Early and Mid-Career Investigator Reception

The Rare Bone Disease Alliance (RBDA) invites early and mid-career investigators to a reception at the ASBMR Annual Meeting to learn more about the RBDA and to connect with others interested in rare bone disease research, treatments and disease management.

Attendees will learn about diagnosis and possible treatments for rare bone diseases from members of the RBDA’s Scientific Advisory Panel and patient advocacy group leaders.

Agenda

5:30pm – 6:15pm     Networking

6:15pm – 6:20pm    Welcome
Laura Tosi, MD, Children’s National Hospital

6:20pm – 6:25pm    Sponsor Remarks
Alexion Pharmaceuticals

6:25pm – 6:35pm    High-level overview of the current state of research in rare bone disease
                                    Michael Collins, MD, RBDA Steering Committee Chair, NIH

6:35pm – 6:40pm   Patient Perspective
HypoPARAthyroidism Association

6:40pm – 6:45pm  The Importance of Including the Patient Voice in Research
                                   Deb Fowler, RBDA Leader, Soft Bones, Inc

6:45pm – 7:00pm    Networking

Food and beverages will be provided at this complimentary reception. We encourage all investigators and clinicians interested in rare bone research to join us! Please register today to insure your spot.

Thank you to Alexion for their generous support of this event

Seattle