OI Foundation Regional Conference: Montreal
Shriners Hospitals for Children®- Canada
1003 Decarie Boulevard
Montreal H4A 0A9, Canada
Join the OI Foundation, the Canadian OI Society and Shriners Hospitals for Children®- Canada for a Regional Conference on Saturday, May 4, 2024.
This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pain management, dental and mental health advice, as well as moderated peer to peer group discussions.
A Kids Room run by staff and volunteers from Shriners Hospitals for Children®- Canada with activities will be available for children ages 2 and up.
Click here to view the agenda for the children’s programming
Online Registration closes on Friday, April 26th at 12noon.
Funding is available to cover registration costs! Please contact the OI Foundation at Bonelink@oif.org to learn more.
Please let us know when registering if you would like to use French interpretation. Veuillez nous indiquer lors de votre inscription si vous souhaitez utiliser l’interprétation en français.
Meeting Agenda
8:00 AM – 9:00 AM Check-in with light breakfast and exhibits
9:00 AM— 9:20 AM Welcome Remarks
Gary McKeown, Chairman of the Board of Governors, Shriners Hospitals for Children®-Canada
Tracy Hart, Chief Executive Officer, Osteogenesis Imperfecta Foundation
Jacinta Whyte, President & Chair, Canadian Osteogenesis Imperfecta Society
Frank Rauch, MD, Medical Director of the OI Program, Shriners Hospitals for Children®- Canada
9:20 AM— 10:00 AM Medical Management of OI
Frank Rauch, MD, Shriners Hospitals for Children®-Canada
Angela Cheung, MD, University Health Network, Toronto
10:00 AM— 10:40 AM Surgical Management of OI
Journey of OI
Cathleen Raggio, MD, Hospital for Special Surgery, New York
History of Rodding Surgery at Shriners Hospitals for Children®- Canada
Reggie Hamdy, MB, MSc (Ortho), FRCSC, Surgical Director of the OI Program, Shriners Hospitals for Children®-Canada
10:40 AM— 10:55 AM Break & Exhibits
10:55 AM — 11:25 AM Pain Management Resources in Children and Adults
Kelly Thorstad, MSc(A)N, PHCNP, Director of Nursing and Patient Care Services / Nurse Executive, Shriners Hospitals for Children®-Canada
Argerie Tsimicalis, RN, PhD, Shriners Hospitals for Children®-Canada
Khadidja Chougui, PhD, Shriners Hospitals for Children®-Canada
11:25 AM— 11:55 AM Physical and Occupational Therapy in OI: What we have learned from you over the years
Corinne Mercier, PT, Shriners Hospitals for Children®-Canada
Jessica Collins, OT, Shriners Hospitals for Children®-Canada
11:55 AM— 12:15 PM Patient Engagement in Research
Laura Tosi, MD, Children’s National, Washington, DC
12:15 PM— 1:30 PM Lunch & Exhibits
1:30 PM—3:00 PM Moderated Group Discussions
Psychosocial Aspects in Youth
Adult Life and Independent Living
3:00 PM— 3:15 PM Break & Exhibits
3:15 PM – 3:45 PM Pediatric and Adult Dentistry in OI
Annie Marleau, DMD, Montreal Children’s Hospital
3:45 PM— 4:00 PM Closing Remarks
Jani Barré, Humorist, Speaker, Athlete, Author, Adult living with OI
Kristin Hayes, COIS Ambassador, Lifestyle and Donor Services Director & Adult living with OI
4:00 PM – 6:00 PM Cocktail Reception
Frequently Asked Questions
Who is the OIF Regional Conference intended for?
OIF Regional Conferences are intended for OI community members and their families who live in the local area or region of the event. These are one-day meetings designed to provide opportunities to learn more about osteogenesis imperfecta and current treatment options. Individuals with all types and severities of OI are welcome to attend.
Will I be able to speak with experts and have my health concerns addressed?
There will be a designated time during each session for Q&A, and we encourage everyone to ask questions and participate.
Will there be information on adult OI health?
Yes! When relevant, speakers will address both adult and pediatric health concerns.
How much does the OIF Regional Conference cost to attend?
Registration for adults is $35 USD per person, and free for children under the age of 12. Scholarship opportunities are available for attendees to cover registration costs. Please email Bonelink@oif.org to learn more.
Is the OIF Regional Conference: Montreal replacing the OIF National Conference?
No, it is not replacing the OIF National Conference. While OIF Regional Conferences have some similarities with OIF National Conferences, they are distinct programs with different goals. Regional Conferences are intended for local community members and highlight local resources and physician
