National OI Awareness Week is a week dedicated to raising awareness for OI and sharing your Unbreakable Spirit®. OI Awareness Week is scheduled around Wishbone Day (May 6), the international OI Awareness Day.  Each year during National OI Awareness Week, OI community members request state proclamations, hang flyers, hold events, and share social media posts to raise OI awareness.

How will YOU raise OI awareness this week?
National OI Awareness Week is scheduled around Wishbone Day (May 6), the international day of OI awareness. There are so many ways to raise OI awareness during OI Awareness Week and Wishbone Day – check out some ideas below!

Raise OI Awareness 

Raise OI Awareness on Social Media
Last year, we reached more than 200,000 people on social media during National OI Awareness Week! We need your help to reach even more this year! Be sure to like and share our #SHAREforAWARENESS posts on Facebook, Twitter, and Instagram pages throughout the week!


Update your Facebook Profile Picture! 

Use your Facebook page to raise OI awareness! Click here to add a National OI Awareness Week frame to your Facebook profile picture!


Share Your OI Story

One of the best ways to raise awareness of osteogenesis imperfecta is to share your OI story and experiences. Gemma’s Corner, created in memory of OIF Founder Gemma Geisman, is a place where OI community members can share their OI story, as well as listen to others. Click here to listen to OI community member stories in Gemma’s Corner. We want to hear from you! To share your story, please record a 3 to 5 minute video and send it to jransome@oif.org. For more information, or if you need assistance recording or sending in your video, please contact the OI Foundation.


Support the OI Foundation

Create a Facebook Fundraiser
Invite your family and friends to join you in raising OI awareness and supporting the OI Foundation during National OI Awareness Week by creating a fundraiser for the OI Foundation on Facebook! Click here to get started!

Double Good Popcorn Fundraiser
Whether you are into salty or sweet, this awareness week fundraiser has something for everyone! Double Good popcorn is not only delicious but 50% of the sales go towards supporting the mission of the OI Foundation when you purchase from the OIF’s virtual popcorn store or create a store of your own! Here’s how to get started:

  1. Download the Double Good app
  2. Create your own pop up store using the OIF’s code: TJHSBQ
  3. Invite your friends and family to purchase popcorn from your pop up store in support of the OI Foundation from Monday, May 3 – Friday, May 7!

Interested in ordering Double Good popcorn? The OIF Popcorn store will be open May 3-7!

Bone China Tea
Bone China Tea participants can contribute to the OIF’s awareness, support and research efforts by enjoying a cup of tea in the comfort of their own home. The best part is, there is no event to plan! Simply invite your guests to enjoy a relaxing cup of tea at home and then make a gift to the OI Foundation with the money they may have saved by not going out to a real event.

While planning your Bone China Tea, you have the option to mail physical invitations to your guests, or hold the event completely online. Start planning your Bone China Tea event at www.oif.org/campaign/bonechinatea/


 

Mark Your Calendar

May 1, 2021
Virtual Bone China Tea Party

Sip, Sip, Hooray! Please join the staff of the OIF and OI community member, Susie Wilson, for a virtual tea party on May 1st for Bone China Tea Day during National OI Awareness Week. Bring your finest china and freshest baked good for warm conversation and togetherness on May 1 at 3:30pm ET. Dress to impress… your mug that is! During the event, we will take a poll of best teacup and the winner will receive a prize. All ages are welcome to attend. To register for the event, please visit www.oif.org/event/virtualbonechinateaparty/

May 6, 2021
Wishbone Day (International OI Awareness Day)

Wear your yellow in celebration of Wishbone Day! Each year on Wishbone Day, the OI Foundation shares facts about OI on social media every hour. Make sure you are following the OI Foundation on Facebook, Twitter, and Instagram so you can help us raise OI awareness worldwide by liking and sharing every #SHAREforAWARENESS and #OIstrong post!

May 6, 2021
The Current State of OI Research: An Update for the OI Community

There is more OI research being done now than ever before, and the complex findings and breakthroughs can be hard to decipher. Join the OIF in the first of a new series as we demystify and contextualize medical research in The Current State of OI Research: An Update for the OI Community. This series kicks off on Wishbone Day, May 6 at 6pm ET with a conversation between Cameron Penn, President of the OIF Board of Directors, and Dr. Brendan Lee MD, PhD, Principal Investigator of the Brittle Bones Disorders Consortium and OIF Medical Advisory Council Member. Click here to register to attend.

 

We can’t wait to celebrate National OI Awareness Week with you!

We need YOUR help to proclaim National OI Awareness Week in every state!

To request a proclamation in your state, follow the steps below.

  1. Click on your state below.
  2. Suggested Proclamation Request Language and Suggested Proclamation language are available here. If required, you may copy/paste this into your proclamation request form.
  3. Once you have submitted the request, notify Christina at cteufert@oif.org. Please include your name and the state you submitted a proclamation request for.
  4. When you receive your proclamation, please send an electronic version to cteufert@oif.org. If you did not receive an electronic version, please send a photo of the mailed proclamation.

Alabama
Alaska

Arizona
Arkansas
California
Colorado
Connecticut
Delaware
Florida

Hawaii
Idaho
Illinois
Indiana
Iowa
Kansas
Kentucky
Maine
Maryland

Michigan
Minnesota
Mississippi
Missouri
Montana
Nebraska
Nevada
New Hampshire
New Jersey

New York
North Carolina
North Dakota
Ohio
Oklahoma
Oregon
Pennsylvania
Rhode Island
South Carolina

South Dakota
Tennessee
Texas
Utah
Vermont
Virginia
Washington
Washington, DC
Wyoming

If you have any questions, please contact Christina at cteufert@oif.org.

 

YOU BUTTER BELIEVE IT! The OI Foundation is excited to partner with Double Good popcorn for a four-day fundraising event during National OI Awareness Week. Not only will delicious popcorn be delivered to your doorstep, but 50% of the proceeds will be donated to the OI Foundation!

Create your own Pop Up shop to support the OI Foundation!
1. Download the Double Good app
2. Create your own Pop Up shop using the OIF’s code: TJHSBQ
3. Invite your friends and family to purchase popcorn from your pop up shop in support of the OI Foundation from Monday, May 3 – Friday, May 7!

Follow the OI Foundation
Make sure you are following the OI Foundation on Facebook, Twitter, and Instagram!

  Follow us on Facebook!

Follow us on Twitter!

Follow us on Instagram!

On Saturday, May 1st from 3:30-4:30pm ET kick off National OI Awareness Week by joining the OI Foundation and Bone China Tea Chair Susie Wilson for a Virtual Bone China Tea Party. Attendees will learn about osteogenesis imperfecta, hear from members of the OI community, participate in live raffles, play games, and compete for best teacup! 

To register for the event, visit www.oif.org/virtualbonechinateaparty

Bone China Tea is a year-round fundraising campaign dedicated to raising awareness and supporting research efforts for osteogenesis imperfecta. Invite your guests to enjoy a relaxing cup of tea at home and then make a gift to the OI Foundation with the money they may have saved by not going to an in-person event. To set up your own Bone China Tea event or order invitations, click here or contact Christina at cteufert@oif.org.