Events

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This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pain management, dental and mental health, as well as moderated peer to peer group discussions.

Rare Disease Day, which takes place on the last day of February each year, is the official international awareness-raising campaign for rare diseases.  The OI Foundation is proud to celebrate Rare Disease Day and hope you will join us in raising awareness on this important day! Click here to learn more about Rare Disease Day.

Please join the Osteogenesis Imperfecta Foundation for its 25th Annual Fine Wines & Strong Bones Gala! This year’s celebration will feature a Mardi Gras theme, complete with dinner, cocktails, a lively local Zydeco band, casino games, and exciting silent and live auctions. Guests will have the opportunity to support the mission of the OI Foundation…

In this virtual discussion, Amgen will share information on their new clinical trial evaluating the effect of romosozumab. They will discuss details about the treatment being studied and answer questions from the audience. Supporting research is an important part of the OI Foundation’s mission. The OI Research Update Series was created to keep OI community members…

Please join Jane and Jim Early for the 10th Annual Naples Fine Wines tasting event on April 22 at 6:00pm ET at the Cedar Hammock Club House in Naples, Florida to benefit the Osteogenesis Imperfecta Foundation. This reception will include a wine tasting, auction, raffle, and opportunity to fund the mission of the OI Foundation.…

This one-day in-person event will include sessions and discussions on understanding and living with osteogenesis imperfecta. OIF Regional Conferences are great opportunities for new and long-time OI community members to learn from expert speakers and meet other individuals and families in the area. Session topics will include medical and orthopedic treatments, pain management, dental and mental health, as well as moderated peer-to-peer group discussions.

MONDAY: May 5, 2025 OIF Resources and Family Fun Night Hosted by Michelle Ronan, Special Projects Coordinator & Kenna Coleman, Manager of Health Education. 8:00PM ET Zoom Registration Link:  https://us02web.zoom.us/meeting/register/dnVTXVgCRpyyZM_cTJf2Zw#/registration     National OI Awareness Week is May 3-10, 2025! Learn more about how you can get involved at www.oif.org/awarenessweek