Research
Reflecting on 50 Years – A Letter from Gemma Geisman
To prepare for the OIF’s 50th anniversary, OIF Founder Gemma Geisman wrote a beautiful letter reflecting on the OI Foundation’s accomplishments and activities since 1970. Her daughter, Cathy, shared this…
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What A Year!
Dear Friend, As we near the end of 2020, we are taking a moment to reflect on what has certainly been a historic year. We are thankful for the generosity…
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COVID-19 Survey Results
Thank you to the 199 community members who filled out OIF’s COVID-19 survey to help us better understand how the COVID-19 pandemic is affecting families and individuals living with OI.…
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COVID-19 Vaccine Q&A Recording
The video recording of the OIF’s COVID-19 Vaccine Q&A video call is now available. Was this helpful? Submit Cancel Thanks for your feedback!
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Join the OI Registry
Individuals with OI (18 and older) and parents of children with OI are encouraged to join the OI Registry. The OI Registry is a database of individuals with OI who…
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Final Reminder: Survey Opportunities
The Osteogenesis Imperfecta Foundation would like to bring your attention to survey opportunities for OI community members.
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Survey Opportunity: Help Orthopedic Surgeons Learn About OI
The OI Foundation would like to bring your attention to a new survey to help orthopedic surgeons learn more about OI. A group of orthopedic surgeons with extensive experience in…
Read MoreOI Foundation PCOR Project Approved for Supplemental Funding Award
OI Foundation Project, Improving Patient-Centered Outcomes: Expanding Engagement of the Osteogenesis Imperfecta Community, Approved for Supplemental Funding Award The Osteogenesis Imperfecta Foundation is excited to announce that supplemental funding has…
Read MoreCPAG Webinar: An Introduction to Clinical Trials.
Are you interested in learning about how clinical trials work? Watch the Coalition of Patient Advocacy Groups (CPAG) Webinar: An Introduction to Clinical Trials. Tracy Hart, OIF CEO serves as…
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NIH Grant Funds Brittle Bone Disorders Consortium
As the lead patient advocacy organization of the Brittle Bone Disorders Consortium (BBDC), part of the NIH’s Rare Diseases Clinical Research Network, the OIF is pleased to announce that the…
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