Events

Please join Jane and Jim Early for the 10th Annual Naples Fine Wines tasting event on April 22 at 6:00pm ET at the Cedar Hammock Club House in Naples, Florida to benefit the Osteogenesis Imperfecta Foundation. This reception will include a wine tasting, auction, raffle, and opportunity to fund the mission of the OI Foundation.…

This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pain management, dental and mental health, as well as moderated peer-to-peer group discussions.

MONDAY: May 5, 2025 OIF Resources and Family Fun Night Hosted by Michelle Ronan, Special Projects Coordinator & Kenna Coleman, Manager of Health Education. 8:00PM ET Zoom Registration Link:  https://us02web.zoom.us/meeting/register/dnVTXVgCRpyyZM_cTJf2Zw#/registration     National OI Awareness Week is May 3-10, 2025! Learn more about how you can get involved at www.oif.org/awarenessweek

Wear yellow in celebration of Wishbone Day, the international OI awareness day! Each year on Wishbone Day, the OI Foundation shares facts about OI on social media every hour. Make sure you are following the OI Foundation on Facebook and Instagram so you can help us raise OI awareness worldwide by liking and sharing every #WishboneDay post!

TUESDAY: May 6, 2025 Wishbone Day: Mindful Living (previously titled Meditation and Mindfulness) Hosted by Southwest support group member Kelli Drussel, Northeast support group member Dianne McNeil, and special guest Kersti-Ly Biro. 8:00PM ET Zoom Registration Link: https://us02web.zoom.us/meeting/register/Tj0SII-fTZKMdjUnsEz0VQ#/registration     National OI Awareness Week is May 3-10, 2025! Learn more about how you can get…

WEDNESDAY: May 7, 2025 To Affinity and Beyond  Drop in for participant-driven focused conversations: Women's Health Men's Health Young Adults (18-30) Aging with OI Parenting a child with OI Hosted by West support group members Liana Teteberg and Diane Wysocki. Zoom Registration Link: https://us02web.zoom.us/meeting/register/kAtzf7E_QzmzNekr5Bpgkg National OI Awareness Week is May 3-10, 2025! Learn more about…

THURSDAY: May 8, 2025 Potential Drug Therapies: A conversation on their progress. Hosted by Southeast support group members Gail Bunker and Susie Wilson. With special guests Dr. Reid Sutton and Tracy Hart. 8:00PM ET Zoom Registration Link: https://us02web.zoom.us/meeting/register/FqqmBw1rSpu3KF57fjhMJg National OI Awareness Week is May 3-10, 2025! Learn more about how you can get involved at…

FRIDAY: May 9, 2025 O.I. Can Dance: An #UNBREAKABLE MIXSHOW Experience for O.I. Awareness Week Hosted by Midwest support group leaders Diane Albrecht and Jessica Minor. With special guest Tony Jacobsen. 8:00PM ET Zoom Registration Link: https://us02web.zoom.us/meeting/register/MT1_M-4XQhS97LA6wfsDBw National OI Awareness Week is May 3-10, 2025! Learn more about how you can get involved at www.oif.org/awarenessweek

Join the OI Foundation for a research update on Wednesday, May 14 at 8:00pm EST! In this session, Dr. Eric Storch of Baylor College of Medicine will provide an overview of the OI Wellbeing Study—a multi-phase research initiative examining the experiences and mental health of individuals with osteogenesis imperfecta (OI). He will highlight key findings…

Please join the Florida OI Support Group for the 2nd Annual Berries & Bones Event on Saturday, June 14, 2025! Enjoy a fun summer afternoon that includes a car show, food trucks, music, and a silent auction. The funds raised during this event will go directly to supporting the mission of the OI Foundation to…

Get ready for a summer of fun as the OI Foundation joins the Brittle Bone Society UK for the "Medics on the March" 57-mile journey in Scotland! Representing the OI Foundation will be Dr. Jeanne Franzone from Nemours AI Dupont Hospital, Dr. Reid Sutton from Texas Children's Hospital and Dr. Maegan Wallace from Phoenix Children's Hospital. All three doctors…