical Management of OI for Adults Deborah Krakow, MD, UCLA |
| 11:15am – 11:45am | Orthopedic Treatments Maegen Wallace, MD, Phoenix Children’s Hospital |
| 11:45am – 12:00pm | Speaker Q&A |
| 12:00pm – 1:00pm | Lunch* |
| 1:00pm – 1:30pm | Pulmonary Issues in OI Robert (Sandy) Sandhaus, MD, PhD, National Jewish Health |
| 1:30pm – 2:30pm | Pain Management and OI Arie Zakaryan, PhD, Phoenix Children’s Hospital Paola Genovese, MD, Phoenix Children’s Hospital |
| 2:30pm – 3:30pm | Growing up with OI Moderated group discussion |
| 2:30pm – 3:30pm | Adult Life and Independent Living Moderated group discussion |
*Speakers will be available during lunch and throughout the day to meet with attendees and answer questions.
Frequently Asked Questions
Who is the OIF Regional Conference intended for?
OIF Regional Conferences are intended for OI community members and their families who live in the local area or region of the event. These are one-day meetings designed to provide opportunities to learn more about osteogenesis imperfecta and current treatment options. Individuals in the Phoenix, AZ area with all types and severities of OI are welcome to attend.
Will I be able to speak with experts and have my health concerns addressed?
There will be a designated time during each session for Q&A, and we encourage everyone to ask questions and participate.
Will there be information on adult OI health?
Yes! When relevant, speakers will address both adult and pediatric health concerns.
How much does the OIF Regional Conference cost to attend?
Registration for adults is $50 per person, and free for children under the age of 12. Scholarship opportunities and funding is available to cover registration costs for attendees. Please email Bonelink@oif.org to learn more.
Is the OIF Regional Conference: Phoenix, Arizona replacing the OIF National Conference?
No, it is not replacing the OIF National Conference. While OIF Regional Conferences have some similarities with OIF National Conferences, they are distinct programs with different goals. Regional Conferences are intended for local community members and highlight local resources and physician speakers in a shorter and more intimate meeting format.
