OI Clinic Directory

In This Article

Add a header to begin generating the table of contents

OI Clinic Directory

Print Version

The OI Foundation recognizes that one of the difficulties that many OI community members face is finding a team of medical professionals who are familiar with working with this disorder. The purpose of this directory is to provide you and your family with accurate, verified, and easily accessible information to assist you in locating dependable multidisciplinary medical care.

All information included in the directory is provided by a representative of each clinic. Please note that this list is offered as a service. Being listed does not indicate that the OI Foundation endorses services and quality of care provided by these institutions. It is the responsibility of parents and adults with OI to verify whether a particular medical team meets their needs.

Physicians Directory

The OIF Information Center maintains a list of medical professionals (i.e. general physicians, dentists, specialists) who have experience treating patients with osteogenesis imperfecta (OI). To locate care in your area, please email [email protected].

Clinic Directory

State:	Hospital Name:	Clinic Name:	Clinic Director:	Clinic Hours/ Phone Number:	OI Patients Seen Last Year:	Services:
AL	University of Alabama Hospital - Kaul Human Genetics Building 720 20th St. South Birmingham, AL 35294	Bone Dysplasia and Connective Tissue Disorders Clinic	Maria Descartes, MD	(205) 934-4983	Unknown	Children & Adults
AZ	Childrens Clinics - 2600 N. Wyatt Drive Tucson, AZ 85712	Childrens Clinic for Rehabilitative Services (CCRS)	Debra Walter, MD	(520) 324-5437	15	Children to age 0-99
AZ	Phoenix Children's Hospital - 1919 E. Thomas Rd. Phoenix, AZ 85016	Multidisciplinary Skeletal Dysplasia and Bone Health Clinic	Mohan Belthur, MD	(602) 933-3033	150	Children to age 21
CA	UCLA School of Medicine - 10833 LeConte Ave Los Angeles, CA 90095	Bone and Mineral Clinic	Isidro Salusky, MD	Second Tuesday of each month: 9-12 Forth Monday of each month: 9-12 (310) 206- 0799	30	Children and adults
CA	Kaiser Permanente - 275 W. MacArthur Blvd. Oakland, CA 94611	Skeletal Dysplasia Clinic	Billur Moghaddam, MD	(916) 614-5177	14	Children and adults (Kaiser Health Plan Insurance Only)
CA	Shriners for Children Medical Center - 909 S Fair Oaks Ave Pasadena, CA 91105	Osteogenesis Imperfecta Clinic	Manu S. Raam, MD	(626) 389-9300	200	Children to age 18
CA	Shriners Hospital for Children - 2425 Stockton Blvd. Sacramento, CA 95815	General Orthopedic Program	Debra Templeton, MD Holly Leshikar, MD	Information:, (916) 453-2000 Ext. 5010 Appointments: (916) 453-2180	40	Children to age 18
CA	Valley Childrens Hospital - 9300 Valley Childrens Place Madera, CA 93636	Medical Genetics/Metabolism	Susan Winter, M.D.	(559) 353-6400	59	Children & Adults
CA	Stanford Childrens Health - 1195 West Fremont Ave. Sunnyvale, CA 94087	Bone Health Program	Laura Bachrach, MD Monica Grover, MBBS	(650) 721-1811	~40	Children to age 21
CO	Childrens Hospital Colorado - 13123 East 16th Avenue Aurora, CO 80045	General Orthopedics Program	Ellen Elias, MD	Clinics are on the 3rd Friday of each month. 1:00pm- 5:00pm (720) 777-2610	35	Children to age 21
CT	Connecticut Childrens Medical Center - 505 Farmington Ave, Suite 200, Farmington, CT 06032 AND 85 Seymour St. 8th Floor, Suite 805 Hartford, CT 06106	OI Center	Emily Germain-Lee, MD Nancy Dunbar, MD	Appointments & Information: (860) 837-6719 Contact for Research Studies: (860) 837-6763	85	Birth to age 90
DC	Childrens National Health System - 111 Michigan Ave. NW Washington, DC 20010	Division of Orthopaedics and Sports Medicine	Laura L. Tosi, MD	Bone Health Appointments: (202) 476-2112 For questions regarding infusions, please contact: Mirini Kim NP (202) 476-6476	78	Children and Young Adults, Individuals any age can enroll in the OI Longitudinal Study
DC	Childrens National Health System - 111 Michigan Ave. NW Washington, DC 20010	Division of Genetics and Metabolism	Kenneth N. Rosenbaum, M.D	(202) 476-2187	Unknown	Children and Adults
DE	A.I. DuPont Hospital for Children - 1600 Rockland Road Wilmington, DE 19803	Osteogenesis Imperfecta (OI) Program	Richard W. Kruse, DO, MBA Michael Bober, MD, Ph.D.	Mary Ellen Little, BSN, RN Nurse Navigator: (302) 651-5833	150	Prenatal 35 years of age
FL	Shriners Hospital for Children - 12502 USF Pine Drive Tampa, FL 33612	General Orthopedic Program	Maureen Maciel, MD Danielle Gomez, MD	New patient registration: (813) 972-2250, Ext. 7740 Existing patients: (813) 975-7106 Information on OI: (813) 972-2250, Ext. 7540	~ 80	Children to age 18
GA	Childrens Healthcare of Atlanta at Scottish Rite - 5455 Meridian Mark Rd. NE Suite 200 Atlanta, GA 30342	Genetic Skeletal Disorders Clinic	Jill Flanagan, MD William Wilcox, MD, Ph.D. (co-directors)	Orthopedics: (404) 255-1933 Genetics: (404) 785-0702	~100	Children to age 18
HI	Shriners Hospital for Children- Honolulu - 1310 Punahou Street Honolulu, HI 96826	General Orthopedic Program	Craig Ono, MD	8:00am 4:00pm (808) 941-4466	30	Children to age 18
IL	Shriners Hospital for Children- Chicago - 2211 N. Oak Park Ave. Chicago, IL 60707-3392	Osteogenesis Imperfecta Clinic	Peter Smith, MD	(773) 385-5579	150	Children to age 19
IN	Riley Hospital- Indiana University - 975 W. Walnut St. Indianapolis, IN 46202	Division of Clinical Genetics & Metabolism, Bone Dysplasia Clinic	Bryan Hainline, MD	By referral only: (317) 948- 0698	22	Children & Adults
LA	Shriners Hospital for Children - 3100 Samford Ave. Shreveport, LA 71103	General Orthopedic Program	Cary Mielke, MD	Appointments: (800) 830-0606 Information: (318) 226-4296	15	Services: Children to age 18
MA	Childrens Hospital Boston - 300 Longwood Ave. Boston, MA 02115	Orthopedic Clinic	Samantha Spencer, MD	(617) 355-6808	100	Children & Adults to age 35
MA	Shriners Hospital for Children - 516 Carew St. Springfield, MA 01104	Metabolic Bone Disease Clinic	Nancy Dunbar, MD	(413) 787-2000	15	Children & Adults up to age 21
MD	The Kennedy Krieger Institute & Johns Hopkins Medical Center - 707 N. Broadway Baltimore, MD 21205	Bone Center & OI Department	Mahim Jain, MD, Ph.D.	(443) 923-2685	300	Children and Adults
MD	National Institutes of Health - 10 Center Drive Bldg. 10/Rm 10D39 Bethesda, MD 20892	Pediatric Longitudinal Program in OI	Joan Marini, MD, Ph.D.	(301) 594- 3418	60	Children accepted into clinical trial and adults being followed post clinical trial
MI	University of Michigan - 1540 East Hospital Drive Level 3, Reception C, Ann Arbor, MI 48109	Osteogenesis Imperfecta Multidisciplinary Clinic	Michelle Caird, MD	2 3 clinics/years lasting 2 days in length. (3 days if seen by Cardiology) (734) 615-3599	41	Newborn to 25
MN	Gillette Childrens Specialty Healthcare - 200 E. University Ave. St. Paul, MN 55101	Multidisciplinary OI Clinic	Stephen Sundberg, MD	(651) 290-8712	85	Children to age 18
MN	New Mexico Clinic Research & Osteoporosis Center - 300 Oak St. NE Albuquerque, NM 87106	Research & Osteoporosis Center	E. Michael Lewiecki, MD	(505) 855-5525	10	Adults
MO	University of Missouri - 204 N Keen St, Ste. 102 Columbia, MO 665201	Skeletal Dysplasia Clinic	Daniel Hoernschemeyer, MD	(572) 882-1351	Unknown	Children to age 18
MO	Shriners Hospital for Children - 4400 Clayton Avenue St. Louis, MO 63110	OI Clinic	Michael Whyte, MD	(314) 432-3600 Ext. 1275	60	Children to age 0-21 years
MO	Childrens Mercy Hospital and Clinics - 2401 Gillham Rd. Kansas City, MO 64108	OI services through Childrens Mercy Kidney Center	Tarak Srivastava, MD	Appointments & Information: (816) 234-3030	33	Children to age 21
NE	Childrens Hospital & Medical Center - 8200 Dodge St. Omaha, NE 68114-4113	OI Clinic	Maegen Wallace, MD	(402) 955-4199 Option 5	195	Children to age 22
NM	New Mexico Clinic Research & Osteoporosis Center - 300 Oak St. NE Albuquerque, NM 87106	Research & Osteoporosis Center	E. Michael Lewiecki, MD	(505) 855-5525	10	Adults
NY	Hospital for Special Surgery - 535 E. 70th St. New York, NY 10021	Center for Skeletal Dysplasia & OI Clinic	Daniel Green, MD Cathleen Raggio, MD	OI Clinic: 2 Tuesdays each month. Center for Skeletal Dysplasias: Monday mornings (212) 774-7332	Unknown	Children to age infinity
NY	University of Rochester Medical Center - 601 Elmwood Ave. Box 690 Rochester, NY 14642	Division of Pediatric Endocrinology	Children: David Weber, MD P. Christopher Cook, MD Adults: Emily Carmody, MD	Children: (585) 275-7744 Adults: (585) 275-5321	~40	Children and Adults
NY	The Laurence D. and Lori Weider Fink Childrens Ambulatory Care Center - 160 East 32nd street, L3 Medical New York, NY 10016	Clinic for Pediatric Bone Health	Jason Klein, MD Emily Breidbart, MD	Appointments & Information: Pediatric Endocrinology - (212) 263-5940, Option 5	19	Children to age 18
NC	Carolinas Medical Center - 1000 Blythe Blvd. P.O. Box 32861 Charlotte, NC 28232-2861	Childrens Specialty Center	Charles P. McKay, MD	(704) 381-8802	50	Children to age 21
OH	Akron Childrens Hospital - One Perkins Square Akron, OH 44308	Osteogenesis Imperfecta Clinic	Frank Artinian II, MD William Schrader, MD	(330) 543-0735	30	Children & Adults
OH	Nationwide Childrens Hospital - 700 Childrens Dr. Columbus, OH 43205	Metabolic Bone Disease Clinic	John Mahan, MD	(614) 722-4363	110	Children and adolescents to age 21
OH	Cincinnati Childrens Medical Center - 3333 Burnet Ave., ML 4006 Cincinnati, OH 45229	Skeletal Dysplasia & Connective Tissue Clinic	Howard Saal, MD	513-636-4760, Option 1	20	Services: All ages, children and adults
OK	University of Oklahoma Hospital - 1200 N. Childrens Ave, Suite 4500 Oklahoma City, OK 73014	Metabolic Bone Disease Clinic	Sowmaya Krishana, MD, FAAP, CCD	(405) 271-6764	Unknown	Children to age 18 Coordination of care between disciplines, Genetics, bisphosphonate infusions if indicated
OR	Oregon Health & Science University - 3181 S.W Sam Jackson Park Rd. Mail Code: CR113 Portland, OR 97239- 3098	Bone and Mineral Clinic	Chaim Vanek, MD	Pediatrics: (503) 346-0640 Adults: (503) 494-3273	40	Children & Adults
OR	Shriners Hospital for Children 3101 S.W. Sam Jackson Park Rd. Portland, OR 97239	Skeletal Dysplasia Clinic	Dennis Roy, MD Lindsey Nicol, MD (Co-directors)	(503) 221-3422	60	Children to age 18
OR	Randall Childrens Hospital at Legacy Emanuel - 2801 N. Gantenbein Ave. Portland, OR 97227	Pediatric Genetics Program	George Anadiotis, DO	(503) 413-4505	Unknown	Birth to Adult
PA	Shriners Hospital for Children - 3551 N. Broad St. Philadelphia, PA 19140	Pediatric Orthopedic	Debbie Armstrong, ACM-RN, BSN, ONC	(800) 281-4050 Ext. 4073	Unknown	Birth to age 18
PA	Hospital of the University of Pennsylvania, Philadelphia PA - 3400 Spruce St, Philadelphia, PA 19104	Translational Medicine and Human Genetics	Staci Kallish, DO	(215) 662-4740	~20	Adults, ages 16 and up
PA	Shriners Hospital for Children - 1645 W. 8th St. Erie, PA 16505	Erie Ambulatory Surgery Center and Erie Outpatient Specialty Care Center	Timothy Ward, MD	(800) 873-5437	30	Birth to age 18
PA	Childrens Hospital of Philadelphia - 34th & Civic Center Blvd 11 Northwest Tower, Suite 30 Philadelphia, PA 19104	Center for Bone Health	Michael A. Levine, MD, FAAP, FACP	(215) 590-3174	40	Children & Adults
TN	Childrens Hospital at Vanderbilt - 2200 Childrens Way 6th Floor, Doctors Office Tower Nashville, TN 37232	Pediatric Metabolic Bone Disease	Jill H. Simmons, M.D.	(615) 936-8866 or (615) 875-8065	75	Children to age 19
TN	Vanderbilt University Medical Center - 8210 Medical Center East, South Tower AND 1215 21st Ave South Nashville, TN 37232	Program for Adult Metabolic Bone Disease	Kathryn Dahir, MD	(615) 343-8332	50	Adults (Asteroid Study)
TX	Baylor College of Medicine at Texas Childrens Hospital - 6621 Fannin St. Suite 1560 Houston, TX 77030	Skeletal Dysplasia Clinic	Brendan Lee, M.D., Ph.D.	(832) 823-4298	95	Children & Adults
TX	Shriners Hospitals for Children-Houston - 6977 Main Street Houston, Texas 77030	Orthopaedics	Lindsay Stephenson, MD	Elizabeth Guzman (new patient intake coordinator); (713)793-3765 Clinic Hours: 8am-5pm	50+	Children to age 18
TX	Texas Scottish Rite Hospital for Children 2222 Welborn Street Dallas, Texas 75219	OI Coordinated Care Center	B. Stephens Richards MD	Clinic Hours: 11-4:30 pm Appointments: 214-224-1589	136	Orthopedic surgery, metabolic with genetics, developmental pediatrics, psychology, physical therapy, occupational therapy, orthotics/prosthetics, dental, and child life.
UT	Shriners Hospital for Children - Fairfax Road at Virginia St. Salt Lake City, Utah 84103	OI Multidisciplinary Clinic	Nadine Ashley, BSN,RN, ACM	(801) 536-3564 Intake: (801) 536-3643	60	Children to age 18
VA	Childrens Hospital - of The Kings Daughters 1924 Landstown Centre Way Virginia Beach, VA 23456	Center for Bone Health	Allison Tenfelde, MD Eric Gyuricsko, MD (Co-directors)	(757) 668-6640	16	Children to age 21
WA	Shriners Hospital for Children - 911 W 5th Ave Spokane, WA 99218	Pediatric Orthopedic	Glen Baird, MD	(888) 895-5951	37	Children to age 18
WA	Seattle Childrens Hospital - 4800 Sand Point Way NE Seattle, WA 98105	Skeletal Health Program	Kathryn Ness, MD Klane White, MD	Skeletal Health: (206) 987-2109	60	Children & Adults
WA	University of Washington - 1959 NE Pacific St., Box 357720 Seattle, Washington 98195- 7720	Genetic Medicine Clinic	Peter H. Byers, M.D.	Appointments: (206) 598-4030	12	Children & Adults
WI	American Family Children’s Hospital 1675 Highland Ave. Madison, WI 53792	Pediatric Bone and Mineral Metabolism Clinic	Neil Paloian, MD	8:30am-4:30pm Appointments: Every other Friday afternoon from 12:30-3:00pm Information: 608-263-6420, option 1	11	Pediatric Nephrology; Pediatric Orthopedics; Genetic
Ontario, Canada	Hospital for Sick Children - 555 University Avenue Toronto, Ontario M5G 1X8	The Bone Health Clinic	Etienne Sochett, MB, Ch.B., FRCPC	(416) 813-7654 Ext. 222823	135	Children to age 18
Quebec, Canada	Shriners Hospital for Children - 1003 Decarie Blvd. Montreal, Quebec	OI Clinic	Francis Glorieux, OC, MD, PhD	(800) 361-7256 Ext. 8314 (from USA and elsewhere) (514) 282- 8314 (in Canada)	Unknown	Children to age 21